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unc1993.bsky.social
Multiple Myeloma since 2018: Husband: UNC-CH, Campbell, Villanova, and Auburn Alum: Sam Mills fan: Star Wars: video games from Atari 2600 to now: Lego: Marvel Comics: college football, college basketball: NFL: NBA: theme parks: Grogu: Gen X: Dog Dad:
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Prolific Poster

Orwell was right.

It's incredible that neither the president nor VP was here. The politicization of all facets of American life is coming from the White House. No other American president would have failed to pay their respects. www.washingtonpost.com/nation/2025/...

The #MyelomaMinute is out! Read and subscribe. This week we feature the latest and most relevant news in myeloma research, clinical trials, treatments, drug authorizations... https://myeloma.pulse.ly/oh5pytitue

The FDA’s removal of REMS for CAR T therapy is a big step forward—improving access for #myeloma patients, especially in rural and underserved areas. It lowers barriers to care and expands access to next-generation CAR T therapies and treatment combinations. #HealthEquity

A 12-year-old boy was left alone on a sidewalk after ICE took the adult with him, without any explanation or concern for his safety. Thanks to the local neighbors who stepped in. ICE’s actions are unacceptable and must be investigated.

There is no bottom.

This is NOT just cutting access to abortion. It’s limiting access to CANCER screening, birth control, screening for sexually transmitted infections. In a dissenting opinion, Justice Ketanji Brown Jackson wrote, “Today’s decision is likely to result in tangible harm to real people.”

this is a segregationist administration and it is wild to me that there is any resistance to this straightforward observation

As US government authorities can no longer be relied upon to provide reliable medical information, the American Medical Association and 78 other medical societies have written an open letter to the American public underscoring the importance of vaccines. www.ama-assn.org/delivering-c...

Millions of Americans with hematologic conditions rely on Medicaid—for treatment & more. This week, the Senate is considering cuts that would take coverage and benefits away. ASH members: your voice is critical. Tell Senators to protect access to care. bit.ly/4kT7Zfw

The American Academy of Pediatricians bluntly telling us the current CDC can't be trusted, and of course they are absolutely correct publications.aap.org/aapnews/news...

This is a travesty & a nightmare. The US was a founder of @gavi.org. It lowers global vaccine costs, has vaccinated 1B children, & averted 19M deaths. This pull out will cost 100s of thousands of children's lives a year - and RFK Jr will be personally responsible. www.politico.com/news/2025/06...

RFK Jr. is threatening the routine childhood immunization schedule. This is bad. We all need to be paying attention. Get loud. Stay loud.

Oh

While we’re hate-watching the ACIP hearings, let’s not forget: this “gotcha!”-style vaccine skepticism circus could’ve been avoided 😡 Senator Cassidy — a physician — could have voted against RFK Jr.’s confirmation. He could have voted for science. For vaccines. For public health. But he didn’t 😢

Oh for f*’s sake… RFK Jr.’s vaccine panel to review the childhood immunization schedule.

The Ku Klux Klan Acts (passed in 1870 & 1871 to protect 14th amend rights) were particularly focused on masked gunmen who violated the civil rights of Black people. We should remember this history when masked law enforcement ofcrs are deployed in our communities. open.substack.com/pub/sherrily...

Vaccination schedules on the CDC website have already started changing under RFK Jr. So we published a guide to the evidence-based vaccine recommendations in place *before* all 17 members of the advisory panel were abruptly dismissed by the new admin. www.scientificamerican.com/article/see-... 🧪

I am literally begging people writing about RFK Jr. to stop giving any credence to the idea that "MAHA" is actually about making Americans healthy - it absolutely is not. It is about shaming people with chronic health conditions and substituting snake oil for science.

Area physician expresses surprise that the anti-vax nutjob he supported to run HHS is anti-vax

What’s New in Myeloma Research? Join our speakers virtually on Tuesday, July 1 to hear about the top myeloma research presented at #ASCO25, #EHA25, and IMWG—from a patient perspective. Register NOW before spots are gone: https://mmsm.link/4kTQD1P #IMFASCO #IMFEHA #IMFIMWG #mmsm

(1/3) 😡 Lyn Redwood—a former leader of RFK Jr.’s anti-vaccine propaganda machine, Children’s Health Defense—is set to present at the CDC’s vaccine advisory committee this week. She has a blatant conflict of interest and a history of spreading debunked lies about vaccines.

Break it, unbreak it, claim victory. Every time.

This is good and important www.washingtonpost.com/health/2025/...

Some of our Stage 3/4/mets cancer support group at #nokings Chemo doesn't stop these bad asses from having our voices heard. #cancersky #myelomasky

I rarely post personal things. But I need to talk about my 4-year-old niece, Hope. She has a rare disease. A drug called elamipretide has helped her survive. But the FDA recently denied its approval. Now, her health hangs in the balance. Please share her story & urge the FDA to reconsider. 🧵

“He has always worked hard to put food on the table for us and my mom,” said Alejandro. “He was always careful and always did his taxes on time. He never caused any problems and he is known as a kind and helping person by everyone in our community.” santanero.org/2025/06/21/l...

i almost can’t read this it makes me so angry. delusional grifters with purity fetishes and eugenic worldviews have brought pain, suffering and death to children www.nytimes.com/2025/06/22/u...

i think these professional antivaxxers are literally demonic www.bbc.com/news/article...

Devastating account of the damage that conspiracy theories can cause. www.bbc.com/news/article...

Trump Admin: Cut funding for cancer research. Fox: Criticize Gavin Newsom for attending a fundraiser for cancer research.

Unearthed Statement Shows Trump Praised Juneteenth in 2024, Now He’s Threatening It When he needed votes, Trump praised the holiday marking the end of slavery meidasnews.com/news/unearth...

Break it, un-break it, take credit for it. Every time.

"Only 8% of the 805 miles the state identified for construction is complete, which has cost taxpayers more than $3 billion to date..." www.texastribune.org/2025/06/17/t...

RFK Jr. is going to kill thousands of people. That’s not hyperbole.

🗣️ Now more than ever, hematology needs your voice. Tomorrow, join ASH’s Advocacy Training Webinar to learn what steps you can take to protect the future of hematology. Your voice has never been more important. Register now: ow.ly/7BHg50W9NHK #Fight4Hematology #HemeSky

EXCLU: Sen. Bernie Sanders wants an investigation of Health Secretary RFK Jr.’s recent decision to fire all 17 members of the nation’s top vaccine advisory committee. via @margaretmanto.bsky.social www.notus.org/health-scien...

He’s TACOing on his TACO.

You want to talk about government efficiency? Every $1 spent on childhood immunizations in the US returns a savings of $11, thanks to preventing illnesses, and saving millions of lives.

A win! A federal judge has ordered the government to restore hundreds of NIH grants slashed by the Trump administration, ruling the cuts were discriminatory against minorities and LGBTQ individuals. The judge said he’d have to be “blind” not to see the discrimination and declared the cuts illegal.

BREAKING: A federal judge in Massachusetts (the Reagan-appointed William Young) has declared the Trump administration's cuts to NIH grants — ostensibly over Trump's EOs on gender ideology and DEI — are "illegal" and "void." He's ordering many grants restored.