kelpieunicorns.bsky.social
She/her • #AuDHD & #EDS • Champion of lived experience evidence in disability policy & research • #NDIS Squeaky Wheel in #Auspol • MAnimalSc • Mother of unicorns & a red kelpie
238 posts
726 followers
536 following
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It's ironic - I'm getting to the point of being too disabled to continue using the NDIS, and that's happened partly because of the stress, harm and workload of the NDIS.
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It also pushes the idea that NDIS funding is “welfare” when it’s really just rebates on therapies. Therapies which may, in fact, help participants to get/stay in a job!
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I hate to think how much time and money is wasted on 'reviews' which are focused on whether people with permanent disability have miraculously become more able...
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I'm a participant and advocate, though I'm sure you can find some of that data online.
What I could speak to in a real pub test is all the ways the current NDIS system has wasted many thousands in funds - and my time - imposing more barriers to meaningful contributions and paid work.
#Auspol
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I'm a participant and advocate, though I'm sure you can find some of that data online.
What I could speak to in a real pub test is all the ways the current NDIS system has wasted many thousands in funds - and my time - imposing more barriers to meaningful contributions and paid work.
#Auspol
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And yes, there's been some wildly problematic stuff. There's also been some solidarity and amplification of participant perspectives.
Either way, it's us who get screwed hardest, because we miss out on therapy and wear the consequences if travel is essential.
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As one who will lose physio access I NEED at home, I both get it and am terrified.
Because it is untenable to travel to me if they are underpaid for the time they could see two clients in the clinic.
Thin markets are too big to neatly line us up for mobile therapists that don't exist everywhere.
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People will die as their supports are cut and eliminated. The cruelty is the point. #NDIS #DisabilityRights
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The LAC who handled my wife's initial application to the #NDIS got her information tangled up with that of other participants. We've been trying to fix it for years, now.
The #NDIA has no apparent processes for "we fucked up and it needs fixing" - the Participant always has to do the work.
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Still waiting for that Autism TSP FOI too. The revised decision was sent to executives and board for clearance two weeks ago.
Which is concerning when I expect it may reveal some things the states haven't been asked to consider about the reality of support needs for autistic adults.
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People with disabilities said it last year and got a countdown website, a photo op with Pauline Hanson, and were called extremists on national television for our trouble.
And when we fact-check, it takes months to unravel media statements via FOI.
How do we disrupt another 3yrs of this strategy?!
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The long version, including all the ways the NDIA is not holding up their end of my #NDIS plan goal about showing up effectively in advocacy.
LinkedIners, I'd be grateful for some solidarity. It's intimidating posting this stuff on bureaucrat socials.
#HarmCostsMore #Auspol
@criprights.bsky.social
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The long version, including all the ways the NDIA is not holding up their end of my #NDIS plan goal about showing up effectively in advocacy.
LinkedIners, I'd be grateful for some solidarity. It's intimidating posting this stuff on bureaucrat socials.
#HarmCostsMore #Auspol
@criprights.bsky.social
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be clear, claims that CBT and GET can cure or treat severe #LongCOVID and #MECFS is no less absurd and dangerous than telling cancer patients to quit chemo and cure themselves with celery juice or telling day 1 abdominal surgery patients to boost recovery with a game of rugby. 5/
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Still waiting for that Autism TSP one though...
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(Not my FOI request, but not at all surprised)