'On the nights she struggled to breathe, she was forced to stay awake and hold the mask to her face in the dark. The NHS’s solution?...one assessor suggested her 14-yr-old daughter fill in as a child carer...being on call for the ventilator throughout the night.' https://www.theguardian.com/commentisfree/2025/jan/28/terminal-illness-care-england-motor-neurone-disease