I still remember the bolt of pure hate I felt when an incredibly kind naturopath said “people who get these illnesses are never the same after.” She was SO kind. The pebble that kicked off an avalanche for me.
I think I came to the conclusion on my own, but it took time.
When I finally got diagnosed, my doctor said, "you're not going to be well, but some things in my toolbox will get you feeling better than you do, now."
He was right and I was so relieved. I didn't want anyone to lie to me. 🙃
I’m imagining it took years to get diagnosed. When she told me this I was only four months in. You saved me a lot, a *lot* of time in getting diagnosed but those first months in 2020, oof.
After 'hard onset' probably about a year. I think the "maybe I'll wake up and this will all be gone" was the first 4 months, "maybe we'll discover it, yet" was the 9 month mark.
Now I'm at, "there probably are easily discoverable drugs for this, but good luck finding them" lmao
This is a thing I’d love to have mapped a little better, the process that gets your mind on board with the reality. I’ve seen a few good things but it does feel like “maybe there are drugs but good luck lol” while still curious/lesrning feels like the good spot to aim for.
I feel psychologically healthy in my approach, yeah. There are things I do that really help, and I have hope for more in the future, but I'm not waiting. I'm doing my thing as best I can.
I'm also beginning to realize how unusual my approach is and how my training really prepared me for addressing chronic illness. I suppose I could give a talk about how applying the framework for acute disease to chronic disease is deeply misleading us
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When I finally got diagnosed, my doctor said, "you're not going to be well, but some things in my toolbox will get you feeling better than you do, now."
He was right and I was so relieved. I didn't want anyone to lie to me. 🙃
Now I'm at, "there probably are easily discoverable drugs for this, but good luck finding them" lmao