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andrewg76201347.bsky.social
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
655 posts 1,143 followers 1,502 following
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#chronicillness #chronicillnesscommunity #chronicillnessmemes #spoonie #spooniesky #fibromyalgia

Bit surprised, but the #H5N1 #birdflu case in Ohio tested positive in the hands of the #CDC. Had been told there wasn't a lot of virus in the sample and they might not be able to confirm. That brings the confirmed national total since March 2024 to 70 human cases. www.cdc.gov/bird-flu/sit...

From @meresearchuk.bsky.social Researchers from Norway have published an article investigating the wages earned by 1,523 people with a diagnosis for “post viral fatigue syndrome" which includes "Benign Myalgic Encephalomyelitis". Read more here: bit.ly/4gzxOhD #MECFS #Prognosis

According to a recent NIH study, 4.5% of the people who have had Covid will go on to meet the diagnostic criteria for ME/CFS. There is no cure or treatment for ME/CFS. Patients often experience extreme suffering and a drastic reduction in their quality of life.

"The majority of those with Long COVID did not resolve, with less than 2% having resolved Long COVID." Per @dbkell.bsky.social 🙏🏻🙏🏻 www.thelancet.com/journals/lan...

A tumultuous 24-ish hours since our preprint was released yesterday. I mentioned that this was a fraught issue and I genuinely do understand that people have mixed feelings about the work. I wanted to take some time to respond to some of the concerns and comments that have 1/

LP.8.1 is now the dominating Covid variant in PA. Several wastewater sites are now rising once again for Covid.

If you don’t have #MECFS or #LongCovid you might not understand how exciting this is. It is so rare to find accurate info on these illnesses for the general public. This will be a great basic primer on ME for friends and family.

Oregon scientists studied 19 rhesus macaques for 6 months after mild COVID-19. Most showed lasting metabolic and immune changes, suggesting long COVID may be more common than reported. www.biorxiv.org/content/10.1...

"Long COVID prevalence (symptoms persisting for ≥4 weeks) was 47.5%, notably higher among younger HCWs (<40 years old), those with moderate/severe infections, and multiple infections" 47.5% in April 2023! pubmed.ncbi.nlm.nih.gov/39973713/

#ACIP, the expert panel that advises #CDC on vaccine policy, will not meet next week. #HHS, which never gave final approval for the meeting, per sources, suggests it will be rescheduled, but gives no date. www.statnews.com/2025/02/20/a...

Any recent PhD (2023 or later) aerosol scientists out there interested in studying airborne transmission of respiratory infections? My group is looking for a postdoc to work on human challenge studies with influenza virus at Emory University. Full description at drive.google.com/file/d/1HzJZ...

www.covidconscioustherapists.com/international

JUST IN: USDA confirms first H5N1 bird flu detections in rats.

Breaking news. Prof Collignon has discovered that built in air supply systems can cause migration of airborne particles. Yes. That is why we are campaigning to get that air properly filtered, preferably at the source.

Grateful to continue to be able to do great work with the amazing team at @YaleMed, led by @VirusesImmunity and @hmkyale. Today one of our preprints dropped on what is a fraught and divisive topic: vaccine injury or post-vaccine syndrome (PVS). Before medrxiv.org/content/10.110… 1/

Wore my Readimask for the first time, to get a haircut for the first time in about 3.5 years. Feels great to have no fluff around my neck! We can ALL find ways to adapt our lives to include everyone.

I teach. I'm interested in cognition, working memory, and the brain. I'm interested in how these are involved in learning. I pay attention to research into the effect of repeated COVID infections on the brain. It's one reason I protect myself and my children from COVID. #EduSky

Excellent news! HB 371 has been voted down. I thank everyone who contacted their representatives to oppose this bill. projects.montanafreepress.org/capitol-trac... #vaccine #mrnavaccine #vaccination #mtpol #mtleg #SHEASpeaks #IDSky

Regeneron is recruiting for a phase 2 RCT of REGN7544 (an NPR1 antagonist mAb) for POTS. They’re seeking 81 patients in Pasadena, CA; Carlsbad, CA; Nashville, TN; and Clearwater, FL clinicaltrials.gov/study/NCT065...

Our upcoming trial will evaluate the feasibility of Microtesla Magnetic Therapy (MMT) for addressing cognitive challenges in individuals with #LongCOVID. We are studying those with moderate to severe cognitive impairment.

