stevefifield.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

🧵 Medscape (widely read by health professionals): ‘Symptom Invalidation’ in Clinically Uncertain Diagnoses Can Leave Lasting Mental Health Harms www.medscape.com/viewarticle/... (may require free registration) Thought this was good & interesting. #lupus #chronicillness #MEcfs #IBS #POTS #FMS 1/

submitted 3 hours ago • 1 comment

🚨 ACTION ALERT: The UK MUST protect ‘Madleen’ 🚨 The ‘Madleen’ is a UK-flagged civilian ship sailing to Gaza with life-saving aid as part of the #FreedomFlotilla. The UK has a legal duty to protect its vessel and the civilians aboard from Israeli interference. ..2/

submitted 2 days ago • 7 comments

The communications blackout has officially begun, the #Madleen will probably have all channels blocked very soon. So keep sharing, keep caring xx #FreedomFlotilla

submitted 9 hours ago • 1 comment

"Heart Rate Monitor Based Exercise Program Improves Heart Functioning in Chronic Fatigue Syndrome (ME/CFS)" www.healthrising.org/blog/2013/08... A very old article but I still found it interesting #MEcfs #CFS

submitted 1 day ago • 0 comments

Hi all. #pwME #pwLC Just wondering - Do any of you have any experience (good or bad) of using the LC App “C19-YRS” developed by ELAROS please?

submitted 1 day ago • 0 comments

Trigger Warning: I put together a thread that documents harmful portrayals of #MECFS on TV. I don’t enjoy sharing these, but it’s important to record how the condition has been misunderstood, trivialised and stigmatised. twitter-thread.com/t/1931298769...

submitted 1 day ago • 2 comments

In amongst all the excitement I fear many have missed this outstanding bit of trolling by Friedrich Merz. The Chancellor gifted Trump a gilded framed copy of his grandfather’s German birth certificate... reminding Americans that Trump is both the child and grandchild of migrants.

submitted 2 days ago • 246 comments

1/2 Thank you to everyone who attended our Genetics Centre of Excellence webinar today, with a special thanks to our speakers! 🙏 We were delighted to be able to share the exciting #MECFS & #LongCovid research updates, alongside announcing the launch of the GCoE website 👇 megenetics.org.uk

submitted 2 days ago • 1 comment

Trump has tapped Palantir, which has been used by the Israeli government in its war on Gaza, to compile information on people in the United States. “If you're not freaking out yet, you should be,” says @carolecadwalla.bsky.social.

submitted 3 days ago • 21 comments

Democracy in action. Definitely not a plutocracy.

submitted 2 days ago • 33 comments

Oh my goodness - this is incredible. I’m always cautious about using the term “breakthrough” but this could be a real game-changer - forcing blood cells to reveal that they are infected with HIV. www.theguardian.com/global-devel...

submitted 3 days ago • 7 comments

This is so true and crazy-making that it needs to be said. Musk's people are still deep inside our government, dismantling vital services and stealing data.

submitted 2 days ago • 20 comments

I feel like I am in a position where I have to be against the whole world because the whole world is against me…But I don't enjoy that, I didn't choose that. I was put in this position. I love this world. Read the whole piece on my blog: www.whitneydafoe.com/mecfs/?post=...

submitted 3 days ago • 1 comment

So pleased that acting with passion and persistence as a constructive Opposition, LibDems have seen through this positive change to Labour government policy. 👍🏾

submitted 3 days ago • 0 comments

If Republicans in the U.S. Senate pass the “One Big Beautiful Bill Act,” Oregonians currently enrolled in Medicaid are more likely than people in nearly any other state to lose coverage and end up uninsured, according to analyses from several national think tanks.

submitted 4 days ago • 3 comments

On Monday (2 June), my next-door (constituency) MP @stevewitherdenmp.bsky.social raised the issue of suspending arms sales to Israel in the HoC, holding a debate as a result of this petition petition.parliament.uk/petitions/70..., which you can still sign (until tomorrow):

submitted 4 days ago • 1 comment

From today, our film The Invisible Doctrine is on general release. Well, with the exception of Amazon, which has banned it. theinvisibledoctrine.com

submitted 4 days ago • 30 comments

🧵An example of the shenanigans and junk science accepted in medical journals. In September 2023, JAMA Pediatrics published a ludicrously bad paper (quasi-retracted after much effort) claiming long COVID is "strikingly rare" in kids, supposedly vs the WHO definition. jamanetwork.com/journals/jam...

