stephenschueller.bsky.social
Professor of Psychological Science and Informatics, University of California, Irvine.
Clinical psychologist, mental health services researcher, implementation scientist, Lakers fan and Swiftie.
Follow me for my views on digital mental health!
100 posts
1,133 followers
182 following
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That's a wrap, another great panel, I'll try to summarize some overall thoughts later on my LinkedIn, check out my recap of yesterday's keynote www.linkedin.com/posts/stephe... and stay tuned for more updates from #SDMH2025 @sdmh.bsky.social
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Tip from Michael Pace that "tokenization is tops" ensure you can always track the potential good and bad with a user, need to make sure proper de-identification of data to really track consumer journey and understand impact in a data-driven way #SDMH2025 @sdmh.bsky.social
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Jeffrey Abraham notes that we have to remember that these are customer services, similar to our reframing of digital mental health as technology-enabled services, not products: psychiatryonline.org/doi/10.1176/... w/ @davidcmohr.bsky.social #SDMH2025 @sdmh.bsky.social
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Panel also notes the recent RFI from CMS on the health information health technology ecosystem: www.cms.gov/newsroom/pre... notes that we need to continue to repeat messaging and that some of the important steps are not bright and shiny @sdmh.bsky.social #SDMH2025
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Another emphasis on the FDA's risk-based approach and noting that some #digitalmentalhealth may be low-risk, of course we probably need better research on some of the real-risks of digital mental health #SDMH2025 @sdmh.bsky.social
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Panel brings up innovative attempts by states to implement #digitalmentalhealth like California's funding of Soluna for youth mental health solunaapp.com #SDMH2025 @sdmh.bsky.social
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One challenge in this space is understanding of what #digitalmentalhealth is, i.e., differences between teletherapy and digital mental health, especially a problem as dmh continues to evolve and change as noted by @davidcmohr.bsky.social in his opening to Day 2 of #SDMH2025 @sdmh.bsky.social
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The panel emphasizes that supporting digital mental health is not just a national/federal issue but also a state-issue, that advocacy needs to happen at state as well as federal levels #SDMH2025 @sdmh.bsky.social
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Panel emphasizes that this is a moment in time but we need to make use of this moment in time by leveraging - demand, advocacy, and evidence. People need to want it, we need to show it works, and we need to advocate for the use of these products given their benefits #SDMH2025 @sdmh.bsky.social
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The PHTI report on virtual solutions for depression and anxiety comes up again phti.org/assessment/v... and the importance of our field being involved and aware of digital evaluation bodies @sdmh.bsky.social #SDMH2025
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Emphasizes talking early and often with the FDA, touch base with the responsible review team ahead of time, don't show up with data in hand #SDMH2025 @sdmh.bsky.social
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Jumping in to talk about FDA clearance in #digitalmentalhealth notes misunderstanding of FDA clearance identifying the need to understand product codes, that FDA has cleared over 1,000+ AI enabled-devices starting in the 90s, and that FDA takes a risk-based approach #SDMH2025 @sdmh.bsky.social
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The panel starts out talking about the recent new codes for digital mental health treatments: nixonlawgroup.com/nlg-blog/202... Jeffrey Abraham mentions very few instances of the use of codes so far, maybe 200-300 #SDMH2025 @sdmh.bsky.social
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This paper on ensuring research access to platform data www.nature.com/articles/s41... came up in our conversation about data donation and its use in research #SDMH2025 @sdmh.bsky.social #TYDE
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@munmun10.bsky.social notes that data collection is based on the archival features of this platforms, these features can shift which can cause challenges to research projects and has experienced a lot of these shifts in her own research, "We're always playing catch up" #SDMH2025 @sdmh.bsky.social
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@xiaoransun.bsky.social talks about the insights she's gained from youth participatory work and how focus groups and listening to youth really help her frame her own research questions #SDMH2025 @sdmh.bsky.social #TYDE
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@benji700.bsky.social asks about the insights from data donation - what is needed to advance the field, more data? better data? @orbenamy.bsky.social emphasizes the challenge of "found data" insights come from data that is available, doesn't overcome the need for good self-report measures #SDMH2025
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@munmun10.bsky.social shares their CANDOR Data Donation Portal: vorcha.cc.gatech.edu for those interested in doing data donation in their own research #SDMH2025 @sdmh.bsky.social #TYDE
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@orbenamy.bsky.social calls out their collaboration with the Smart Data Donation Service at the University of York: www.sdruk.ukri.org/data/smart-d... #SDMH2025 @sdmh.bsky.social #TYDE
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Another question - how do we support understanding around data donation @orbenamy.bsky.social in some of their studies have a quiz during consent to look at understanding, also talks about an interim step to let them visualize their data before they donate it for research purposes #SDMH2025
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@orbenamy.bsky.social discusses the need for researchers to think carefully about what data they need ahead of time to help address issues of data security and privacy and also help researchers actually make use of that data #SDMH2025 @sdmh.bsky.social #TYDE
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@munmun10.bsky.social uses the example of the AOL search log release: en.wikipedia.org/wiki/AOL_sea... #SDMH2025 I'm one of the ones old enough to remember having to dial in to AOL #SDMH2025 @sdmh.bsky.social
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@munmun10.bsky.social discusses the challenges with de-identifying data collected through data donation methods. Given the amount of data de-identification often cannot be done manually, existing tools that automate this often are not perfect, maybe can de-identify 90%ish of the data #SDMH2025
