bellaproduces.bsky.social
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I have other diagnosis as well so I also have Cardiologist, ENT, Endocrinologist to keep on track of things. Also an ophthalmologist to keep eye on eyes while on plaquenil. #LupusChat
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A5: Rest. I really encourage you to create a wonderful bed space, because you may be in bed A LOT. Take the Tylenol, use the THC oil. Don't try to be heroic. Use the pain-relieving meds. Stay hydrated. #LupusChat
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A6: My Internist suggested seeing a Rheumatologist. So now have a Rheumatologist and Endocrinologist who specifically treat Lupus and thyroid disease. But my eye doctor, dentist, and gynecologist are all active in my care, and aware or medications and side effects. #LupusChat
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A3. Bring notes and ask questions. If I need to,I'll take pictures of the swelling in my legs and/or bruises from anemia. And I KEEP asking questions to every doctor on my medical team. #LupusChat
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A2.High blood pressure. 1987. Infertility,I had 6 miscarriages before my diagnosis in 1995. Severe edema in my right leg and foot starting in 1991. I wasn't diagnosed until 1995. #LupusChat
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Girl. These outlets are always mad far! #LupusChat
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A3: Bring my notes and questions to appointments. Make sure my doctors share information or upload summaries to their different portals. Mention my Lupus diagnosis with any new provider. #LupusChat
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Absolutely. Anyone who dismisses my concerns will not see me again. #LupusChat
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A2: Joint pain in my hands, wrists, and ankles were my first symptoms. Two years later, I started losing my voice and had a pleural effusion. I also lost a great deal of weight without trying (the only symptom I liked 🤷🏾♀️ 🤣). About 4 months after that I finally got diagnosed. #LupusChat
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A1: I was glad to have a diagnosis because treating the symptoms seemed to be killing me. Once identified, then a treatment plan could be put in place. #LupusChat