submitted 162 days ago • 18 comments

The exact cost varies between individuals. And indeed it can vary within the same person. And some people tragically can’t do some of these at all. [I myself haven’t gone for a walk in over 30 years though can get out now on my mobility scooter & electric wheelchair]. #Spoonie #chronicillness

submitted 5 days ago • 2 comments

The secret society bringing an elusive orchid back from extinction in Yorkshire www.channel4.com/news/the-sec...

submitted 6 days ago • 3 comments

Yesterday was phenomenal! 160+ people came out and battled the wind to stand in a #mirrorbox to listen to my message, while looking at a place I love, & for many, that they do too. I’ve been wiped out today from the messages & hype, it was so lovely having my family come home & tell me about it all

submitted 5 days ago • 1 comment

Clip from The Golden Girls (1989): Before being diagnosed with #MECFS, Dorothy tells her doctor she’s had months of exhaustion, fevers, muscle weakness, memory problems, and more. Her tests are normal, so he dismisses it as loneliness or depression.

submitted 6 days ago • 109 comments

Starmer's Labour Party expels leftwingers for the tiniest perceived infractions. Yet it welcomes people who are basically Trumpists into the very heart of its operations. www.theguardian.com/politics/202...

submitted 6 days ago • 160 comments

Landlord's tried to raise the rent 9%, despite contract saying it'll only go up by RPI (4.5%) each year. I've pointed this out. What makes landlords think they deserve our money more than the local economy?

submitted 7 days ago • 0 comments

🚭 ‘The country that made #smoking sexy is breaking up with #cigarettes’ 🇫🇷 After glamorizing #tobacco for decades, #France plans its most sweeping smoking ban yet “The freedom to smoke stops where children’s right to breathe #CleanAir starts." abcnews-go-com.cdn.ampproject.org/c/s/abcnews....

submitted 8 days ago • 1 comment

Over 15,000 children have been killed in Gaza since October 2023 More than 9000 children have been treated for malnutrition just this year. www.theguardian.com/world/ng-int...

submitted 9 days ago • 3 comments

Elon Musk’s actions have already killed an estimated 300,000 people since January. Read this. (Gift link) www.nytimes.com/2025/05/30/o...

submitted 9 days ago • 48 comments

Medics/Nurses must assume BY DEFAULT that chronic patients know more than them about their chronic pathology.

submitted 9 days ago • 2 comments

"Roughly 1,500 babies have been born HIV-positive every day since January 21, because Musk cut off their mothers’ medication." prospect.org/power/2025-0...

submitted 9 days ago • 188 comments

So taxpayers are supporting a hidden welfare state for the rich as the UK Govt slashes welfare support for people in need. Profiting from misery & destitution 😡https://www.theguardian.com/society/2025/may/29/us-firm-maximus-that-tests-eligibility-for-uk-disability-benefits-pays-out-10m-in-dividends

submitted 9 days ago • 0 comments

I've been having some conversations in the scientific/clinical space that have blown my mind. I'm not sure if the gap between the lived-experience vs researcher/clinician has grown bigger in the last five years, but... wow. Let's discuss. 🌈 🧵

submitted 9 days ago • 5 comments

"We enrolled all patients aged ≥ 18 years who met the ME International Consensus Criteria (ME ICC) 2011" Looking forward to the day when every researcher uses the #MyalgicEncephalomyelitis ICC! For those not familiar see links here: drive.google.com/file/d/1OLvC...

submitted 10 days ago • 1 comment

Today is National Biscuit Day, and it’s about time that I populated this account with biscuit (cookie) sets from the past few years. Here are some of my favourites. 🧵 First up, a set inspired by the delicious designs of William Morris and John Henry Dearle.

submitted 10 days ago • 346 comments

Latest article from View from the Trenches of #MyalgicEncephalomyelitis covers the Nightingale Research Foundation's website currently being down - alternate links are available. Read about that here: open.substack.com/pub/colleens...

submitted 10 days ago • 0 comments