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andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
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“The level of vitriol I receive for mentioning "masks," is deeply upsetting and any bill that discourages or criminalizes masks will only increase these sentiments.” —Charlotte Friend has Chronic Active EBV for 14 years —sharing her deep concerns about Texas anti-mask bills HB3061, SB2595 & SB2876.

Prevalence of EBV, HHV6, HCMV, HAdV, SARS-CoV-2, and Autoantibodies to Type I Interferon in Sputum from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients Ulf Hannestad 1, Annika Allard 2, Kent Nilsson 3, Anders Rosén 1,* pmc.ncbi.nlm.nih.gov/articles/PMC... #ME/CFS

Best to avoid Covid when pregnant... cellandbioscience.biomedcentral.com/articles/10....

(Boston, Massachusetts) Research study on the effectiveness of abrocitinib vs placebo for improving severe fatigue in adults with Long COVID Image is from MassME April Newsletter www.massmecfs.org/newsletters/... #LongCovid #PASC @postviraltrials.bsky.social

We don’t say ‘post HIV’ or ‘post Ebola’, so why are people saying ‘post COVID’? COVID is running rampant due to apathy, ignorance and complacency on the part of governments, public health and healthcare systems www.bmj.com/content/388/...

If I’m flying I’m masking.

(Worcester, Massachusetts) Healthy Controls and people aged 12+ with ME/CFS, #POTS, #EDS, long Covid, etc sought for research study Image is from MassME @massmecfs.bsky.social April Newsletter www.massmecfs.org/newsletters/... #MEcfs #LongCovid

Record number of flu-related deaths reported this season in New Hampshire www.wmur.com/article/reco...

"Suzanne O’Sullivan’s “Psychosomatic” Mis-Diagnoses" by Dr David Tuller @davetuller1.bsky.social virology.ws/2025/04/10/t... People can support David's work here: crowdfund.berkeley.edu/project/46120 #LongCovid #chronicillness

A 31-year old unvaccinated man has just died from measles in Chihuahua, Mexico. His infection is reported to be related to the Texas outbreak. Four unvaccinated people have died in this measles outbreak so far. The only thing that prevents measles is the MMR vaccine.

🧵There’s a lot of people out there saying that measles is being brought to the US by immigrants, specifically undocumented immigrants crossing the southern border. Let’s talk about measles and migration. ✈️ TL:DR: Measles in the US comes from outbreaks started by unvaccinated traveling Americans.

Are you kidding me?! Think twice before you take that cruise. I worked the COVID cruise evacuations—they scarred me for life. And now? They’ve gutted the CDC unit that inspects cruise ships for norovirus, E. coli & other outbreaks. This is how preventable disasters happen. Again.

It's 6am and a week into my Easter break from work. Apparently the sunny weather is going to end today. I'm well-rested, my body's Stable, I've no #PEM symptoms... Before I contracted the #SARSCoV2 virus, 39 months ago, I used to regularly go on early morning walks.

I need to find healthy ways to deal with the stress that reading stuff like this causes me. It is so sad to watch.

N95 Masks Nearly Perfect at Blocking COVID, UMD Study Shows Researchers Found Even Lower-Performing Masks Were Protective MasksWork

Brilliant to see coverage today of our #FundThePlan campaign by @BBCSpotlight. Brilliant interview with Rosie, who is a carer to her sister Alice. “How can you deliver a plan with no money assigned to it?” Link in next post 👇

The Phytochemical Carnosol Found in Rosemary Destroys Influenza A Virus and Reduces Lung Inflammation www.thailandmedical.news/news/the-phy...

To clarify, all my images are how they are seen in the microscope; there is no manipulation. The color selection is arbitrary, but that's about it. They are also all acquired in 3D, and properly analyzed and quantified for data extraction. I use a Zeiss LSM800 microscope and Imaris Software.

“I’m not worried about Long Covid” Of course you’re not. Most people weren’t worried about it, until it happened to them This is true of most disabilities. People think they’re the exception. That we’ve done something “wrong”. It’ll be different for them Disability can & does happen to everyone.

Wastewater scan is showing a slight rise in the US national Covid trend. This is being led by a rise for covid levels in northeast wastewater. There is also a slight rise showing up in the West Coast as well.

The @CDCgov's cruise ship inspectors have been laid off, as well as agency's head epidemiologist for investigating cruise ship outbreaks That baffled health officials since this program is paid for by cruise ship fees, not taxpayer dollars www.cbsnews.com/news/cdc-cru...

85/100 samples in the freezer! We now need to round out our control cohort. If you know anyone who is apparently healthy who might be interested in giving a sample to the project (with $20 reimbursement of time and expenses) please refer them to [email protected]

@markbutlermp.bsky.social "Just 3 per cent of #mecfs patients surveyed by Emerge Australia in 2019 said they were able to access the National Disability Insurance Scheme (NDIS) — a troubling figure ... given how physically and cognitively disabling ME/CFS can be." www.abc.net.au/news/2025-04...

