Absolutely. I really feel like we need more research into the interplay between IIH and POTS
Because like, maybe this is just vibes based on who is active in patient communities related to IIH
But I feel like POTSies are getting IIH more than the average person
Because like, maybe this is just vibes based on who is active in patient communities related to IIH
But I feel like POTSies are getting IIH more than the average person
Comments
And we rly need more HCWs who are conscious of the existence between POTS/IIH/EDS. When on IIH tx, the response to the conflict between tx and it interacting w POTS was throwing their hands up and
Patient knowledge is so underrated and unappreciated. Thank you for
(*And that's the "if you're lucky and don't get gaslit" version arghhh)
Anecdotally, when my IIH started I also got a lot of new MCAS triggers
And many of those are foods that can also affect vasodilation/vasoconstriction and thus cerebral blood flow
(e.g. garlic, cinnamon/cloves, tomatoes, chocolate)
And I tolerate them now my IIH is in remission