stevefifield.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Big thanks to @JoPlatt.bsky.social for sharing her challenging journey with #LongCovid. I agree - current @DWPgovuk approaches to assessment fail #pwLC, #pwME. Proposed changes will only worsen things, with devastating consequences. @longcovidsupport.bsky.social I’m with you - time to rethink!

submitted 13 hours ago • 2 comments

📣 Current PIP criteria already fail people with energy-limiting conditions. Proposed changes will deepen this injustice, with devastating consequences. @joplatt.bsky.social backs our call for a system that supports people with #LongCovid, in @bigissue.com.

submitted 18 hours ago • 1 comment

This is not okay!

submitted 1 day ago • 0 comments

The UK’s millions of unpaid carers are the backbone of our society, propping up our fragile health & social care systems and providing essential care to friends and family. This #CarersWeek, government must start to acknowledge the significant inequalities that carers face and put support in place.

submitted 20 hours ago • 0 comments

🧪 @sunny-rae1.bsky.social @johnmcdonnellmp.bsky.social Thank you Rae for the briefing on #LongCovid you gave John and John for putting it forward in today’s debate on the Pandemic

submitted 1 day ago • 4 comments

Was just on hold with Liverpool Crown Court for 55 minutes before giving up. Luckily, they replay the same piece of hold music every 30 seconds.

submitted 1 day ago • 1 comment

💥Freedom Flotilla Coalition Update💥 The #FreedomFlotillaCoalition confirms that 4 of the 12 abducted from international waters have been deported, while 8 remain unjustly detained. Israel is handling the custody of all 12 as though they had entered illegally— ...2/

submitted 3 days ago • 4 comments

Greta arrived in Paris about an hour ago and has been talking to the press. #Madleen www.youtube.com/watch?v=WB14...

submitted 3 days ago • 2 comments

Today’s #ThereForME blog is from our very own @oonaghcousins.bsky.social! Oonagh explores the importance of understanding rest, comparing her experiences as an athlete to those as a patient. Link in next post 👇

submitted 3 days ago • 1 comment

I'm appalled to hear the latest update from the Madleen. The people of Gaza are enduring unimaginable suffering and they have the right to receive aid. I've written to the Foreign Secretary urging him to uphold international law and ensure that the illegal blockade is lifted.

submitted 4 days ago • 0 comments

Thank you to my constituent Anthony for raising the issue that medical data is often not accessible across the NHS because of incompatible systems. Delighted that in response to my question, the Leader of the House confirmed that the government is absolutely committed to fixing this. 👍🏾

submitted 3 days ago • 0 comments

So Israhell is medically abusing the crew of the Madleen too? Why would they say they are doing that? They've already told us they are going to be interrogated and psychologically tortured.

submitted 4 days ago • 1 comment

Who is Madleen, the woman for whom the Gaza aid ship is named? This video explains: www.aljazeera.com/video/newsfe...

submitted 4 days ago • 1 comment

The officer on the far left literally takes careful aim at a static TV news reporter in LA and shoots her. He must have been really scared about the TV coverage. Awful times. Anything to make more drama than there is. youtu.be/vglaT7awScY

submitted 4 days ago • 0 comments

At 1.0 am the IDF surrounded the Madleen with boats, drones and sprayed them with chemicals. The 12 people aboard were instructed to throw phones into the water and are now off the Madleen and with the IDF. They are all apparently safe. An illegal act carried out by Israel in international waters.

submitted 5 days ago • 0 comments

Can many people name the chairman of Labour, Tories, Lib Dems or Greens? How often does an unelected bureaucrat get the 8:10 interview on Radio 4? Completely disproportionate media coverage of Zia Yusuf saga

submitted 4 days ago • 12 comments

🧵 Medscape (widely read by health professionals): ‘Symptom Invalidation’ in Clinically Uncertain Diagnoses Can Leave Lasting Mental Health Harms www.medscape.com/viewarticle/... (may require free registration) Thought this was good & interesting. #lupus #chronicillness #MEcfs #IBS #POTS #FMS 1/

submitted 5 days ago • 3 comments

🚨 ACTION ALERT: The UK MUST protect ‘Madleen’ 🚨 The ‘Madleen’ is a UK-flagged civilian ship sailing to Gaza with life-saving aid as part of the #FreedomFlotilla. The UK has a legal duty to protect its vessel and the civilians aboard from Israeli interference. ..2/