Whitney Dafoe has opened an online photo store. Images were all taken b4 I became severe with ME/CFS in 2013, images of sort I would have continued making all over world if it weren't 4 ME. So it is also a sort of parallel dimension time capsule of what cd have been with my life tinyurl.com/4adf4na7

🧬What is Metabolomics Words like #metabolomics and #proteomics are thrown around a lot in the ME/CFS research world, especially because the results from these kinds of analyses have the potential to contribute to a better understanding of what’s going on in #MECFS and to identify a biomarker.

Advocating the role of trained immunity in the pathogenesis of #ME/CFS: a mini review Bart Humer 1,*, Willem A Dik 2,†, Marjan A Versnel 1,† pmc.ncbi.nlm.nih.gov/articles/PMC...

From ME Research UK ME Research UK has a number of research summaries exploring possible links between Epstein-Barr Virus (EBV) and ME/CFS, including its possible role in triggering the disease, potential diagnostic markers, and insights from related conditions. Read more - bit.ly/EBVandME #mecfs

Poland doesn't even recognise ME/CFS - leaving one man living with it with no way out from domestic abuse In Poland, a patient can’t even get a diagnosis of ME/CFS, despite it rendering him bed-bound for the past several years www.thecanary.co/global/world...

It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.

RFK Jr. Orders Removal Of Sinks From HHS Bathrooms

Gum containing bean powder can reduce transmission of flu, herpes, UPenn Dental Medicine study finds. www.nbcphiladelphia.com/news/local/g...

If you are a healthcare provider and EVER draw labs to evaluate for iron deficiency you should know -ferritin is best unless ongoing inflammation -serum iron is USELESS -a single digit ferritin result is NEVER NORMAL even if your lab says it is #MedSky

When they say a disease isn’t high consequence… they don’t necessarily mean that for *you*, the individual. They mean that more generally… so it might mean for you, or it might mean how easy and likely it is they can replace you…

"Many of us might have moved on from worrying about COVID, but the risk of life-altering effects from your next bout of illness remains real." “This is a disease where we have no diagnosis, no treatment, no cure. And we really need to fix that” #LongCOVID #COVIDisNotOVER Source: archive.md/CUDUV

COVID didn't "turn out fine." Over 1 million people died in just the US. People are still dying. 100s of thousands of people are still dealing with the effects of Long COVID. And the entire country lost its shit and is still unwell. Tariffs will not "turn out fine." Effects will be experienced.

An MRI study of 19 children with Covid and 22 controls provided "evidence of potential brain alterations in children following mild COVID", which could relate to virus-induced brain inflammation #LongCovid #neurocovid Ting Peng et al 2025

A recent study found that COVID-19 survivors are at higher risk of heart attacks and strokes. The virus affects heart muscles and blood vessels by disrupting the ACE2 protein, which plays a key role in cardiovascular health. Source: archive.md/BMav9

The number of American adults in the labour force with a disability since Covid

MMR vaccine doesn’t just prevent measles, mumps, and rubella. It also prevents RFK Jr. from showing up at your child’s funeral to exploit your grief at your most vulnerable moment.

Oh, no. Marks Says He Was Forced Out of FDA for Trying to Protect Vaccine Safety Data 🧪 www.medpagetoday.com/publichealth...

Stephen L. Hauser and Alberto Ascherio share the 2025 Breakthrough Prize in Life Sciences. The two researchers have transformed the understanding and treatment of multiple sclerosis (#MS), a debilitating neurodegenerative disease in which the immune system attacks the breakthroughprize.org/News/91

No mask on your face You big disgrace Spreading your germs all over the place. #MaskUp😷 #COVIDisAIRBORNE Source: www.reddit.com/r/funnysigns...

Absolutely, if you get long Covid in the UK there is no support from the government. If you are clinically vulnerable you are left to struggle with no vaccines or pemgarda. Few are offered vaccines. If bird flu or anything else spreads from the US via ✈️ I have zero confidence 🧵 #covidisairborne

Identification of genetic and non-genetic modifiers of genomic imprinting through whole genome screening in humans www.biorxiv.org/content/10.1... "we observed a negative correlation between myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) & 20 NNAT:TSS CpGs"

ABC: 'When illness forced Sarah out of work, she thought she'd be off for six months. It turned into eight years' "..being diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in 2009..she'd struggled to keep her head above water.." www.abc.net.au/news/2025-04...

More cats positive for H5N1 bird flu—recent cases reported in Kansas, Pennsylvania, Iowa, and Illinois. Raw cat food linked to previous infections, but current sources unknown. H5N1 also spreading among other animals across multiple states, including skunks, foxes, mice, a raccoon, and a bobcat

I find it bleakly amusing when commentators remark on how “even doctors” say people are overdiagnosed with mental illness etc. As if the medical profession hasn’t repeatedly been at the forefront of dismissing and gaslighting disabled patients, especially women. Wildly ignorant.