Emerging evidence suggests that ME/CFS, GWS, and FM are all characterised by disturbances in metabolic pathways, particularly those related to energy production, lipid metabolism, and oxidative stress. Altered levels of key metabolites in these pathways www.frontiersin.org/journals/neu...

Migraine is not just a headache it is a complex brain disorder. New drugs like gepants help some but not all. Scientists are uncovering brain networks and genetics to find better treatments for millions. www.nature.com/articles/d41...

Sometimes you come across a study and you think "really?". This is one of them, using lasers on blood to cure brain fog. Showed big improvements apparently. pubmed.ncbi.nlm.nih.gov/39960888/

🧪Our new paper measuring the bio inactivation by Far UVC is out. We look at ventilation rate, two bacteria (S aureus, P aeruginosa) and some initial tests on distance www.sciencedirect.com/science/arti... 1/

Cøvid and ovaries 😳😳 👇🏻👇🏻👇🏻👇🏻 doi.org/10.1038/s413...

Subclinical cardiac damage seen on cardiac ultrasound post COVID @harryspoelstra.bsky.social 🙏🏻 link.springer.com/article/10.1...

This story highlights why herd immunity is so important. Of the 58 measles cases, 4 have now been reported in people who were vaccinated. The absolute last thing we want is a huge outbreak that could result in mutations that evade the vaccines. amp.cnn.com/cnn/2025/02/...

Today would’ve been my brothers 60th birthday but he’ll be forever 56, dying of Covid 19 in 2021 Everybody thinks the pandemic is over but it isn’t people are still being hospitalised and some are still dying, it hasn’t gone away just forgotten about

Australia: ‘Kids will die if jab rates continue to fall’: Health boss. By John Flint "Australia’s chief medical officer has issued a grim warning amid the rampant spread of misinformation about vaccinations." Source: archive.md/hrgTl

I would just like to say it again. It doesn’t matter who you are. If you are in my care, you are safe. That is what I promise.

Meanwhile, back in the USA, 'flu is breaking records, other infectious diseases spreading, like measles and 2 severe human cases of H5N1', @kkjetelina.bsky.social. And there are a lot of sick people in the UK too! 🤦By the way, measles is the most infectious virus known! substack.com/home/post/p-...

If I quitely sneak out of the house this morning, maybe I can leave my symptoms behind

Another day, another attempted mask ban. This time in Maryland. Please, if you stopped masking we really need you to start again. It will reduce the number of Covid and flu cases, but it will also help normalize masks as a health tool. Disabled people need you to help fight these ugly laws:

Disability is the only minority group you can join at any time. No one asks for it or expects it, it just happens It’s not a moral failing. You didn’t “deserve” it. Most people will experience disability at some point in their lives So why do we treat disabled people so badly? 🧵

Third avian flu spillover reported in Arizona dairy herd; raw pet food sickens Oregon cats www.cidrap.umn.edu/avian-influe...

From a Fellow Traveler on Twitter. Nothing more needs be said 🎯🙏🏻

Queensland respiratory surveillance report: 12 Feb to 18 Feb 2025 Reported cases: 🔹COVID: 868 (-3.2%) 🔹Influenza: 779 (+22.6%) 🔹RSV: 584 (+47.1%) Hospitalisations: 🔸COVID: 148 (+33.3%) 🔸Influenza: 43 (+4.8%) 🔸RSV: 27 (+28.5%) Source: www.health.qld.gov.au/clinical-pra...

Hey people who have loved ones with any energy depletion chronic conditions (long Covid, MECFS, persistent exhaustion, pain). I have a few suggestions from my own experience with my loved ones that may help: 1) laminated communication cards. 1/

Unsolicited IACC advice (in vein of reminders to keep your seatbelt on whenever you’re seated on a plane)— Knowing whether you need a neck brace in this situation is why trying to get craniocervical instability diagnosed can be worth some effort even if you don’t plan to pursue surgery. #MEspine

This is literally just one of the diseases the MMR vaccine protects against. That vaccine is miraculous. (source CDC)

H5N1 news from CIDRAP buff.ly/416CplM 🐄Dairy herd in Arizona is + for D1.1 genotype of H5N1 bird flu which can be more dangerous in humans. 🐱Wild Coast brand Raw pet food sickens cats w/H5N1. 🐓USDA to allow chickens to get H5N2 avian flu vaccine by Zoetis. #Vetsky #medsky 🛟 🧪