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ezkayype.bsky.social
Chronically Ch✨ill✨ 😷🫀 AuDHD. Advocate. Accessibility for All ♿️ Leftist | Lesbian | BIPOC 🏳️‍🌈🏳️‍⚧️✊🏽🔮 ♊️ ☀️ ♊️ 🌘 ♑️ ⬆️
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Posts 13 Comments 37

I’ve been in the worst #autonomic and #chronicillness flare for the last 6 weeks. Saw my #longcovidspecialist yesterday & got formally Dx w/ #dysautonomia. Got full labs + kidney & liver lab work taken yesterday. Sleep study to rule out apnea or other disorders before potentially exploring #LDN. 🫠

submitted 23 days ago • 0 comments

It’s been a minute. My #babymullet had been growing since October & finally got a #haircut with a new stylist I’ve known for many years from when I used to train out of her gym. Tryna lean into a softer look this spring. 🫶🏽

submitted 41 days ago • 1 comment

A lot has happened in the last month in every aspect of my life, which has triggered one of the worst chronic flares I’ve had since this time last year. My tachycardia🫀, temperature intolerance 🔥, vertigo 😵‍💫, light sensitivity ☀️😎, nausea 🤢, presyncope, balance, and walking has been affected. (1)

submitted 41 days ago • 6 comments

Racing the clock with whether I’ll complete tempo work on a song in time before my sleep meds kick in has been an interesting challenge to say the least. 😴 Found by accident last week that playing #piano during a thunderstorm puts me in a pure, powerful trance. It’s so cathartic. 🎹⛈️⚡️❤️‍🩹

submitted 47 days ago • 0 comments

Consulted with family today dissecting my PCP follow-up and had sense talked into me. I am needing a COVID competent provider. I’m pre-fatigued thinking of it. I need to de-center whiteness AND men cuz I’ve been given subpar care across the board. Manifesting BIPOC women or AFAB docs for my future.

submitted 51 days ago • 0 comments

Feeling relieved as my Saturday rental application got immediately approved shortly after this new leasing office opened. Just got the deposit paid & lease signed earlier. I won’t be moving until April 30, but hoping this will be a soft place to land & praying the new neighbors won’t be horrible. 🙏🏽

submitted 53 days ago • 0 comments

“Lover girls need to be making art. ‘Lover girl’ is a gender-neutral term. The thing is, if you’re a hopeless romantic, if when you love, you love hard, if you have a big capacity to see other people, understand other people, love other people, I can guarantee you — your soul is deeply poetic.” (1)

submitted 54 days ago • 4 comments

My soul is so, so tired. Trying to rush to secure a local apartment last-minute, keeping my commitment to push myself socially once a month, and trying to process my breakup has triggered an autonomic flare & vertigo this week…I’m trying so, so hard to reign my stress in, but it’s challenging. (1)

submitted 54 days ago • 3 comments

Why do I need to “pick up” on the social cues??? Could people not just come out and say what they mean directly, instead of dancing around the point (assuming they’re provided the psychological/emotional safety in order to do so)???

submitted 61 days ago • 9 comments

Thankful for the opportunity to meet with @gigiwood.bsky.social for the first time since last year’s #Pride. Met for coffee and #community + bought her old keyboard. 🎹 For the last 5 weeks, I’ve made it a mission to socialize once a weekend. It’s a baby step for my #longcovidrecovery journey. 💜

submitted 62 days ago • 4 comments

Asked how to move forward. Just pulled a lover’s card in reverse. “…a breakup signifies a separation that is marked by emotional disconnection, unbalanced commitment, or a decision made out of confusion or external pressure.” What a read. If these can stop being so accurate, that’d be greatttt. /s

submitted 64 days ago • 1 comment

Never again will I question #magic — the cards, my intuition, the dreams and my hyper-vigilance again. I’m absolutely heartbroken…feeling like I continuously lose everybody. Docs, friends, partner. Why can’t folks be ready for me? Ready for us? Fight for us? 😞😞 Guess I’m staying in Iowa after all😓

submitted 64 days ago • 2 comments

I’ve started doing a daily #tarot pull and I’ve gotten some bleak ones this last week. The death card & the towers last weekend, then this judgement card in reverse this morning…life has been life-ing & aligning with these…weeee. Thank God I had #therapy yesterday, but goddamn… 😓 #witchmadness

submitted 65 days ago • 4 comments