Beyond excited to share my first published PhD paper w/ @DrLornaHam and Dr Jonathan Vincent in ICD journal! 🔗 Read free Open Access t.co/anvXZ6jw05 🔗 This thread will cover participatory approaches used to explore the experiences of autistic neurodivergent UK pupils 🧵 1/10 - ThreadSky

kathrynlewis.bsky.social • 519 days ago

Beyond excited to share my first published PhD paper w/ @DrLornaHam and Dr Jonathan Vincent in ICD journal!

🔗 Read free Open Access https://t.co/anvXZ6jw05 🔗

This thread will cover participatory approaches used to explore the experiences of autistic neurodivergent UK pupils 🧵 1/10

Comments

buds-disability.bsky.social•519 days ago

Thanks for sharing. We are exploring the same issue from our perspective as a user-led organisation which includes autistic young people. Our aim is to find better ways to capture the experiences of disabled children and young people passing through educational transition points. This will be useful

kathrynlewis.bsky.social•519 days ago

Sounds like you're doing really valuable work! We found that offering a choice of different methods to suit preferences and skills was an effective way to engage with the young people in our research. 😊

buds-disability.bsky.social•519 days ago

Yes, very much so. People need to have their communication preferences respected.

htoulmin.bsky.social•519 days ago

This looks really interesting - I might borrow the expertly-chosen language used (properly attributed of course!): “foregrounding the first person perspectives of neurodivergent children”

kathrynlewis.bsky.social•518 days ago

Thank you so much! It's so important to recognise the value and importance of first person perspectives and lived experience

kathrynlewis.bsky.social•519 days ago

Paper published with @drlornaham.bsky.social. Sorry not used to this new app yet!!

kathrynlewis.bsky.social•519 days ago

We used a range of creative research methods alongside semi-structured interviews with autistic neurodivergent young people. Thanks to the Sir Halley Stewart Trust for funding this research, and to the young people for taking part and sharing so many valuable insights! 2/10

kathrynlewis.bsky.social•519 days ago

We argue that creative research methods can be really effective in helping to shift power imbalances within research and to (re)position autistic children and young people as ‘credible knowers’ with great insight and expertise. 3/10

kathrynlewis.bsky.social•519 days ago

Our first stage was pre-study, where we worked with young people and their families to understand communication preferences, interests, and likes/dislikes. We then trialled some creative research methods in low-stake sessions to build rapport and discover preferred approaches. 🖌️📷 4/10

kathrynlewis.bsky.social•519 days ago

We then used different creative research methods including Draw-Write-Tell. This allowed pupils to express themselves visually while also reducing direct focus on-from interviewer. Through telling, they interpreted the images to increase authenticity. 5/10

kathrynlewis.bsky.social•519 days ago

We also used Walk and Talk which allows neurodivergent pupils a more embodied way of doing research. 🚶‍♀️ This was used in collab with PhotoVoice so they could choose to show us the things that are meaningful to them, putting the power in their hands! 📸 6/10

kathrynlewis.bsky.social•519 days ago

Our most widely used method was a Card Sort (a bit like @TalkingMats). We provided images + brief descriptions of school subjects / experiences and pupils ranked these then talked about why they made their choices. This created structure and clear boundaries to discussion. 7/10

ljubapi.bsky.social•519 days ago

@jrhochmann.bsky.social

Comments

Posting Rules

Reply