here we go: you have no right to attempt to erase an illness simply because you find its existence to be politically inconvenient. I am eternally grateful that as my incredible team struggled to find allies in this landscape, there was also @hmkyale and @VirusesImmunity who 10/ - ThreadSky

putrinolab.bsky.social • 120 days ago

here we go: you have no right to attempt to erase an illness simply because you find its existence to be politically inconvenient. I am eternally grateful that as my incredible team struggled to find allies in this landscape, there was also @hmkyale and @VirusesImmunity who 10/

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leoniegsmith.bsky.social•120 days ago

Thankyou David. We have many PVS in our Long Covid Group in Australia. They do find it very difficult. This hopefully will help.

swaledalemutton.bsky.social•118 days ago

PVS is long covid. It is caused by infection.

wildswim.bsky.social•118 days ago

..and by mRNA vaccines.

swaledalemutton.bsky.social•118 days ago

And yet all of the scientific evidence points towards it being caused by infection and not the vaccines.
So there is that.

wildswim.bsky.social•118 days ago

That's not the case.
Maybe you should stick to mutton.

swaledalemutton.bsky.social•118 days ago

Can you explain then why the cellular immunoprofiles are the same?
Why the biomarkers are the same?
Why the symptoms are the same?

Can you do that?

Because the only explanation is that PVS is caused by undiagnosed infection and LC

francienh9.bsky.social•117 days ago

I came across this paper today. Because millions and millions of people were vaccinated, the rare event of ASIA after vaccination became visible. We never vaccinated a large portion of the world's population simultaneously. https://academic.oup.com/cei/article/213/1/87/7071043?login=false

swaledalemutton.bsky.social•117 days ago

The mRNA vaccines don't have adjuvants as such though

lymescience.org•117 days ago

ASIA is a meme spread by anti-vaxxers. It's not a thing. https://en.wikipedia.org/wiki/Autoimmune/inflammatory_syndrome_induced_by_adjuvants

swaledalemutton.bsky.social•117 days ago

On a skim read the paper did not look... rigorous.

castdeath97.bsky.social•116 days ago

Also, is it just me or the English in this paper is very confusing?

I cannot understand what is even being said here.

francienh9.bsky.social•116 days ago

"ASIA only occurs in a small fraction of patients exposed to these adjuvants" It is extremely rare. But when you vaccinate the entire world's population at the same time, it will show up in some people. Absolutely no reason not to take the vaccine, because the risk is so small.

swaledalemutton.bsky.social•116 days ago

There is not really any evidence or mechanistic explanation for it though

grumblekitty.bsky.social•117 days ago

You have no right to publish bad science on a non-existent “syndrome” because it’s politically expedient to you keeping federal research and funding from eugenicists.

You think no one knows the sad tale of “the brave maverick doctor”.

Don’t condescend to the public. We see bad controls & gaming.

putrinolab.bsky.social•120 days ago

were conducting the LISTEN trial. Listening to the community about their experiences with Long COVID, vaccine injury and other complex chronic illnesses. Thanks to their dedicated work and amazing team, we produced two papers based on LISTEN data: one about Long COVID and one 11/

putrinolab.bsky.social•120 days ago

about PVS. Both had comparable sample sizes, used identical methodologies and were released as preprints at the same time (late 2023). By early 2024, the Long COVID paper was published in the American Journal of Medicine, while the PVS paper remains

https://www.sciencedirect.com/science/article/pii/S0002934324002389

12/

danaleaf.bsky.social•120 days ago

📌

putrinolab.bsky.social•120 days ago

unpublished in pre-print, generating, amongst other things, many of the same critiques we heard about Long COVID in '20: "you can't just take these people at their word that they have PVS", etc, etc. So now onto our most recent paper: we have a responsibility to people living 13/

putrinolab.bsky.social•120 days ago

with PVS to investigate this condition. Yes, the current work has some limitations: like Long COVID, our working definition of PVS relies heavily on self-report, but this is because we're characterizing a new syndrome - until we can characterize it from a biomarker, we must 14/

putrinolab.bsky.social•120 days ago

use a clinical diagnosis (sound familiar?). Yes, the sample size is small - well if you thought it was hard talking about PVS, you should try publishing about it. And if you think publishing about it is bad, just try getting funding to study it. The deep immune profiling work is 15/

christosargyrop.bsky.social•120 days ago

Thank you for the thread. It seems that the spike protein is detected in amounts that can yield resolvable signatures by mass spec and proteomic techniques. This could answer the question of an undiagnosed infection as the cause of symptoms in some PVS patients directly. Is this being pursued?

putrinolab.bsky.social•120 days ago

extremely expensive and all the people working on this are doing it strictly as "night and weekend" work on a shoestring budget in service of a community that is being minimized and gaslit (sound familiar?). This means that releasing preliminary data with a small sample size 16/

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