“It can’t be THAT bad!”
When a non disabled person gets sick, it’s generally easy for them to rest & recover. They know it’ll only take a few days before the worst is over.
When you’re chronically ill, it can be impossible to rest. An average day for us can be as bad as an ableds worse day.
When a non disabled person gets sick, it’s generally easy for them to rest & recover. They know it’ll only take a few days before the worst is over.
When you’re chronically ill, it can be impossible to rest. An average day for us can be as bad as an ableds worse day.
Comments
But the secret is, we don't manage
sat quietly watching TV can be anything from restful to as intense as walking up a hill carrying shopping
a shower can be as intense as a cardio workout
During a crash my levels can be stuck high while I'm laid down in bed, eyes closed
it's so variable too- sometimes I'm absolutely fine with it
My 2nd longest chronic illness has been described by my team as a combination of fibromyalgia/CFS. Plus RA and osteoarthritis and Type 1 Diabetes (my 1st disease @4) for fun! Gentle hugs.
hope your tomorrow is a good one
My 9 is shingles. My 10 is severe septic appendicitis.
I grok.
Even with her tolerance, her endo is so severe, she can't walk without a mobility aid (if at all) during a flare. Morphine barely touches it, & she doesn't have good access to strong meds.