achronicvoice.com - Profile | ThreadSky | a Reddit-style client for Bluesky

“Despite its unclear meaning, the claim “That’s just your #opinion” has a clear use: It is a #conversation -stopper. It’s a way of diminishing a claim, reducing it to a mere matter of taste which lies beyond dispute”: https://buff.ly/4iuhQqL #philosophy #facts #comments

submitted 53 minutes ago • 0 comments

“Not jz diagnosing but preventing #autoimmune conditions (..before there has been any tissue destruction such as in #multipleSclerosis or #lupus) in people at high-risk looms as potential ways to apply insights from B & #Tcell sequencing": https://buff.ly/3DgMu7I via @erictopol.bsky.social

submitted 2 hours ago • 0 comments

“Are #NaturalRemedies effective, yes, they can be in some cases & I believe they are well worth sharing & supplementing..But they do not replace everyone’s #prescriptions & u never know who has already tried them”: https://buff.ly/4gGjmWg via @themightysite.bsky.social #PillShaming #ChronicPain

submitted 4 hours ago • 1 comment

“"It must be nice to be able to stay home and relax all day!” If you say this to me, you better be standing a few feet away because I may try and punch you in the face": https://buff.ly/3BYFhsx #ChronicPain #InvisibleIllness #spoonie #ChronicIllness #empathy

submitted 5 hours ago • 1 comment

“but I wld chose pain over fatigue any time. Well, OK. I would NOT choose #pain that requires Morphine, but the levels below that. I would chose that over fatigue so severe I am not able to get out of bed": https://buff.ly/4fUCv5i #ChronicPain #ChronicFatigue #ChronicIllness #spoonie

submitted 7 hours ago • 2 comments

“In the [US], we’re taught that #nakedness is a very #intimate and private thing. Yet, I have to show people my body every day to receive the assistance I need,” writes Ashley Volion, a #wheelchair -using #disabilityRights #activist": https://buff.ly/3C4PfZn via @theconversation.com

submitted 8 hours ago • 0 comments

“It’s vicious cycle after #viciouscycle…that’s what makes [ #fibromyalgia] so difficult to manage..I can’t even come close to conveying all that I could tell them, going on 19 years trial & error experience with this battle, in a tweet": https://buff.ly/41Yzuha by @soisfibroreal.bsky.social #spoonie

submitted 10 hours ago • 0 comments

“One of the conditions of being alive is that I might get #injured or #sick and have to change the way I was living. There was no reason to blame myself or feel guilty": https://buff.ly/3zTI3yh #LifeLessons #ChronicIllness #disability

submitted 11 hours ago • 1 comment

“Chronic #migraine is a complicated, genetic, #neurological condition & I’m just me. If fancy-pants doctors and scientists can’t cure it, how can I expect to? #Joy, on the other hand, I can influence": https://buff.ly/4egxUKB #ChronicPain #ChronicIllness

submitted 12 hours ago • 1 comment

“At the center of #IFS — sometimes called “ #PartsWork” — is the idea that each of us has multiple parts, kind of like sub-#personalities. Getting to know them & treating them with #compassion may help us manage our lives & our #stress better": https://buff.ly/3YG6WH6 via @npr.org

submitted 13 hours ago • 0 comments

“ #Celebrate those small #victories. And remember, #expectations equal pressure, and we could all do with a little less of that!”: https://buff.ly/40eCYcK #ChronicIllness #spoonies

submitted 14 hours ago • 0 comments

“My car engine had a hazy cloud of swirling smoke creeping out from under the hood..but I thought I was okay. I was alive. I had pain, but I would shake this crash off & get back to life. I was so wrong": https://buff.ly/41avQPg #TBI #BrainInjury #ChronicPain #accident by @brainloving.bsky.social

submitted 16 hours ago • 0 comments

“The findings are concerning, and show: 51% of all #AI answers to questions about the #news were judged to have significant issues of some form”: https://buff.ly/439LPQi #ArtificialIntelligence #research #misinformation

submitted 18 hours ago • 0 comments

“Suddenly our world opened up. Suddenly days out could be organised, visits to family arranged, holidays planned, a viable future at last": https://buff.ly/2ApfA3y #DisabledPeople #disability #wheelchairs #Chronicillness #spoonie

submitted 20 hours ago • 0 comments

"If you think sitting in a #wheelchair and having someone push you around sounds luxurious and fun – I’m sorry to burst your bubble, but it’s anything but": https://buff.ly/3NqimIS #WheelchairUser #DisabledPeople #InvisibleIllness #awareness

