was incomplete and maybe your perception of the patient experience needs to be updated. The IACC community is embattled and struggling. They need clinicians who are allies and understand their struggle. If you can’t be that, sit down and 🤐
Hope this helps to clarify. 🙏🏻 /end
Hope this helps to clarify. 🙏🏻 /end
Comments
For hearing us.
For all you do.
I got excited this last couple of months because angina meds are stopping the chest pain I got for nearly five years every time I stood and walked a little way.
But the lack of pain & treacle wading doesn’t stop the PEM & POTS.
Hope flares then recedes.
Thank you.
🙏🏻
I don’t even know if POTS is the problem. I get bouts of arrhythmia, tachycardia and the angina that goes with them (and the subsequent needing to pee every 10 minutes!) at seemingly random moments.
Regardless, I want you as my clinician!!!!!!
Applies, as well, to PEM with POTS!
Quote source: “Infection-associated chronic conditions: Why Long Covid is our best chance to untangle Osler’s web” – Peluso, et. al.
Someday it seems no one gets it.
It’s nice to be reminded that a few actually do.
I hope that soon - and once we understand the complexities better - arrive at a universal medical umbrella term.