submitted 7 days ago • 12 comments

The communications blackout has officially begun, the #Madleen will probably have all channels blocked very soon. So keep sharing, keep caring xx #FreedomFlotilla

submitted 5 days ago • 1 comment

"Heart Rate Monitor Based Exercise Program Improves Heart Functioning in Chronic Fatigue Syndrome (ME/CFS)" www.healthrising.org/blog/2013/08... A very old article but I still found it interesting #MEcfs #CFS

submitted 6 days ago • 0 comments

Hi all. #pwME #pwLC Just wondering - Do any of you have any experience (good or bad) of using the LC App “C19-YRS” developed by ELAROS please?

submitted 6 days ago • 0 comments

Trigger Warning: I put together a thread that documents harmful portrayals of #MECFS on TV. I don’t enjoy sharing these, but it’s important to record how the condition has been misunderstood, trivialised and stigmatised. twitter-thread.com/t/1931298769...

submitted 6 days ago • 2 comments

In amongst all the excitement I fear many have missed this outstanding bit of trolling by Friedrich Merz. The Chancellor gifted Trump a gilded framed copy of his grandfather’s German birth certificate... reminding Americans that Trump is both the child and grandchild of migrants.

submitted 7 days ago • 248 comments

1/2 Thank you to everyone who attended our Genetics Centre of Excellence webinar today, with a special thanks to our speakers! 🙏 We were delighted to be able to share the exciting #MECFS & #LongCovid research updates, alongside announcing the launch of the GCoE website 👇 megenetics.org.uk

submitted 7 days ago • 1 comment

Trump has tapped Palantir, which has been used by the Israeli government in its war on Gaza, to compile information on people in the United States. “If you're not freaking out yet, you should be,” says @carolecadwalla.bsky.social.

submitted 8 days ago • 22 comments

Democracy in action. Definitely not a plutocracy.

submitted 8 days ago • 33 comments

Oh my goodness - this is incredible. I’m always cautious about using the term “breakthrough” but this could be a real game-changer - forcing blood cells to reveal that they are infected with HIV. www.theguardian.com/global-devel...

submitted 8 days ago • 7 comments

This is so true and crazy-making that it needs to be said. Musk's people are still deep inside our government, dismantling vital services and stealing data.

submitted 8 days ago • 20 comments

I feel like I am in a position where I have to be against the whole world because the whole world is against me…But I don't enjoy that, I didn't choose that. I was put in this position. I love this world. Read the whole piece on my blog: www.whitneydafoe.com/mecfs/?post=...

submitted 8 days ago • 1 comment

So pleased that acting with passion and persistence as a constructive Opposition, LibDems have seen through this positive change to Labour government policy. 👍🏾

submitted 8 days ago • 0 comments

If Republicans in the U.S. Senate pass the “One Big Beautiful Bill Act,” Oregonians currently enrolled in Medicaid are more likely than people in nearly any other state to lose coverage and end up uninsured, according to analyses from several national think tanks.

submitted 9 days ago • 3 comments

On Monday (2 June), my next-door (constituency) MP @stevewitherdenmp.bsky.social raised the issue of suspending arms sales to Israel in the HoC, holding a debate as a result of this petition petition.parliament.uk/petitions/70..., which you can still sign (until tomorrow):

submitted 9 days ago • 1 comment

From today, our film The Invisible Doctrine is on general release. Well, with the exception of Amazon, which has banned it. theinvisibledoctrine.com

submitted 9 days ago • 30 comments

🧵An example of the shenanigans and junk science accepted in medical journals. In September 2023, JAMA Pediatrics published a ludicrously bad paper (quasi-retracted after much effort) claiming long COVID is "strikingly rare" in kids, supposedly vs the WHO definition. jamanetwork.com/journals/jam...

submitted 168 days ago • 18 comments

The exact cost varies between individuals. And indeed it can vary within the same person. And some people tragically can’t do some of these at all. [I myself haven’t gone for a walk in over 30 years though can get out now on my mobility scooter & electric wheelchair]. #Spoonie #chronicillness

submitted 11 days ago • 2 comments