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@xiaoransun.bsky.social talks about the timeline of collecting and analyzing this data - building trust and partnerships takes time, going through proper procedures for security takes time, analyzing the data, with the wealth of data available, takes A LOT of time #SDMH2025 @sdmh.bsky.social
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Panelists note youth are often open to data donation, given the tech companies are collecting the data anyways, like to see their data contribute to good purposes like researcher - again if you can make trust with the participants #SDMH2025 @sdmh.bsky.social #TYDE
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"You've got to get the cool kids on board" #SDMH2025 @sdmh.bsky.social #TYDE
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Experts on the panel talk about challenges / mistakes when it comes to data donation. #SDMH2025 Experts note failures when trust and transparency isn't present. One study where they asked participants to donate ALL their data. Another where the popular kids expressed concerns and tanked the study
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@munmun10.bsky.social discusses a study they conducted that allowed people to compare prospective vs. retrospective data donation. She notes they saw some self-censorship of activity on social media for a short period after the beginning of the study, but that eventually it wore off #SDMH2025
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@orbenamy.bsky.social discusses a study where people could pause collection of data (although noted that it makes data analysis more challenging with intensive longitudinal data analysis) #SDMH2025 @sdmh.bsky.social #TYDE
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@benji700.bsky.social asks about differences in participant views on donating previously collected data or data going forward (like with a screenomics approach that @xiaoransun.bsky.social uses) #SDMH2025 @sdmh.bsky.social #TYDE
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@xiaoransun.bsky.social discusses research with screenomics approach, that conducts data donation by running in the background and collecting screenshots and app use meta-data #SDMH2025 the need to clearly communicate what is being collected, who gets access to data, and how data could be shared
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Important question about helping people understand the long-term implications of donating their data. #SDMH2025 @munmun10.bsky.social emphasizes the importance of building trust between researchers and participants - can be done with transparent consent procedures and
emphasizing participant agency
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Great work by Komal Kumar from Modern Health on mental health literacy and patient activation in a #digitalmentalhealth platform #SDMH2025 @sdmh.bsky.social, love the focus on these proximal variables and how we drive consumer engagement and goals as these are pathways to clinical outcomes
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Panelists note importance of digital literacy, digital hygiene - what are some of the expectations about tech downtime, no device zones, and modeling examples of how we can use tech to support wellbeing #SDMH2025 @sdmh.bsky.social #TYDE also meta-awareness of impact of tech on wellbeing and mood
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I also think it requires us to think about the real risks and potential benefits of online spaces for youth mental health, we've reviewed some of the literature of the risks and trade offs of youth mental health in the meta-verse here: clalliance.org/blog/youth-m... #SDMH2025 @sdmh.bsky.social #TYDE
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Harkens back to @katiedrasser.bsky.social 's points in the keynote about products that use technology to leverage and increase in-person interactions like www.lookupp.net #SDMH2025 @sdmh.bsky.social
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@bethanyteachman.bsky.social raises an important question for #digitalmentalhealth for you, how do we manage the balance between trying to manage time spent online and risks of online spaces with potential benefits of digital interventions for youth @sdmh.bsky.social #SDMH2025 #TYDE
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Kathryn Boger identifies the need to think about personalization and also notes that mental health is complex, the fact that we see different results between two youth in an intervention isn't necessarily a treatment failure #SDMH2025 @sdmh.bsky.social
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@cescobarv.bsky.social talks about the balance between researchers who need to demonstrate impact on specific outcomes (to meet our research goals and hypotheses) but making an intervention that youth will want to use and sustain use overtime @sdmh.bsky.social #SDMH2025
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A lot of discussions of the challenges of constraining #digitalmentalhealth interventions to individual conditions leading to fragmented platforms and products that youth don't want to use #SDMH2025, hear similar things in our work with youth: formative.jmir.org/2022/10/e407... @sdmh.bsky.social
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Other challenges highlighted include challenges with equity, building tools for youth who already have access to care, considerations of adaptations and tailoring for different contexts
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"What are the main challenges in providing effective evidence-based digital tools for youth mental health?" Sustained engagement, increased fragmentation, the number of platforms and interventions, how do we help people find the right tools at the right moment (and pay for them?) #SDMH2025
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First question, "What are the most exciting advances you see in youth #digitalmentalhealth" some highlights, hybrid models (virtual + between session supports), meeting youth where they are at in online spaces, and AI as a complement to care, #SDMH2025 #TYDE @sdmh.bsky.social
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Big thank you to @katiedrasser.bsky.social for an AMAZING keynote at #SDMH2025 @sdmh.bsky.social #TYDE and great moderation by @davidcmohr.bsky.social stay tuned for more content as the conference continues over the next two days OR register yourself to check it out: societydmh.org/2025-annual-...
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One company she specifically called out was Lookupp: www.lookupp.net, a company that helps support young people finding other people to participate in in-person interactions @katiedrasser.bsky.social @sdmh.bsky.social #SDMH2025