mfairma.bsky.social
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
193 posts
1,087 followers
1,191 following
Prolific Poster
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CBT and GET made my M.E. so much worse in the 80s. I just don't understand why they think it'll help now. Post viral illnesses don't act differently just because 40-odd years have passed.
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If you burn down a forest, you don't miss out on lumber for just that season. You have to replant all the trees, nurture them, and wait for them to grow.
The science and research budget cuts happening now are wanton, senseless arson. Recovery, if it ever happens, will take generations.
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We are not lacking FDA-approved treatments because #MECFS is "so mysterious" but because FDA hasn't worked to produce endpoints for pharma, who then won't test drugs for #MECFS (or #LongCOVID btw, for the same reason).
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OPM is taking comments on this dangerous rule NOW — deadline June 7!
Tell OPM: don’t erode protections & trust in the civil service.
Submit comments here:
www.regulations.gov/commenton/OP...