Today is World Lewy Body Day highlighting “the most common form of dementia you’ve never heard of”, in many cases linked to Parkinson’s. Please sign the Lewy List www.change.org/p/sign-the-l... - ThreadSky

rorycj.bsky.social • 26 days ago

Today is World Lewy Body Day highlighting “the most common form of dementia you’ve never heard of”, in many cases linked to Parkinson’s. Please sign the Lewy List https://www.change.org/p/sign-the-lewy-list

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maureenfelix.bsky.social•26 days ago

👍

catpaws313.bsky.social•26 days ago

I had not heard of it until recently when I watched a Canadian show. One of the characters was diagnosed with it.

parallelmotion.bsky.social•26 days ago

Have you read this Rory?...

https://www.bbc.co.uk/news/articles/ckgn49r069wo

sixtiessurvivor.bsky.social•26 days ago

Kevin, many congratulations, I wish you many, many happy years to enjoy your life. I hope you are the first of many and eventually everyone with this awful disease will get this technology. If we can't beat it, eleviating the symptoms will be wonderful. Brave pioneer, well done!

skinnypins.bsky.social•26 days ago

My father in law passed away from LBD, they misdiagnosed it as Parkinson’s. Horrible disease 😞

areyoucertain.bsky.social•25 days ago

Signed. Thank you.

emmsygirl25.bsky.social•26 days ago

My mother had this and my sister has Parkinson's. I didn't realise they were related.

cbgbtx.bsky.social•26 days ago

My mother on law had Parkinson's and developed Lewey Body at the end. Heartbreaking to see a once proud woman descend into that chaos. As her care giver, I was on the receiving end of how much it changed her. I called it her evil twin. Care givers, take care of yourself too.

tedibearlifts.bsky.social•26 days ago

My father died from it. Horrible disease. It was sad to watch him limited to 20 words by a brain that could not work.

songpiper.bsky.social•25 days ago

I had heard of it as a friend's partner developed it. When I saw a production of King Lear some years ago there was a discussion in the programme wondering if the character suffered from it.

oakowl.bsky.social•26 days ago

My mother had Lewy Body disease. I wouldn't wish it on anyone.

leydene.bsky.social•26 days ago

Done

deniseann63.bsky.social•25 days ago

Just signed. My Dad had Parkinsons then Lewy Body. I'd never heard of it but it was brutal.

carlsberg95.bsky.social•26 days ago

Signed Rory. My friend's dad had Creutzfeldt-Jakob Disease. Extremely rapid progression. LB is slower, but still a horrible disease nonetheless. I really hope they find a cure, or at least something that slows it down further.🤞🏻🤞🏻.XX.

pauldjswann.bsky.social•26 days ago

Signed and shared. My son is part of the research team for Lewy Body at Cambridge University.

kentindell.bsky.social•26 days ago

Unfortunately, some of us have heard of it 😞

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