anilvanderzee.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
55 posts
2,314 followers
119 following
Prolific Poster
Conversation Starter
comment in response to
post
Onze reactie op het artikel:
www.linkedin.com/posts/niet-h...
Dank @anilvanderzee.bsky.social, @thisistheillme.bsky.social, en Tanya Hautermans voor het delen van jullie verhaal!
comment in response to
post
2) decades away for me, but the others have been part of my existence for almost two decades, and as I get older sometimes, I can help to feel time is also running out.
#pwME #millionsmissing #severeme #photophobia #hyperacusis #pots #motivation
youtu.be/hboI1uew1ZY?...
comment in response to
post
inactivity.
Instead, they had reduced mitochondrial function (energy production problems), which is a sign of qualitative muscle dysfunction, not just loss of fitness.
The the rest of the response here:
www.nature.com/articles/s41...
comment in response to
post
people were put on strict bed rest, they lost muscle mass, had reduced capillary density, and saw changes in mitochondria (the energy-producing parts of cells).
Long COVID patients, however, did not show these same changes—suggesting their muscle issues are not just from
comment in response to
post
The critique suggests that the muscle issues in Long COVID could just be from being out of shape (deconditioning).
The researchers disagree, showing that Long COVID muscle changes are different from those seen in people who simply become inactive.
In studies where healthy
comment in response to
post
2)"van de Meer writes that, given the many medical scientific studies and publications, he does indeed see things differently and fully supports the conclusions of Visser and van Campen."
In other words more people trying to save face, but it's still good news.
www.facebook.com/share/p/15J9...
.
comment in response to
post
3) that you were wrong about CBT/GET is really not that difficult. Colleagues in the Netherlands do it too. When will Nijhof et al. follow? It has already been urgently needed for decades."
Read my blog here:
anilvanderzee.com/what-the-med...
#pwme #longCOVID #LongCovidKids #KidswithME
comment in response to
post
2) #longCOVID and have moved in a different direction, and that they are only now adjusting, it feels incredibly opportunistic – an attempt to avoid losing face. One might wonder to what extent the well-being of the children has truly been prioritized over the years?
Admitting
comment in response to
post
That sounds great. Is there or will there be a recording of the talk somewhere?
comment in response to
post
Wow. Very cool. Awesome view! 🤗
comment in response to
post
Is that the view of your home?
comment in response to
post
Read more about the challenge here: mecfs-research.org/en/lemonchal...