Having this horrifying #symptom as if all the blood of my body was being drained until my veins compressed and collapsed. Anyone felt something similar? What it’s this?? #MECFS #MillionsMissing #MyalgicE #pwME #NEISvoid
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Low blood volume is a known finding in #MyalgicEncephalomyelitis. I hydrate as much as I can, I work to keep my electrolytes up and I get weekly IV fluids. Managing ME is a full time job...
For me the issue is to get the IV fluids from my medical provider. Here in Spain they have absolutely no idea of what MECFS is and I am received with skepticism every time I go to the ER…plus I have a 0 cooperative family doctor. But I’ll try to go tomorrow
Thank you! I know some of these documents but I see that there are much more available in Spanish. Now I have to find the courage to hand this to my unfriendly doctor. Thank you so much ♥️
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I also do quite a few antioxidants. I think that helps the health of my veins.
It seems that every issue we have requires a multiprong approach. You aren't alone. This has info
https://open.substack.com/pub/colleensteckelmeiccinfo/p/iv-fluids-for-treating-myalgic-encephalomyelitis?utm_source=share&utm_medium=android&r=deavh
https://drive.google.com/file/d/1OLvCfM3HAZ4Yn_UELRWLXV8c3BTmwgnR/view?usp=drivesdk
Also this group - https://www.ongpem.org/