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stevefifield.bsky.social
Informed decisions & verifiable facts please, not opinion & belief. UK. 🇬🇧 Mine of occasionally useful information. NHS and healthcare 💙 #Equality #Justbe #Inclusion #LGBTQ+ 🌈 ally #pwME #MECFS #Activetravel 🚲 #Sustainability #Gardening #VisibleApp
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💥Freedom Flotilla Coalition Update💥 The #FreedomFlotillaCoalition confirms that 4 of the 12 abducted from international waters have been deported, while 8 remain unjustly detained. Israel is handling the custody of all 12 as though they had entered illegally— ...2/

Greta arrived in Paris about an hour ago and has been talking to the press. #Madleen www.youtube.com/watch?v=WB14...

Today’s #ThereForME blog is from our very own @oonaghcousins.bsky.social! Oonagh explores the importance of understanding rest, comparing her experiences as an athlete to those as a patient. Link in next post 👇

I'm appalled to hear the latest update from the Madleen. The people of Gaza are enduring unimaginable suffering and they have the right to receive aid. I've written to the Foreign Secretary urging him to uphold international law and ensure that the illegal blockade is lifted.

Thank you to my constituent Anthony for raising the issue that medical data is often not accessible across the NHS because of incompatible systems. Delighted that in response to my question, the Leader of the House confirmed that the government is absolutely committed to fixing this. 👍🏾

So Israhell is medically abusing the crew of the Madleen too? Why would they say they are doing that? They've already told us they are going to be interrogated and psychologically tortured.

Who is Madleen, the woman for whom the Gaza aid ship is named? This video explains: www.aljazeera.com/video/newsfe...

The officer on the far left literally takes careful aim at a static TV news reporter in LA and shoots her. He must have been really scared about the TV coverage. Awful times. Anything to make more drama than there is. youtu.be/vglaT7awScY

At 1.0 am the IDF surrounded the Madleen with boats, drones and sprayed them with chemicals. The 12 people aboard were instructed to throw phones into the water and are now off the Madleen and with the IDF. They are all apparently safe. An illegal act carried out by Israel in international waters.

Can many people name the chairman of Labour, Tories, Lib Dems or Greens? How often does an unelected bureaucrat get the 8:10 interview on Radio 4? Completely disproportionate media coverage of Zia Yusuf saga

🧵 Medscape (widely read by health professionals): ‘Symptom Invalidation’ in Clinically Uncertain Diagnoses Can Leave Lasting Mental Health Harms www.medscape.com/viewarticle/... (may require free registration) Thought this was good & interesting. #lupus #chronicillness #MEcfs #IBS #POTS #FMS 1/

🚨 ACTION ALERT: The UK MUST protect ‘Madleen’ 🚨 The ‘Madleen’ is a UK-flagged civilian ship sailing to Gaza with life-saving aid as part of the #FreedomFlotilla. The UK has a legal duty to protect its vessel and the civilians aboard from Israeli interference. ..2/

The communications blackout has officially begun, the #Madleen will probably have all channels blocked very soon. So keep sharing, keep caring xx #FreedomFlotilla

"Heart Rate Monitor Based Exercise Program Improves Heart Functioning in Chronic Fatigue Syndrome (ME/CFS)" www.healthrising.org/blog/2013/08... A very old article but I still found it interesting #MEcfs #CFS

Hi all. #pwME #pwLC Just wondering - Do any of you have any experience (good or bad) of using the LC App “C19-YRS” developed by ELAROS please?

Trigger Warning: I put together a thread that documents harmful portrayals of #MECFS on TV. I don’t enjoy sharing these, but it’s important to record how the condition has been misunderstood, trivialised and stigmatised. twitter-thread.com/t/1931298769...

In amongst all the excitement I fear many have missed this outstanding bit of trolling by Friedrich Merz. The Chancellor gifted Trump a gilded framed copy of his grandfather’s German birth certificate... reminding Americans that Trump is both the child and grandchild of migrants.

