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diaryofasickgrl.bsky.social
Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
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I made a bracelet! What do you think? #EDS #MCAS #POTS

Probably needed a hug…got like 13 chronic conditions instead.

I get a mobile IV with saline and Benadryl about once a month. Why? •Fast hydration •Calms my mast cells •Calms my POTS •Makes me feel better mentally and physically overall •And I even sleep better I’m so, so glad I discovered them! They’ve been an amazing tool for my health.

Algorithm bring me all the chronically ill besties 🖤

Say it with me: Disabled people deserve to live even if they can’t work.

Chronic illness life be like: Hey we have a spoon! How should we use it? A shower? A chore? A phone call? A hobby? Reply to an email? Ope! It’s gone!

People with invisible illnesses sometimes express to you (matter of factly) how they’re feeling because you can’t SEE it and we can’t just run around screaming when things get bad. If we’re taking the time to tell you or we can’t mask how we’re feeling anymore then just know it’s BAD.

I really hate how my dysautonomia is always like “THIS IS TOO *TEMPERATURE*” 😤

Chronically ill? I HOPE YOU LIKE PAPERWORK

It’s spring time! Post something yellow from your camera roll! (This is a pic my dad sent me that he took of a bird in his neighborhood)

Challenge: Can you name one thing that I’SNT affected by being chronically ill/disabled?

Name one thing that’s more difficult when you’re chronically ill or disabled

Who are your favorite chronic illness/disability accounts to follow on here? Can you please tag them? 🖤

What’s a good non-looks related compliment to give someone?

If you have ever been annoyed with someone for talking about their chronic illness or disability “too much”—I want you to know that I wish I had ANYTHING else to talk about. And when I do have something else to talk about, I certainly do, and am SO excited and grateful when that happens.

You can be grateful for all you have whilst also being sad about all that you have lost. They can coexist.

People expect me to operate as if chronic illness is only a tiny part of my life when it has affected every aspect of it.

If chronically ill people don’t hide their pain and suffering they’re often considered dramatic or hysterical. If they do hide it then they must be faking or must not be sick at all. We seem to never be able to win…

Oh no, help! Need one more follower 🫣😂

When I was little and said I wanted to be a grown up, I meant a healthy one. Now my chronic illnesses are my parents 😡

😅😅

Am I broken? I don’t like ASMR videos. They make me want to climb out of my skin

If I could get into a fist fight with any of my illnesses it would definitely be my MCAS 👊

What is a good birthday or Christmas gift for a chronically ill or disabled person?

🥲

😂💀

It’s not “all in my head” it’s in my collagen. It’s in my entire makeup.

As a chronically ill person I really hate toxic positivity.

When you have POTS just about anything can be cardio 🥵