Yeah it's really difficult to work with it. I've been freelancing since 2017 and whenever I do full time work I get migraines and my fibro symptoms become really difficult to manage. Are you able to apply for disability grants? My friend in Norway gets a grant for her fibro - ThreadSky

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meganellis.bsky.social • 13 days ago

Yeah it's really difficult to work with it. I've been freelancing since 2017 and whenever I do full time work I get migraines and my fibro symptoms become really difficult to manage. Are you able to apply for disability grants? My friend in Norway gets a grant for her fibro

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sm00ts81.bsky.social•13 days ago

Yes I'm receiving around £560 p/m. Can't get anymore because my wife has a well paid job. Not entitled to anything else in the UK due to that.

meganellis.bsky.social•12 days ago

I'm glad you have a support system. Disability grants here are about R2500 (£107) per month, which wouldn't even cover my medicine costs. My Aimovig is only available through a specialist pharmacy and medical aid doesn't pay, and that alone is R6000 (£258)

sm00ts81.bsky.social•12 days ago

That really sucks. On our NHS you can get any approved medicine for £10 a month if you pay for the monthly subscription. Tbf the actual service here for our conditions is very poor. Doctors don't have a clue or interest and any referral takes years to process.

meganellis.bsky.social•12 days ago

Yeah I've heard it's difficult to get referrals, especially for mental health conditions and neurodevelopmental conditions. My ADHD and autism screening processes were so quick and I have a specific psychiatrist I see. But then the downside is how expensive medical aid and medicine is

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