mfairma.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

In earlier days, I was able to go to DC in person to call for action for ME/CFS. Now I am tethered to my bed. But I will always participate in any way that I can in this long fight for fair treatment for all living with this disease. We are always stronger together!

submitted 13 hours ago • 1 comment

You came with us to Congress and to the protest on Capitol Hill. You sent in your pictures and stories and art or you came in person or you joined in on social media. However, you participated in this #MillionsMissing, we were stronger together! #pwME #MyalgicEncephalomyelitis #MECFS #LongCovid

submitted 14 hours ago • 1 comment

The other day, I was posting about my disgust at a woman’s proud proclamation that she does not prepare for storms. I’m begging y’all, as much as is within your means, please keep extra water, power banks/batteries, non-perishables, important papers, etc. stocked up. Don’t assume help is coming.

submitted 22 hours ago • 1 comment

We're proud to support the UK ME/CFS Biobank! With over 30,000 samples from individuals moderately and severely affected by ME/CFS, the Biobank is a vital resource for advancing research. Researchers can now apply for free access to these samples: https://tinyurl.com/mp96zzwp #MECFS

submitted 1 day ago • 0 comments

👀 🚨 Trump’s big brutal bill will “kill more than 51,000 Americans annually.” @ddayen.bsky.social prospect.org/politics/202...

submitted 1 day ago • 40 comments

Some Dems Warn Colleagues: Crypto Bill Could Inject Some 19th Century Chaos Into US Economy talkingpointsmemo.com/news/some-de...

submitted 1 day ago • 16 comments

Seeking an Australian who hates ableism! Could you make a phone call this week on behalf of a disabled person? ☎️ Anna can provide details in writing, she just needs someone to communicate with her doctor’s office via telephone. More below (from X) ⏬ #SevereME #DV #SaveAnna

submitted 1 day ago • 1 comment

Thank you to everyone who joined our ‘ME/CFS is’ campaign—by submitting, sharing, or reading these powerful voices. Awareness Month may be over, but the need for visibility, funding, and change continues year-round. See all submissions on our website: www.omf.ngo/community-vo...

submitted 2 days ago • 1 comment

Western media rarely cares about the impact of climate change on the Global south. These are not numbers. They are humans with real stories. Climate change is killing us. We must stop oil from continuing the murders. #FossilFuels #ClimateChange www.bbc.com/news/article...

submitted 2 days ago • 2 comments

Alt-text The documents obtained by CBS news also show other vessels named after prominent leaders are also on the renaming list. Among them are the USNS Thurgood Marshall, USNS Ruth Bader Giinsburg, USNS Harriet Tubman, USNS Dolores Huerta, USNS Lucy Stone, USNS Cesar Chavez, and USNS Medgar Evers.

submitted 1 day ago • 2 comments

The Department of Homeland Security is NOT making our country safer. They're ignoring immigration laws. They're handcuffing moms, zip tying children and disappearing them without hearings or due process. They're weaponizing DHS to purge people from the population. They're hiding their faces.⬇️

submitted 2 days ago • 372 comments

CT residents deserve the opportunity to have equitable, safe, and accessible homes. This is why we need HB 5002 to be signed into law by Governor Lamont.

submitted 1 day ago • 0 comments

Did y'all know? #MECFS is a disease shrouded in mystery, with 1.5 thousand inexplicable symptoms; this is why you must cast the bones to diagnose. This has led experts to presume that their inability to understand ME/CFS means it is unknowable as fate, god, time, and higher dimensions

submitted 1 day ago • 3 comments

We’ve been so moved seeing the #FundThePlan videos over the past few weeks. Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign. We’d love your help making some noise with it 🙏

submitted 85 days ago • 2 comments

Look this is pathetic but instructive because it’s not just about this lame creep it’s about the Overton window continuing to be moved so quickly by Trump’s criminality and lawlessness that bad people have reassessed their previous actions against the metric of “you can get away with anything.”

submitted 2 days ago • 27 comments

And #pw LongCovid please also help me with a brief anon survey. DWP’s response to my FOI request👇🏽implied that v few #pwLC access PIP DLA and many will lose this with the cuts. To act, I’d first like to understand what’s up… focussing on severe LC. 🙏🏽 forms.gle/YFoK9diPBBVf...

submitted 18 days ago • 0 comments

ASSIGNMENT: COMMENT ON SCHEDULE F 1 week left to comment about Schedule F, potentially making NIH institute and center director essentially political appointees. www.regulations.gov/commenton/OP... 1/n

submitted 5 days ago • 6 comments

I am someone who was pretty darned healthy before my second round of COVID, which left me disabled. My support groups were full of athletes and marathon runners. It can and does take out anyone, at any level of health, from any walk of life. All you need is one bad spin on its crappy roulette wheel.

