Profile avatar
aeforbes.bsky.social
noticing–wondering–learning–creating–critiquing–revising
43 posts 51 followers 106 following
Regular Contributor
Active Commenter
Posts 17 Comments 33

mecfs-research.org/wp-content/u... @amsterdamumc.bsky.social What wonderful work by Anouk Slaghekke and her team!

submitted 22 days ago • 1 comment

"Our patients need protection."

submitted 25 days ago • 0 comments

This is an amazing resource. I am so grateful for the effort and thoroughness that is evident in the creation and distribution of this comprehensive guidance. ❤️

submitted 30 days ago • 1 comment

“Postural reductions in stroke volume [heart] and cerebrovascular pulsatility, a marker of brain perfusion, were significant determinants of postural ventilation and sympathetic activity.” www.jacc.org/doi/10.1016/... #POTS #LongCovid #ME/CFS

submitted 36 days ago • 0 comments

Meliora is the motto of my alma mater. @urochester.bsky.social‬ #EverBetter www.rochester.edu/emerging-lea...

submitted 52 days ago • 0 comments

“When haters go after your looks and differences, it means they have nowhere left to go. And then you know you’re winning! I have Aspergers and that means I’m sometimes a bit different from the norm. And — given the right circumstances — being different is a superpower.” — Greta Thunberg #autism

submitted 53 days ago • 9 comments

Activism works. Case in point: #LongCovid @nature.com www.nature.com/articles/d41...

submitted 63 days ago • 0 comments

From an operational security perspective, this is the highest level of fuckup imaginable. These people cannot keep America safe.

submitted 77 days ago • 1962 comments

I am grateful to be participating in your study!

submitted 85 days ago • 0 comments

I was explaining ME/CFS to a provider who had never seen a patient with it. He asked about who diagnosed me & the diagnostic criteria. I started listing the IOM criteria & knew I was forgetting one... Realized on the way home the criteria I couldn't remember was cognitive dysfunction 🙃

submitted 94 days ago • 4 comments

“We can do better—and we have to do better, for each other.”

submitted 94 days ago • 0 comments

@baldypidge.bsky.social

submitted 100 days ago • 1 comment

The Federal Advisory Committee on Long COVID has been ordered terminated on 2/19/25 within 14 days. “the Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on Long COVID.” www.whitehouse.gov/presidential... #LongCOVI

submitted 109 days ago • 6 comments

"That our Long COVID patients also exhibited significantly lower gas exchange thresholds and respiratory compensation points, which are effort-independent, indicates a reduction in aerobic function that is not effort-independent."

submitted 117 days ago • 0 comments

“We are witnessing one of the worst and most costly foreign policy blunders in U.S. history.” www.nytimes.com/2025/02/06/o...

submitted 123 days ago • 4 comments

Hi @ravenscimaven.bsky.social Can you comment on this thread?

submitted 128 days ago • 0 comments

Hi @putrinolab.bsky.social A while ago I read about differentiating between Long Covid terminology: fatigue, exercise intolerance, & post exertional malaise. I was confused. But, here is what I think I understand now. Please let me know if my understanding is correct.

submitted 133 days ago • 2 comments