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sepfieldpatient.bsky.social
Chronically ill (CVID, adrenal insufficiency, autoimmune diseases, and the rest), sometimes a maker of things…
830 posts 367 followers 655 following
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Posts 19 Comments 31

Want help navigating the #longCOVID #postvac and related #chronicillness space? Want evidence, rather than be sold another protocol? If so, I aim to help bring some clarity to things! Book an appointment: lc-sc.co.uk/book-an-appo... ✉️ [email protected] (🚫please no DMs)

submitted 206 days ago • 1 comment

If one is censured by a nation's Parliament for behaviour officially found to be "corrosive of trust in government", and is referred to an anti-corruption commission for misleading its Cabinet about the "crude and cruel" Robodebt scheme, how is one then eligible for said country's highest honour?

submitted 2 days ago • 78 comments

And then there are these winners

submitted 3 days ago • 0 comments

Absolutely outstanding article on the link between EBV infection and long-term health problems. The concept of infection with a pathogen causing not only acute illness but also being a risk factor for chronic illness in the future is not controversial. This is why I avoid SARS-CoV-2.

submitted 3 days ago • 7 comments

Masking is punk!

submitted 2 days ago • 1 comment

I think this is an important consideration for advocacy: most of us who take and advocate for precautions don’t really care about looking weird, and most of the people we need to reach really do. Doesn’t matter if you think they shouldn’t: they do, so we need to figure out how to work with that.

submitted 2 days ago • 4 comments

The gas price sets the electricity price. Our only hope for much lower costs is a RETROSPECTIVE gas reservation policy but @chrisbowenmp.bsky.social has already ruled it out due to ‘sovereign risk’. But that’s a gas lobby Furphy, unchallenged 👇 until now👇. #auspol

submitted 2 days ago • 3 comments

Do you know what the best part about needing a ventilator is? HAVING ONE. Needing, but not having, one for 3.5yrs sucked.

submitted 4 days ago • 0 comments

The government removed a bunch of my friends' papers from AHRQ’s Patient Safety Network (PSNet)... and a judge just ruled their removal was illegal. All of the following primers, commentaries, and spotlights have now been restored! Please enjoy the science for as long as we have it: (1/10) 🧪🧵

submitted 5 days ago • 1 comment

It’s 2am and I’m awake for… no apparent reason. Weird side effect of a week on a non invasive ventilator: I’m now hard up against the reality that I’ve become dependent on hypoxemia & cortisol deficiency to put me to sleep. I’ve forgotten how to go to sleep like a normal person. Laugh or cry.

submitted 4 days ago • 0 comments

1/ Overview of my #MEcfs improvements quantified! #PartialRemission #MEcfsEgress Context: I've had moderate ME for a decade, gradual onset worsening CFS since teens. tl;dr - major improvement contributors: - BornFree minerals (half into stage 1). - Environmental/mold avoidance.

submitted 5 days ago • 5 comments

1. With a new wave of Covid-19 incoming, and remembering my recent comments on the sustainability of risk mitigation, my current protocols are: Vaccination every six months. Masking in all shared indoor public spaces. No masking outside.

submitted 5 days ago • 11 comments

This article is wonderful. I find myself ruminating not just on the points Harriet makes, but also the fact that the definition of “perfect patient” (or parent of patient) one must live up to is completely varied and unstable.

submitted 5 days ago • 1 comment

At the start, I was told "freezing grants is just temporary" from people who obviously didn't realize what happens with "temporary" freezes is that cell cultures and lab animals die and people move on to positions where they're still being paid.

submitted 5 days ago • 3 comments

Stupid is as stupid does. This administration features people who are profoundly ignorant, hostile to anything that contradicts their 'convictions' (science is often disruptive) and understand very little about anything.

submitted 5 days ago • 0 comments

I’m currently having no hospital treatment at all. Weeks ago now I lodged a complaint that documented this day and many like it. I’m still waiting for a reply. Meanwhile I’m just getting sicker….

submitted 6 days ago • 0 comments

1/ Two years later… and the damage is still there. A new study followed Long COVID patients 2 years after infection. The findings? Not subtle. They measured what the virus left behind. Let’s walk through it. 🧵 h/t @njenkinsphd.bsky.social

submitted 22 days ago • 19 comments

This picture is a fine example of why looks can be deceiving: A few days out of emergency surgery After a potentially fatal bleed In pain from surgery Fatigue (Non-contagious) Throat infection from metronidazole Plus usual post vac symptoms ✨ But i look happy & healthy ✨

submitted 14 days ago • 1 comment

This is extremely useful.

submitted 17 days ago • 0 comments