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sepfieldpatient.bsky.social
Chronically ill (CVID, adrenal insufficiency, autoimmune diseases, and the rest), sometimes a maker of things…
837 posts 368 followers 656 following
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Posts 17 Comments 33

why is the president the only person testing the limits of his power? everyone should see what they can get away with. what if zookeepers gave helicopters to gorillas? nobody has tried this

submitted 8 hours ago • 207 comments

Register now for our second webinar of 2025: Safer shared air in healthcare 👉 bit.ly/sap-work How can we make workplaces safer, healthier, and more inclusive for everyone? 📍 Free online event 📅 Date: Tuesday 1st July 2025 ⏰ Time: 12:00pm AEST 🎥 Automatic captions and recording available

submitted 6 days ago • 1 comment

We have ramps so people can access buildings, and we use captions to make videos more accessible. What about our air? Poor indoor air quality can exclude people quietly, invisibly. We’re working to raise awareness of this inclusion issue - because should be able to breathe safely indoors.

submitted 9 hours ago • 1 comment

Seems @nhsgrampian.bsky.social class all non-malignant gynaecology procedures as category 3 (lowest) priority surgery No consideration for pain, anaemia, severity, cyst size, complications, QoL, comorbidities etc like other surgery categorisations ive seen do. This approach nearly killed me

submitted 17 hours ago • 5 comments

Once more for those up the back: no. A grand total of 80,000 Australians have super balances of $3m or above, 85% of whom are over 60. The hysteria around these tweaks is simultaneously illuminating and laughable.

submitted 12 hours ago • 16 comments

Want help navigating the #longCOVID #postvac and related #chronicillness space? Want evidence, rather than be sold another protocol? If so, I aim to help bring some clarity to things! Book an appointment: lc-sc.co.uk/book-an-appo... ✉️ [email protected] (🚫please no DMs)

submitted 207 days ago • 1 comment

If one is censured by a nation's Parliament for behaviour officially found to be "corrosive of trust in government", and is referred to an anti-corruption commission for misleading its Cabinet about the "crude and cruel" Robodebt scheme, how is one then eligible for said country's highest honour?

submitted 3 days ago • 78 comments

And then there are these winners

submitted 4 days ago • 0 comments

Absolutely outstanding article on the link between EBV infection and long-term health problems. The concept of infection with a pathogen causing not only acute illness but also being a risk factor for chronic illness in the future is not controversial. This is why I avoid SARS-CoV-2.

submitted 3 days ago • 7 comments

Masking is punk!

submitted 3 days ago • 1 comment

I think this is an important consideration for advocacy: most of us who take and advocate for precautions don’t really care about looking weird, and most of the people we need to reach really do. Doesn’t matter if you think they shouldn’t: they do, so we need to figure out how to work with that.

submitted 3 days ago • 4 comments

The gas price sets the electricity price. Our only hope for much lower costs is a RETROSPECTIVE gas reservation policy but @chrisbowenmp.bsky.social has already ruled it out due to ‘sovereign risk’. But that’s a gas lobby Furphy, unchallenged 👇 until now👇. #auspol

submitted 3 days ago • 3 comments

Do you know what the best part about needing a ventilator is? HAVING ONE. Needing, but not having, one for 3.5yrs sucked.

submitted 4 days ago • 0 comments

The government removed a bunch of my friends' papers from AHRQ’s Patient Safety Network (PSNet)... and a judge just ruled their removal was illegal. All of the following primers, commentaries, and spotlights have now been restored! Please enjoy the science for as long as we have it: (1/10) 🧪🧵

submitted 6 days ago • 1 comment

It’s 2am and I’m awake for… no apparent reason. Weird side effect of a week on a non invasive ventilator: I’m now hard up against the reality that I’ve become dependent on hypoxemia & cortisol deficiency to put me to sleep. I’ve forgotten how to go to sleep like a normal person. Laugh or cry.

submitted 5 days ago • 0 comments

1/ Overview of my #MEcfs improvements quantified! #PartialRemission #MEcfsEgress Context: I've had moderate ME for a decade, gradual onset worsening CFS since teens. tl;dr - major improvement contributors: - BornFree minerals (half into stage 1). - Environmental/mold avoidance.

submitted 5 days ago • 5 comments

1. With a new wave of Covid-19 incoming, and remembering my recent comments on the sustainability of risk mitigation, my current protocols are: Vaccination every six months. Masking in all shared indoor public spaces. No masking outside.

submitted 6 days ago • 12 comments