helephant.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Eduardo Paolozzi, Parrot, 1964 https://botfrens.com/collections/14375/contents/1117516

submitted 471 days ago • 0 comments

submitted 2 days ago • 0 comments

This means more than there are words for. I feel so emotional. May this be the start of change that is so desperately needed. May other parties join suit. Thank you @tessamunt.bsky.social and ALL @libdems.org.uk MPs. #ME #MECFS #MEdeliveryplan

submitted 12 days ago • 2 comments

Disabled activists gate-crash DWP event and send message to ministers: ‘Your consultation is a sham’ #PathwaysToWork #DWP www.disabilitynewsservice.com/disabled-act...

submitted 12 days ago • 2 comments

The problem we have about health is that it’s marketed as this personal thing & conceptualised as the result of what you do to yourself or what individually happens to you -your bad luck- But health is largely a collective expression of our environment & circumstances. This requires societal action.

submitted 14 days ago • 3 comments

I’ve just donated again to David Tuller’s crowdfunding campaign. With only one day left to reach the $68,000 goal and 84% already raised, time for one last push to get him over the line.

submitted 16 days ago • 1 comment

well, the crowdfunder has reached two-thirds of the goal and there's still several days left! It's a very tough time all around so I'm pleased it's done this well: crowdfund.berkeley.edu/project/46120

submitted 19 days ago • 0 comments

An excellent new film by Anil van der Zee—created while living with severe ME—features 5 doctors who are also patients with ME, Long Covid, or chronic Lyme. Candid, insightful, and timely. English subtitles available. Please watch & share #MEawarenessMonth

submitted 19 days ago • 0 comments

🔥 This is the one petition that matters. Please sign and share far and wide 🙏 Oppose the Benefits green-paper in its entirety 💯: petition.parliament.uk/petitions/72... #pwME #pwLC #MECFS

submitted 20 days ago • 2 comments

Please check out Jenny's update and her story — donations made today will be matched up to £5000 and help her get the surgery she desperately needs #EDS #SevereME #MEcfs #CCI

submitted 21 days ago • 0 comments

"Art can never exist without Naked Beauty displayed" - William Blake, Laocoön #mythology #mythsky #artsky #classicsbluesky

submitted 22 days ago • 0 comments

"When you encounter health messaging, whether from a public figure, an advertisement, or a healthcare provider, notice whether it focuses on individual behavior or collective responsibility." #MEcfs #LongCovid

submitted 22 days ago • 0 comments

Disabled women know more than most how blocking access to toilets isn’t a minor inconvenience - it’s a form of segregation from everyday life. It is turning down drinks with friends as you worry you can’t fulfil a basic human need if you go out. And knowing society has made the choice not to care.

submitted 23 days ago • 12 comments

Urgently seeking help from #pwME #pwLC : Who tests for & treats microclots in UK (outside of research studies)? It’s been suggested I have microclots in my lungs and that this could have contributed / caused my life-threatening saturation event. Any thoughts on this?

submitted 23 days ago • 9 comments

Health crisis update from @vladvexler.bsky.social with request for advice navigating hospital care and oxygen management #pwME #pwLC #MEcfs #LongCovid

submitted 23 days ago • 0 comments

In the UK people with #ME finally had the possibility of significant research funding from the government through the ME/CFS Delivery Plan. With no money allocated to date in the Delivery Plan hopes of progress are dwindling. Action from #pwME needed 👇

submitted 26 days ago • 0 comments

The reason why protest is essential to political change is that only when people see the scale of discontent do they realise they are not alone, and that the tide can turn.

submitted 30 days ago • 40 comments

Blogpost giving some tips on how to maximise the usefulness of appointments with doctors. www.carermentor.com/p/how-to-clo... #DoctorPatientRelationship #chronicillness

submitted 31 days ago • 0 comments

Clip of David Tuller tearing up the PACE trial at the Invest in ME conference in 2017. David has been calling out bad #MECFS research for nearly a decade and his work is more important than ever. I've just donated to his crowdfunding campaign - please consider doing so if you can.

