candles-plus.bsky.social
Cancer & Neuro Divergent Lived Experiences Support plus
Because the #neurodivergent experience with #cancer can be horribly tough and toxic & there are so few #supportive, #caring spaces specifically for #ND cancer patients.
DMs welcome. Pls share.
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Couldn’t help but chuckle at that. Oh but it hurts. The stupid. It hurts.
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@skypacks.bsky.social
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@skypacks.bsky.social
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Oh I see. Thanks so much for taking the time to explain that. Learnt something new!
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Wow. Ur experiences r heart breaking & outrageous! Did u complain? Pls tell me you’ve got a quality medical team now who really listen to u. How many females have been disregarded = injury or worse? Do their lives mean nothing? This really boils the blood. & many women still believe ‘dr knows best’
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@nkinl.bsky.social there is a massive gap in how cancer and its treatments impact the lives of neuro divergent (autism, ADHD etc) patients. ND cancer patients often have pre existing, co-occurring medical conditions & higher sensitivity to the world. Is there any work towards cancer in ND folk?
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@nkinl.bsky.social what about cancer patients who were already disabled/had other medical conditions that reduce exercise ability or prevent it? Exercise isn’t an available option for everyone. What’s the alt for those who can’t exercise even if they wanted to? They’re always left behind in advice
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@skypacks.bsky.social
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I’m so very sorry. There are just no words. 🫶🫶🫶
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How does one register pls? TIA @sophiawongyn.bsky.social
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Who is eligible for your starter pack pls? I’m raising awareness of and support for neuro divergent cancer patients like me, as we are often unsupported and have co-occurring medical conditions that complicate cancer treatments @drjonlim.bsky.social DM is open if it’s easier for you TIA
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I read somewhere the symptoms are very similar to cancer patients. As a cancer patient, I’d like to learn more but need the simplistic version! (Have CFS too)
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Are you able to explain this in lay man’s terms - ie the idiots guide, pls?! Thank you!
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Pls explain what visual snow syndrome is?
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Agreed. Esp for female patients. The imbalance of the healthcare systems towards female patients is terrible. But then the severe lack of research into the female body is shockingly missing & misunderstood.
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Thank you!! Completely agree.