submitted 23 hours ago • 2 comments

“My life was out of #control, and I hit bottom. I was #angry at everything, and it was showing up in every corner of my life. The #anger was only one of many symptoms, but it was the most prevalent": https://buff.ly/4gSuG0Z #depression #MentalHealthAwareness

submitted 1 day ago • 1 comment

“To focus on #resilience is to #focus on what’s visible to the outside world, therefore failing to grasp what it costs to #survive. It also positions resilience as binary": https://buff.ly/4er6YIk from @theguardian.com #perspective #MentalHealthAwareness

submitted 1 day ago • 0 comments

submitted 1 day ago • 1 comment

“Too often people overestimate the significance of one big defining moment and underestimate the #value of making good #choices and small steps of #progress on a daily basis": https://buff.ly/3BR6Jby #habit #SelfCare

submitted 1 day ago • 0 comments

“It is so much easier to find #SelfAcceptance when you allow someone to see you at your ugliest & they still #accept you unconditionally": https://buff.ly/3PazX8t #SelfLove #spoonie #MentalHealth

submitted 1 day ago • 0 comments

"The newer drugs target a molecule called proprotein convertase subtilisin-kexin type 9, or PCSK9. These PCSK9 inhibitor drugs turbocharge the liver’s ability to break down and eliminate #LDL": https://buff.ly/3DUlriH #cholesterol #MedSky #HighCholesterol #ClinicalTrials

submitted 1 day ago • 1 comment

"Let’s break down our #goals into tiny, daily bites—so small, they’re almost snackable. Try to identify 3 #MicroGoals each day, like drinking an extra glass of water..These aren’t just doable; they’re #victory bites that lead to big satisfaction": https://buff.ly/4gaI0xb #spoonie #EDS

submitted 1 day ago • 0 comments

“ #Prions get into the #environment ..through excretion by infected #animals ..Then, due to the prion's very stable protein structure, they're able to stay #infectious for up to 20 years”: https://buff.ly/4abmWVG #ChronicWastingDisease

submitted 1 day ago • 0 comments

“When we do talk to others, venting this #anger only drives them away more. Sallie [my #dog] helped me accept this sad truth and filled the void of lost #companionship": https://buff.ly/3WcY4qV #ChronicPain #ChronicIllness

submitted 1 day ago • 1 comment

“We’ve also numbed our #noses into oblivion, dulling our most #primal sense with the overwhelming presence of synthetic musks and so-called “ #clean” compounds, used to #scent everything from candies to detergents”: https://buff.ly/4aeqmad via @nautil.us #humanity

submitted 1 day ago • 0 comments

“He said that I cld wait six months or he could do a #biopsy now. I decided to do the biopsy now. I need to know for sure what is happening in my body. I knew that I would go nuts waiting 6 mths": https://buff.ly/4b9aFBL #ChronicIllness #spoonie #InvisibleIllness #ChronicPain

submitted 1 day ago • 0 comments

“I feel #guilty that my daughter worries about me so much & that I can’t drive far or my neck will go into spasms. The list goes on, but this is my new way of life, & I am fighting & doing my best to #survive": https://buff.ly/422FhCq from @themightysite.bsky.social #ChronicPain #disability #spoonie

submitted 1 day ago • 1 comment

" #PelvicOrganProlapse happens when the #muscles & #ConnectiveTissue of the #PelvicFloor become loose or weak. Typically, these muscles support the pelvic organs like a sling": https://buff.ly/3DIZKSt #WomensHealth via @news.upmc.com

submitted 1 day ago • 0 comments

“We are #sick. We are too sick to do washing up, brushing out hair, to get out of bed. To sick to eat, read, watch TV, write. But #exercise is going to help us?”: https://buff.ly/40t5PeX from @themightysite.bsky.social #ChronicPain #ChronicIllness #spoonies

submitted 1 day ago • 1 comment

“Everyone says something different..not just the #doctors ..Everyone with Google access. Everyone with doctor #friends. Everyone who sits next to a #doctor on Saturday morning in synagogue. Everyone with PubMed credentials": https://buff.ly/4f1GMni via @electriclit.bsky.social #PatientCare #spoonies

submitted 1 day ago • 1 comment

" #Dating with #ChronicIllness is no easy, straightforward feat for either party. Questions like this are all over Quora and Reddit: “Would you date or marry a person with chronic illness?”": https://buff.ly/4gU7CPe #DisabledPeople #spoonies #relationships

submitted 1 day ago • 0 comments

“Often, we never take time to #love ourselves; spending more time being hard on ourselves, or running ourselves down. Many even find it difficult to love themselves at all": https://buff.ly/38yb6o2 by @serenebutterfly.bsky.social #Selflove #emotionalWellbeing #MentalHealth #Selfcare

submitted 2 days ago • 0 comments