submitted 32 days ago • 1 comment

PLEASE support a 2% Wealth Tax. Nobody with wealth below £10m affected, apart from benefit. Proposal is annual 2% tax on wealth above £10 million - Around 20,000 people (richest 0.04%) in the UK. Taxed only on “additional wealth ABOVE £10m”. @taxjusticeuk.bsky.social #TaxTheRich taxjustice.uk

submitted 33 days ago • 1 comment

🧵We're proud to be partnering with Alchemse Theatre to launch a year-long creative project for Children and Young People with #LongCovid. 🎭 This theatre and comic book project celebrates the resilience of young people through storytelling, drama, and design. #LongCovidKids #PaediatricLongCovid

submitted 35 days ago • 1 comment

Ann E. Wallace, Poet Laureate Emeritus of Jersey City, has published a poetry collection chronicling her — and her daughters’ — experience with #LongCOVID. Read more from Days of Grace and Silence: A Chronicle of COVID’s Long Haul: bit.ly/42BjKiT

submitted 36 days ago • 0 comments

"We set out to make our ‘invisible illness’ visible in South Africa with SICK Pride" in @thesicktimes.bsky.social thesicktimes.org/2024/11/05/w... Image is from April 2025 AMMES Newsletter #MEcfs #LongCovid

submitted 39 days ago • 0 comments

Within a couple of days the petition to halt #DisabilityBenefits cuts reached 6,900+ people Please keep signing, keep sharing. petition.parliament.uk/petitions/72... "We want the Government to halt all planned benefit cuts for disabled people unable to work". #WelfareNotWarfare #NoToBenefitCuts

submitted 39 days ago • 1 comment

A #SevereME patient in Poland Is looking for a caring advocate based in Warsaw or elsewhere who understands Poland’s government and healthcare services #MEcfs #POTS #chronicillness #disabledsky #Warszawa #pwme

submitted 39 days ago • 0 comments

Suzanne O’Sullivan’s new book ‘The Age of Diagnosis’ and her curious characterisation of Long Covid as a psychosomatic condition bjgplife.com/suzanne-osul... Critical review by a GP who has long Covid #LongCovid #PASC

submitted 41 days ago • 3 comments

⚡NHS England Long Covid and ME Stocktake revealed 👉 We have obtained a copy of the report 👉 Documents and analysis in our new article It's a stark read but there is the occasional glimmer

submitted 41 days ago • 1 comment

𓊈20.03.25 15:48𓊉 «Views from the window Past 4 o’clock, spring and autumn wear the same face." #art #traditionalart #landscape #пленэр #арт #sketch #oil #oilpainting #LandscapePainting #painting #photo

submitted 43 days ago • 2 comments

Very grateful to have my essay about living with #longcovid, and the many missings it has wrought, up on @literaryhub.bsky.social.

submitted 46 days ago • 3 comments

#pwME #pwLC #TaxTheRich www.amnesty.org.uk/actions/stop...

submitted 45 days ago • 0 comments

PLEASE HELP ME ESCAPE! Share, quote, comment, like, retweet #Housing #ChronicIllness #MECFS #SevereME #LongCovid #Abuse #Neglect #MutualAid #Narcissist #Psychopath #ChronicPain

submitted 48 days ago • 1 comment

Rest in peace, Val Kilmer, secure in the knowledge that you brought us the finest underwater bar fight scene in the history of cinema. Thank you. www.youtube.com/watch?v=Wh61...

submitted 48 days ago • 0 comments

The funding for these long COVID research grants was given back bc disability activists urged us to contact our reps persistently, in high volume, and we did. Remember that these tactics work the next time someone tries to get you to passively react instead of taking an active part in organizing!

submitted 53 days ago • 12 comments

jeder tag ist jeder tag. #jederTagMECFS #MECFS #LongCovid #MEAwareness

submitted 53 days ago • 2 comments

Just because we can’t be on the streets doesn’t mean we’re invisible. Take part in online actions if you can. #ME #Disabled #BenefitCuts

submitted 56 days ago • 0 comments

Really great press release, I like this team. “We need to diagnose each condition”—amen.

submitted 57 days ago • 1 comment

The Department for Work and Pensions has issued a second misleading press release in consecutive weeks as it tries to trick the mainstream media into supporting its controversial cuts to disability benefits.

submitted 57 days ago • 0 comments