cosmichael.bsky.social
Autistic autism & ageing consultant.
Contact me for training & conference speaking.
Poet
#AutisticElders #ActuallyAutistic #Poetry
141 posts
1,598 followers
219 following
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@autisticdoctor.bsky.social says:
'Sleep deprivation is against the Geneva Convention because it’s considered a form of torture, but when #autistic people don’t sleep, it’s just “part of autism.” Why do we accept being fobbed off like that?'
As I get older, the cumulative outcome scares me
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It'll be great if you can join - we've followed each others posts for a long time. But it's only for an hour, so if you're delayed, it can't be helped.
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Definitely agree. But in the past there's been talk that #autistic cognitive decline probably happens faster than in the non-autistic population, so it's good to start getting some proper research. I hear Hilde Guerts is doing similar studies in the Netherlands, but I'm not up to speed on that.
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The time zone difference is likely to be exhausting, just for a one hour chat, but you'd be welcome. It makes clear to me that we #AutisticElders really lack local peer networks.
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Thank you - it sounds like a brilliant cafe. I've got a list now, so I'm looking forward to watching the world go by from some lovely places. ☺️
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Autism research nearly always focuses on the aut-ism, not the #autistic. Prioritising the physiology over the social. Regarding us as research subjects, not people. Infant, child, adolescent, adult. No interest in adult life stages - we're past manipulation. Until cognitive decline.
#AutisticElders
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Sorry if I overreacted, but thanks anyway for deleting. We've had people joining with their own agenda before & as older #autistic people have so few places to meet our peers, I'm a bit protective. They're free, affirmative events for #AutisticElders & people can leave if they don't enjoy.
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Hi Haylie, our #AutisticElders meetups have been going for some years & people seem to like them- many become regulars. But it's a 'safe' space, so I'd ask that our privacy is respected & not reported on, even in DMs. We're a peer group & not up for being judged (or researched). ☺️Thanks, Cos
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Every autistic UK driver has passed the same driving test as every non-autistic UK driver. That is evidence. Whereas this speculative trawl for a new autistic 'deficit' may indicate a desperate search for an academic niche.
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I can't work out how being financially penalised for having a disability equates with the creation of accessible jobs? Jobs with salaries high enough to both cover the benefit deficit & 'lift disabled people out of poverty'?
Wouldn't it bel less morally corrupt if huge companies paid proper taxes?
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I've been part of university research projects into Barriers to Healthcare experienced by #Autistic people. The #NHS railroading people online is a big barrier. Who cares? No-one takes responsibility. @rthonwesstreeting.bsky.social is all about his political agenda.
@labourlewis.bsky.social is my MP
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So tried to log into @NHS Portal. It requires a photo ID, less that 12 months old. My bus pass, drivers licence & passport photo IDs were all issued more than a year ago. Why does @nhsengland.bsky.social set me up for stress? Why are they excluding me from my own medical records?
#ActuallyAutistic
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Congratulations! But please challenge the Autism Act #ageism in excluding older #autistic pple. Getting & being old is a #LifeStage. Implications may include changing #mental & #physical health, bereavement, retirement, loss of independence, etc. We don't turn to stone at 40 yrs old
#AutisticElders