Chronic Illness can be so frustrating because you can constantly rest, watch your diet, wear a mask, take your meds, etc just so you can maintain the same level of chronic illness.
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Yeah, like making me dependent of it. I had accidentally got to go three days without one of the medications, and two of these days were hell like I had never experienced before.
Going to be pretty interesting once I want to discontinue taking this med or having to change for another one.
I know my 24 +/- prescriptions keep me alive, but so too are they slowly destroying my health—liver toxicity, kidney damage, cognitive issues, bone brittleness and so on. Yeah, I’m grateful. I am. And I’m scared.
My condition is so frustrating because the symptoms are orthostatic, so the only way to relieve the symptoms is by lying down. Don’t get a CSF leak. 🤕🤢🛌
no it's to avoid contracting airborne illnesses like influenza or covid, since most of us have a shitty immuno system and a common cold is really bad, not to mention anything more aggressive
Today I drove. Then I went home, had a bath and was in bed by 8am. Praying for no migraine tomorrow 🙏.
Due to go out on Saturday- will be resting all week in the hope I can manage it.
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And, if you accidentally run out of the meds watch how your systems go bonkers more radical compared to the time before you had taken them.
Going to be pretty interesting once I want to discontinue taking this med or having to change for another one.
😭🫂
yippieh ay yay
but on the upside- i have good meds and potentially new glove/braces soon so im hoping it will do something tbh
Bad working conditions, abysmal pay.
No days off, no vacations.
Today - drs
It's called sympathy through gallows humor; nothing to get hung up about.
It's easy for me to fly off the handle when I'm in the middle of a radiating arthro-sciatic attack.
I mean...I don't fly FAR off the handle...
Due to go out on Saturday- will be resting all week in the hope I can manage it.