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weaslie.bsky.social
Creative crafting Wife and Mama - mum to two beautiful girls - Siamese cat mum (likes attacking aircraft on tv) #pwME
6 posts 31 followers 92 following
Getting Started
Posts 9 Comments 5

On the dangers of Vitamine B6 💊 Feeling wierd sensations in hands/ feet? Tingling, burning, nerve pain ? ➡️Plz check your vitamines! Vit B6 is often added in high doses. B6 can lead to irreversible damage. Especially important to The #chronicallyIll communities and #PAIS #LongCovid #ME etc

submitted 122 days ago • 0 comments

1. Please read this thread. It could make a difference to your health. Before I went away, I had a strange, persistent tingling in the soles of my feet. When I looked it up, there were some benign explanations, and some alarming ones. I resolved to see the doctor when I returned. 🧵

submitted 122 days ago • 137 comments

If we head into the Holidays with no plan and expect to "feel our way" through it safely, we will likely be in for a deathly crash that could be devastating…So we need to make a plan ahead of time…and stick to it… New post on my blog: www.whitneydafoe.com/mecfs/?post=... #MECFS #LongCovid

submitted 145 days ago • 5 comments

New Trailer for the #MECFS #GreatestMedicalScandal Explainer Video. Includes clips from the full video that highlights the Stigma, Abuse, Bad Science and Harm.

submitted 153 days ago • 2 comments

Sat in on a DWP meeting. It's like the upside down. I know our lived experience. #pwME

submitted 153 days ago • 2 comments

Paul Waugh MP is #ThereForME! @paulwaughmp.bsky.social spent years covering Westminster and is Rochdale’s new MP @teamlabouruk.bsky.social “This Christmas, I’m hoping for an NHS that is really there for people with ME and Long Covid. Let’s deliver on NICE guidelines and on much more research too.”

submitted 154 days ago • 3 comments

Sadly a pipe dream for many if not most #ME sufferers. Too many will be alone and uncared for as friends and relatives drop away over the years. We are too difficult to love.

submitted 155 days ago • 3 comments

I’ve just signed this important petition for #pwME #pwLC please sign :) thank you x organise.network/actions/peti...

submitted 155 days ago • 0 comments

#DecodeME Many more UK people with ME/ #CFS are needed for this large genetic study. All severity levels can take part as participation is from home. Questionnaires can be filled in on paper or online & must be submitted by 15th November www.decodeme.org.uk #MEcfs #CFS #MyalgicE #PwME 1/

submitted 590 days ago • 1 comment