Our rapid response to the recent BMJ systematic review, according to which CBT and GET are probably effective for Long COVID, is now online: www.bmj.com/content/387/... - ThreadSky

ellecarnitine.bsky.social • 91 days ago

Our rapid response to the recent BMJ systematic review, according to which CBT and GET are probably effective for Long COVID, is now online:

https://www.bmj.com/content/387/bmj-2024-081318/rr-2

Comments

julieduzyoga.bsky.social•91 days ago

📌

eleanorsews.bsky.social•91 days ago

Today’s cartoon from #FanningTheFlames

me-cfs.bsky.social•91 days ago

Excellent letter thank you.

ellecarnitine.bsky.social•91 days ago

Thank you Yann!!

ben-no.bsky.social•91 days ago

Thank you so much!

lauravictorine.bsky.social•91 days ago

Completely agree. Also credits to @guusontheinternet.bsky.social who wrote this.

exceedhergrasp1.bsky.social•91 days ago

Nice work.

ellecarnitine.bsky.social•91 days ago

Thank you so much!

bananabluish.bsky.social•90 days ago

Well done!

niamh-smallchange.bsky.social•91 days ago

Congratulations on such a prompt, comprehensive and evidenced rebuttal. It occurs to me that #GET is like a virus that has never been properly eliminated.

ellecarnitine.bsky.social•91 days ago

Thank you!! I’m not sure about the comparison to a virus for GET though—I fear it hides the political factors that perpetuate it!

niamh-smallchange.bsky.social•91 days ago

Thank you, Elle. First time I tried using a metaphor on Bluesky. I may have to reconsider 😀

ellecarnitine.bsky.social•91 days ago

😂😂

murtoz.bsky.social•91 days ago

Thank you! I personally felt it warranted a rabid response instead of a rapid one. I admire your restraint!

lauravictorine.bsky.social•91 days ago

🤣

scoutscout.bsky.social•91 days ago

Super clear and punchy. I’m in awe 🙏🙏

ellecarnitine.bsky.social•91 days ago

Thank you so much!!

spoopyspoonie.bsky.social•90 days ago

Awesome work!

jennysanders.bsky.social•91 days ago

Thank you. Unbelievable that the @BMJ would publish a review which perpetuates the credibility of very poor / discredited research and also reaches conclusions that are not supported by the data. Rehabilitation isn't working for patients, it's gas lighting - we need effective treatments not CBT ffs.

ellecarnitine.bsky.social•91 days ago

Absolutely agree!!

ellecarnitine.bsky.social•91 days ago

We argue that, by the authors’ own lights, there is no good quality evidence for the effectiveness of CBT and GET. This is not surprising because at least half of people with LC have PEM! What we really need is a swerve away from these disproven approaches to serious trials of therapeutics.

ellecarnitine.bsky.social•91 days ago

This was written with @fvrhijn.bsky.social, @lauravictorine.bsky.social, Xandra Westerhuis, and @bmhughes.bsky.social

valebodi.bsky.social•91 days ago

Thank you for writing this rapid response letter. It’s simply exhausting for us pwME a/o LC to not only be awfully ill and disabled, but also exposed to unscientific and dishonest takes and character assassinations. Both ongoing and perpetrated by the BPS & GET peddlers.

ellecarnitine.bsky.social•91 days ago

Here is the conclusion of our rapid response: we need serious, well-designed and ambitious clinical trials that target the mechanisms which have already been shown to dysfunction in people with Long COVID

eleanorsews.bsky.social•91 days ago

Absolutely! Graded exercise is a disaster. Here’s my cartoon about it …

argphd.bsky.social•91 days ago

Well done — thank you so much for your letter!

ellecarnitine.bsky.social•91 days ago

Thank you very much!!

kindnessofravens.bsky.social•87 days ago

It's shocking we are trying to repeat the horrible, misguided PACE study damage again, especially given the mounting evidence that damage caused by over-exercising can be permanent. Researchers need strong evidence that these recommendations won't increase the risk of permanent disability.

sunsopeningband.bsky.social•91 days ago

Excellent work!

ellecarnitine.bsky.social•91 days ago

Thank you very much! :)

mack-bhairava.bsky.social•90 days ago

great job elle.

privilegienschreck.bsky.social•91 days ago

Thank you so much

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