1/2 Thank you to everyone who attended our Genetics Centre of Excellence webinar today, with a special thanks to our speakers! 🙏 We were delighted to be able to share the exciting #MECFS & #LongCovid research updates, alongside announcing the launch of the GCoE website 👇 megenetics.org.uk

Trump has tapped Palantir, which has been used by the Israeli government in its war on Gaza, to compile information on people in the United States. “If you're not freaking out yet, you should be,” says @carolecadwalla.bsky.social.

Democracy in action. Definitely not a plutocracy.

Oh my goodness - this is incredible. I’m always cautious about using the term “breakthrough” but this could be a real game-changer - forcing blood cells to reveal that they are infected with HIV. www.theguardian.com/global-devel...

This is so true and crazy-making that it needs to be said. Musk's people are *still* deep inside our government, dismantling vital services and stealing data.

I feel like I am in a position where I have to be against the whole world because the whole world is against me…But I don't enjoy that, I didn't choose that. I was put in this position. I love this world. Read the whole piece on my blog: www.whitneydafoe.com/mecfs/?post=...

So pleased that acting with passion and persistence as a constructive Opposition, LibDems have seen through this positive change to Labour government policy. 👍🏾

If Republicans in the U.S. Senate pass the “One Big Beautiful Bill Act,” Oregonians currently enrolled in Medicaid are more likely than people in nearly any other state to lose coverage and end up uninsured, according to analyses from several national think tanks.

On Monday (2 June), my next-door (constituency) MP @stevewitherdenmp.bsky.social raised the issue of suspending arms sales to Israel in the HoC, holding a debate as a result of this petition petition.parliament.uk/petitions/70..., which you can still sign (until tomorrow):

From today, our film The Invisible Doctrine is on general release. Well, with the exception of Amazon, which has banned it. theinvisibledoctrine.com

🧵An example of the shenanigans and junk science accepted in medical journals. In September 2023, JAMA Pediatrics published a ludicrously bad paper (quasi-retracted after much effort) claiming long COVID is "strikingly rare" in kids, supposedly vs the WHO definition. jamanetwork.com/journals/jam...

The exact cost varies between individuals. And indeed it can vary within the same person. And some people tragically can’t do some of these at all. [I myself haven’t gone for a walk in over 30 years though can get out now on my mobility scooter & electric wheelchair]. #Spoonie #chronicillness

The secret society bringing an elusive orchid back from extinction in Yorkshire www.channel4.com/news/the-sec...

Yesterday was phenomenal! 160+ people came out and battled the wind to stand in a #mirrorbox to listen to my message, while looking at a place I love, & for many, that they do too. I’ve been wiped out today from the messages & hype, it was so lovely having my family come home & tell me about it all

Clip from The Golden Girls (1989): Before being diagnosed with #MECFS, Dorothy tells her doctor she’s had months of exhaustion, fevers, muscle weakness, memory problems, and more. Her tests are normal, so he dismisses it as loneliness or depression.

Starmer's Labour Party expels leftwingers for the tiniest perceived infractions. Yet it welcomes people who are basically Trumpists into the very heart of its operations. www.theguardian.com/politics/202...

Landlord's tried to raise the rent 9%, despite contract saying it'll only go up by RPI (4.5%) each year. I've pointed this out. What makes landlords think they deserve our money more than the local economy?

🚭 ‘The country that made #smoking sexy is breaking up with #cigarettes’ 🇫🇷 After glamorizing #tobacco for decades, #France plans its most sweeping smoking ban yet “The freedom to smoke stops where children’s right to breathe #CleanAir starts." abcnews-go-com.cdn.ampproject.org/c/s/abcnews....

Over 15,000 children have been killed in Gaza since October 2023 More than 9000 children have been treated for malnutrition just this year. www.theguardian.com/world/ng-int...