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jpeacejpeace.bsky.social
En-route to CV-19 (Long) recovery.
62 posts 108 followers 239 following
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Posts 13 Comments 36

#MECFSAwarenessMonth – Day 22: Conclusion Thirty years on, major health agencies have rejected the psychological approach to #MECFS. Patients were right — but the impact has been devastating. Harm, stigma, denial of care, stalled research and patients have no treatments.

submitted 2 days ago • 2 comments

The largest Long C-19 Delphi Consensus to-date has dropped. 179 Clinicians and Scientists contributed to this global effort‼️ With thanks to my amazing colleagues (too many to mention) but led by our awesome Chair @andrewewing11.bsky.social ann-clinmicrob.biomedcentral.com/articles/10....

submitted 34 days ago • 2 comments

🚨 New Video 🚨 A Clinician’s Guide to Navigating Complex Illness: ME/CFS, POTS, and Long COVID Explained 🎥 1.5 hours of my clinical insights, practical strategies, and a journey through uncertainty. Video:👉 youtu.be/Ej9yyOsGYNg?...

submitted 162 days ago • 1 comment

www.nature.com/articles/s41...

submitted 121 days ago • 1 comment

The #Leonardi_Effect is very real... @fitterhappieraj.bsky.social was correct in 2020.... Increasingly insightful with every publication. For those who may be new to this Start here: thetyee.ca/Analysis/202...

submitted 147 days ago • 13 comments

We welcome this research and were pleased to help ensure the experiences of children with #LongCovid were heard. However, we remain concerned the inquiry has not yet appointed a paediatric expert to assist in Module 8. covid19.public-inquiry.uk/news/how-did... #LongcovidKids #CovidInquiry

submitted 156 days ago • 1 comment

Hello blue sky people! I have 16,000 Twitter followers to whom I am dedicated to helping with MECFS. How will I ever reach that over here? Do I need to post on both places? ❤️

submitted 182 days ago • 50 comments

Some butterflies at home, Sunshine Coast hinterland: Orchard Swallowtail, White-banded Plane, Wonder Brown, Richmond Birdwing

submitted 181 days ago • 7 comments

Doing a Bluesky subathon to get to 100k ;p

submitted 182 days ago • 0 comments

Wise words from Matt Haig.

submitted 185 days ago • 4 comments

The more rehab in ME is studied the more people harmed by it are found. 57% of ME patients harmed by healthcare should make you question the negligible damage so many proponents of exercise have claimed. When actually asked its everywhere as patients have said for decades.

submitted 188 days ago • 1 comment

Everyone with PEM/PENE has dysautonomia but not everyone with dysautonomia may have PEM/PENE. Pass it on.

submitted 188 days ago • 13 comments

Covid Papers of importance - Eyes #5 doi.org/10.1038/s415...

submitted 189 days ago • 1 comment