snowypanthera.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

1) One of the studies that noted 'something in the blood' of ME/CFS patients has now been replicated with a large sample size. Unfortunately, no effect was found.

submitted 10 days ago • 1 comment

I am one of the millions missing. Author, educator and advocate Maggie Boxey shares what her life is like living with ME/CFS, and how she has found a community of people for whom "feeling better" might never be an option. [14 mins] +Transcript tinyurl.com/3hbxkku8

submitted 54 days ago • 1 comment

🧵 I thought this was good (as I'd expect from @oonaghcousins.bsky.social & @thereforme.bsky.social team): "The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient" www.thereforme.uk/p/the-import... #MEcfs #LongCovid 1/

submitted 3 days ago • 3 comments

I hate articles like this, the journalist should check their own privilege...

submitted 5 days ago • 0 comments

🧵 Medscape (widely read by health professionals): ‘Symptom Invalidation’ in Clinically Uncertain Diagnoses Can Leave Lasting Mental Health Harms www.medscape.com/viewarticle/... (may require free registration) Thought this was good & interesting. #lupus #chronicillness #MEcfs #IBS #POTS #FMS 1/

submitted 8 days ago • 3 comments

So worse than fiction then?

submitted 7 days ago • 0 comments

Clip from The Golden Girls (1989): Dorothy confronts the doctor who dismissed her. She says he made her feel crazy, that a man might’ve been taken more seriously, that if doctors knew what it was like to be sick and scared, they might learn more — and patients need to be listened to.

submitted 12 days ago • 1 comment

Psychology Today: 'The Negative Consequences of Invalidating Patients' Symptoms' 'Patients suffer when clinicians dismiss, ignore, or minimize symptoms' 'This is particularly true of the last five years...including long Covid and POTS' www.psychologytoday.com/us/blog/shou...

submitted 18 days ago • 2 comments

www.youtube.com/watch?v=Jrpg...

submitted 20 days ago • 0 comments

If your business model doesn’t work without breaking the law, then you’re not in business. You’re in organized crime.

submitted 21 days ago • 112 comments

Does anyone know what the deal is with getting a sci-net.xyz invite code?

submitted 24 days ago • 0 comments

Some smart people are finally pushing back against "AI" hype. www.understandingai.org/p/i-got-fool...

submitted 28 days ago • 0 comments

I was dumped by a GP this week, took the kindness and wisdom of receptionists to find another, although many of the best doctors were not taking on new patients so it was a bit of a wild goose chase. Sometimes I think that receptionists have better people skills and would make better doctors than...

submitted 30 days ago • 0 comments

Do me a favor if you want to get into medicine but only take care of perfect patients who know their medical history and all of their medications and get upset when they don't, maybe think about why you want to be a doctor.

submitted 30 days ago • 70 comments

Latest blog: Pandemic contradictions - and why we need to to reflect on our discourse, and be as critical of ourselves as we are of those we disagree with: dontbelievehype.co.uk/covid-%26-va... See full blog for some commentary, but some pandemic contradictions include 👇🧵

submitted 45 days ago • 1 comment

"Notes on Vanishing" www.youtube.com/watch?v=cqhi...

submitted 46 days ago • 0 comments

By @anilvanderzee.bsky.social "Doctors as Patients (with subtitles)" www.youtube.com/watch?v=J0yw...

submitted 46 days ago • 0 comments

USA based but: www.youtube.com/watch?v=Md3L...

submitted 46 days ago • 0 comments

People like to buy themselves out of solutions when the correct answer is call your legislators and ask them if they or their children (if they have them) want to die from a food borne illness and if not to get the fda and usda back to proper staffing levels

submitted 47 days ago • 9 comments

Continuing my Paypal boycott, managed to convince a few small-scale sellers to provide alternative payment platforms other than Paypal which is nice.

submitted 47 days ago • 0 comments

These guys took their famous catchphrase from my comic but ok www.theguardian.com/australia-ne...

submitted 51 days ago • 46 comments

🧵 It would be great if friends of people with ME/CFS or long COVID would take the time to read this. These conditions are very socially isolating and lonely and patients would love to maintain friendships www.emerge.org.au/how-to-suppo... #LongCovid #MEcfs 1/

submitted 52 days ago • 9 comments

“Long Covid is not rare. It’s not limited to ‘only the vulnerable’. People of all ages, walks of life & health status are dealing with this debilitating condition. If you know more than a handful of people, odds are you know someone battling Long Covid….” #speirgorm #spéirghorm #COVID #BrainHealth

submitted 52 days ago • 2 comments

You can eat all organic food, drink green juice every day, do yoga, get vitamin D and touch grass… and still become disabled. Wellness culture can’t save you from disability. What’s worse, most wellness “gurus” will blame you when you become ill. Wellness culture is toxic & eugenics adjacent.

submitted 53 days ago • 54 comments

OK I kind of need to dig into this a little. DIY healthcare exists because of how this country has always treated chronic illness: we often have no choice but to access what we can by ourselves. And then able-bodied folks will mock sick folks for turning it to DIY methods like supplements & diet.

submitted 53 days ago • 4 comments

Healthy people: you shouldnt let your disability define you! ✨ 🌈 Disabled person: does something fun 🤗 Healthy people: r u even that disabled tho? 🧐

submitted 65 days ago • 1 comment

Chat from bed on the ME Diary channel about seeing the world of the ill from the world of the well www.youtube.com/watch?v=pgNn...

submitted 65 days ago • 1 comment

It’s a recalibration of economic control. Oligarchs don’t live paycheck to paycheck. They have the capital to buy market dips and recoup faster, acquiring more assets at fire sale prices along the way. When the dust finally settles, they will own more. The rest of us will own less. A lot less.

submitted 71 days ago • 924 comments

Mother Jones: 'For Some Disabled Protestors, “Hands Off” Went Virtual' “We know we have to teach everyone how to include us.” 'At a Hands Off rally for people with Long Covid, Amanda Finley was filled with emotions.' www.motherjones.com/politics/202...

submitted 72 days ago • 2 comments

The "culture war" is just a distraction from the class war. Attack the minorities while we see the largest increase in inequality in the history of the world.

submitted 72 days ago • 0 comments