submitted 2 days ago • 0 comments

Read this horrifying testimony from Israel's massacre of people just trying to get food:

submitted 3 days ago • 26 comments

Huge thank you to everyone who participated in the #MECFSis campaign, shared, or simply witnessed. You made this what it is. 🙏 Awareness Month may be over, but we’re not done. The need for visibility, funding, and change continues all year long. 🔗 See more voices on the @openmedf.bsky.social site

submitted 2 days ago • 0 comments

I'm running the Boston Waterfront 5K to raise money for #MassME an organization that supports those with #MEcfs #LongCovid #Fibromyalgia. No donation is too small. fundraisers.hakuapp.com/andrea-joliat

submitted 3 days ago • 3 comments

From AIDS Action Baltimore: Drastic proposed Schedule F changes would classify tens of thousands of jobs as political appointees who may be fired at the whim of the President, including the NIH Director, Institute Directors and Division Directors such as the Division of AIDS at NIAID. 🧪🧵

submitted 3 days ago • 3 comments

As a climate justice advocate sidelined by ME, it's been eye opening to see the same tactics used by the fossil fuel industry (manufactured doubt around scientific consensus, decades of delay, sacrificing lives to a violent status quo) wielded against me as a sick person. #GreatestMEdicalScandal

submitted 5 days ago • 2 comments

Refugees in Kenya have died at food distribution centers, officials noted, including a pregnant woman crushed to death during a stampede. Aid workers said they expected more people to get hurt “as vulnerable households become increasingly desperate.”

submitted 3 days ago • 70 comments

If you are still on Meta platforms, please follow our accounts (Instagram and Facebook) to help boost our signals there. There are a lot of folks there who need information about impeachment. They are not-yet-activated volunteers! They just need some encouragement.

submitted 6 days ago • 1 comment

We reached our goal and more. Update coming soon. #SaveLizNevra in Pakistan

submitted 3 days ago • 0 comments

This is absolutely essential reading in case you’re wondering what the wholesale dismantling of civil service work has to do with you. data4democracy.substack.com/p/how-to-dis...

submitted 4 days ago • 28 comments

The #mirrorbox starts its tour TODAY, taking the voices of people who cannot be there, to their chosen location, to connect with those that are there. It’s first location of #TroopersHill in #Bristol 11-6 today, June 1st 2025 iwouldbehereificould.com #iwouldbehereificould

submitted 4 days ago • 1 comment

this @adambonica.bsky.social piece deserves to be read beside the yeoman work that @donmoyn.bsky.social and @pamherd.bsky.social have been doing. The dismantling of administrative expertise is one of those stories that is so big that pro journalists with beats find it hard to focus on or explain .

submitted 4 days ago • 15 comments

I am currently representing two families who are being evicted from homes they own by a municipality using civil asset forfeiture on the grounds that feeding the homeless in their homes is a crime.

submitted 4 days ago • 10 comments

Reading this interview with Maksim Borisov, a gay Russian dissident who sought asylum in the US last year only for ICE to arrest and detain him in February. He's currently held in Eloy Detention Center in Arizona where he says "trans people… just disappear."

submitted 4 days ago • 17 comments

Deporting a gay man to Russia is beyond horrific, and yet this admin is happy to do it. And the verbal abuse he describes is abhorrent; and not new. Guards at detention centers, jails, and prisons get away with crap like this all the time. It’s appalling, it’s not new under Trump, just worse now.

submitted 4 days ago • 50 comments

Connecticut just adopted a MASSIVE pro-housing law that: - Ends costly parking mandates (1st state east of the Rockies to do so) - Incentives transit oriented development & fair share - Allows middle housing in commercial zones - Allows manufactured homes everywhere Go @desegregatect.bsky.social!

submitted 5 days ago • 3 comments

Art installation inspired by ME coming to Bristol and Glastonbury - BBC News #MyalgicE #PwME #MEawareness www.bbc.co.uk/news/article...

submitted 4 days ago • 0 comments

Cutting $20 billion to NIH over 25 years may save $500 billion on paper, but it’d end up costing $8.2 trillion in lost human health. But NIH isn't the only thing being cut. The budget also slashes all NSF-funded science by 73 percent. NASA faces “the biggest single-year cut to NASA in history."

submitted 4 days ago • 74 comments

The zine is free to download and print on our website btw :) thesicktimes.org/2024/12/02/s...

submitted 4 days ago • 0 comments

Heavily armed paramilitary forces stormed a local San Diego restaurant today, deployed stun grenades against a crowd of onlookers, and kidnapped a handful of kitchen workers.

submitted 5 days ago • 601 comments

People might not realize how much CDC recommendations influence insurance coverage. If they say the magic words "recommended" or "should," insurers are required to cover under the ACA. If they say "may" or "shared decision-making," it's not required. www.medpagetoday.com/infectiousdi...

submitted 5 days ago • 4 comments

There are 2 previous historical cases of countries destroying their science and universities, crippling them for decades: Lysenkoism in the USSR and Nazi Germany. The Trump administration will be the 3rd. It's not just budgets but research, institutions, expertise, and training the next generation.

submitted 5 days ago • 462 comments

Just a few of the #MillionsMissing sharing our stories and sending out an S.O.S. for our community. Our stories have power! Share whenever you can. Save our support Systems. Save our Science. Save our Society.

submitted 5 days ago • 0 comments

We are so honored to be able to share the stories of a small sampling of the Millions Missing. You sent in your photos and a few words for us to display at #MillionsMissing 2025. See full description & slideshow: youtu.be/BTCqXA1p8OY Still images: www.meactions.org/the-millions... #PwME

submitted 5 days ago • 0 comments

Skimmed the gallery & honestly had to look away. There are just so many us with so much to give the world who should be living beautiful, full lives & instead we’re suffering & forgotten bc of misogyny, dogma, & ableism. What a waste of human life. Sending love to my fellow #MillionsMissing

submitted 5 days ago • 1 comment

Success for #MEAction Scotland Campaign!! The @scottishgov.bsky.social withdraws outdated guideline and endorses NICE. The Scottish Government has withdrawn the Scottish Good Practice Statement on ME/CFS. Thanks to @jennimintomsp.bsky.social for her support.

submitted 5 days ago • 0 comments