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bsw5020.bsky.social
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
99 posts 7,356 followers 4,509 following
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submitted 17 hours ago • 2 comments

Each day is a gift. That is why it is called the present. Good night moon.

submitted 1 day ago • 13 comments

My BFF❤️

submitted 2 days ago • 11 comments

Remember that joy and hope are the reason that I get up every day. Good night moon

submitted 5 days ago • 6 comments

I know it is early, but who are you picking for 2028 Presidential candidates?

submitted 7 days ago • 25 comments

After three days where I felt awful, I am on the mend. Watch out world. Good night moon.

submitted 9 days ago • 19 comments

It’s Friday, I’m in love.

submitted 10 days ago • 1 comment

Moon is almost three. Should we get a second dog?

submitted 13 days ago • 13 comments

No comment.

submitted 15 days ago • 7 comments

I know it’s early but, it’s Valentine’s Day and I am in love.

submitted 18 days ago • 5 comments

It snowed in DC. That means no school for a week. Good night moon.

submitted 19 days ago • 7 comments

Still my favorite boss.

submitted 21 days ago • 6 comments

As of Wednesday, I weigh 154 pounds which is what I weigh when I was diagnosed. Good night moon.

submitted 23 days ago • 20 comments

It’s Friday, I’m in love.

submitted 24 days ago • 7 comments

My caregivers are amazing. Here’s to all caregivers. Good night moon.

submitted 25 days ago • 9 comments

Everyday I wake up is a great day to be alive. Good night moon.

submitted 26 days ago • 9 comments

What goes up, must come down. Good night moon.

submitted 27 days ago • 6 comments

Please watch this today and when you do please volunteer with @iamals.bsky.social. www.primevideo.com/detail/For-L...

submitted 27 days ago • 3 comments

I fight to stay alive for Sandra, my daughters and anyone who reminds me how special this life is. Good night moon.

submitted 28 days ago • 26 comments

Sign up for this webinar to learn more about how to interpret clinical trials for ALS. www.iamals.org/interpreting...

submitted 28 days ago • 1 comment

My protector.

submitted 30 days ago • 5 comments

It’s Friday, I’m in love. (Throwback to 2012)

submitted 31 days ago • 2 comments

Why was a Blackhawk helicopter at DCA?

submitted 31 days ago • 1 comment

Flashback to 2014. In Chicago, it is always snowing.

submitted 32 days ago • 2 comments

I am so grateful to the entire ALS community for getting ALS on the map, and for pushing for new treatments. Good night moon.

submitted 33 days ago • 6 comments

What do you think of RFK Jr?

submitted 33 days ago • 35 comments

Flashback to 2021 when I had not discovered socks.

submitted 34 days ago • 2 comments

A blue sky is a great omen. Hope you enjoy it. Good night moon.

submitted 35 days ago • 5 comments

As the night closes in, I hope you and me have a good night sleep. Good night moon.

submitted 37 days ago • 8 comments

Despite the chaos of this week, today is a great day to be alive.

submitted 37 days ago • 13 comments

It’s Friday, I’m in love. (Flashback to 2011).

submitted 38 days ago • 3 comments

With Moon, there is always love in our house. Good night moon.

submitted 40 days ago • 5 comments

This makes me happy to be alive.

submitted 40 days ago • 10 comments

As I often say, it is always darkest before the dawn. Good night moon.

submitted 41 days ago • 10 comments

This is amazing. We are at 2 degrees Fahrenheit but it feels like -11.

submitted 41 days ago • 4 comments

Home, sweet home.

submitted 43 days ago • 7 comments

Tonight, our girls are at my in-laws and that means a marathon of Shrinking. Good night moon.

submitted 44 days ago • 12 comments

It’s Friday, I’m in love.

submitted 45 days ago • 2 comments

Everyday I wake up, I am grateful to be alive. Here's to many more.

submitted 46 days ago • 6 comments

Yesterday, I walked again. It is a good thing I am stubborn. Good night moon.

submitted 47 days ago • 24 comments

I think I still am handsome.

submitted 47 days ago • 22 comments

Good night sweet moon.

submitted 48 days ago • 7 comments

This weekend my daughters used the ice rink in front of our house until 10 PM so today they are exhausted.

submitted 48 days ago • 4 comments

A huge thank you to Rob at NuMotion and my OT Karrie. They are amazing in improving my chair which gives me my independence. Thank you, thank you, thank you!

submitted 49 days ago • 5 comments

Flashback to 2013: Yes, this is really me. Good night moon.

submitted 50 days ago • 7 comments

It’s Saturday, I’m still in love.

submitted 51 days ago • 5 comments

Today, I did something I never dreamed of. I drove my wheelchair by myself. Not today ALS. Not today.

submitted 53 days ago • 18 comments

Thanks to you, I am hopeful for this year. Good night moon.

submitted 55 days ago • 13 comments

This is bullshit.

submitted 55 days ago • 5 comments

Tonight, my younger daughter came down and said, you are still listening to that. She is right. Can you help me, my playlist is from 2021. Good night moon.

submitted 56 days ago • 8 comments