kokotism.bsky.social
MCAS + POTS + EDS
142 posts
46 followers
20 following
Prolific Poster
Conversation Starter
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No way! I also survived a Walmart trip today 😂 that's so wild. I wasn't sure I was ready, but I desperately wanted some maple and brown sugar oatmeal
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Benefit of the doubt evaporated the second they discharged me while I was still in critical condition... of course, I got a good word in before that 😏
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The ER did not give me a chest x-ray, so we have no idea what my heart looks like right now, and tachycardia is still present most days. Poor thing is doing its best.
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We just finished our round of the extended editions last week! I own physical and digital copies 🤩
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No way, me too! 💃🏻 we're rockstars
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The community is exactly why I made an account and it's everything I expected to be. I just hope I can help you all the way you have helped me!
Please keep us updated.
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I'm so sorry friend. That's such a frustrating and invalidating experience, and I wish you didn't have to go through it. You've made me feel much less alone on here and I'm hoping you win this fight with my whole chest!
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When I do this they call me crazy, send me home, and lie all over those clinical notes to cover their asses 💃🏻
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I'm autistic and Pluto is my favorite so I think I might just run with this one for funsies
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my body has allergic reactions to things I'm not allergic to... I don't think I should trust anything it has to say