This paper by @nisreenalwan.bsky.social and colleagues outlines the work required to live with long-term conditions. There are strong parallels with our ‘pathway to inequality’ which shows the impact of trying to manage when chronic illness is disbelieved. Read more here: tinyurl.com/3rd3hjxy - ThreadSky

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drbevans.bsky.social • 72 days ago

This paper by @nisreenalwan.bsky.social and colleagues outlines the work required to live with long-term conditions. There are strong parallels with our ‘pathway to inequality’ which shows the impact of trying to manage when chronic illness is disbelieved. Read more here: https://tinyurl.com/3rd3hjxy

Comments

neilchadborn.bsky.social•72 days ago

I have to read both in more depth. I’m interested in the cultural perspective, family care and social interactions in community- what is ‘acceptable’ illness/disability, or what is ‘covered over’ with assumptions about eg ‘old age’

teamnotleafy.bsky.social•58 days ago

indeed. A valuable demonstration of contextual complexity, while at the same time showing contemporary resonance with elements identified in Strauss et al's 1984 Chronic illness and the quality of life.

punishedfelix.com•70 days ago

this is so real, this is why only a small part of my condition is even diagnosed. if its not something in the 10% of most common conditions its like climbing a mountain just to prove anything all while your condition deteriorates

esceedee.bsky.social•72 days ago

📌

drmariatomlinson.bsky.social•72 days ago

Your report is incredible but the way and fills such a huge gap. I've read it all and referenced it in a grant application as well

drbevans.bsky.social•72 days ago

Thank you!

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