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disableddoctor.bsky.social
PhD. Gamer. Gardener. Clinician-Scientist. EDS. ADHD. CCI. TBI. MCAS. TN. 🏳️‍🌈
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In case anyone still cares this is a war crime m.jpost.com/breaking-new...

Indoor air quality is a disability rights issue. Even wearing scented products can make a space inaccessible to some disabled people. Please be mindful of how the products you use might impact those around you.

FYI that you cannot reliably assess neurotransmitter levels in the brain by testing for them in your urine! Don’t get scammed into taking these tests. Their utility is limited at best. I’m tired of patients getting ripped off by providers pushing pseudoscience

Try not to hold yourself to ableist standards today, okay? You deserve rest.

Why do companies assume disabled people have a medical provider who understands their condition, work functions, possible accommodations, and has the time to write up a letter? Most providers have no idea what to do to help with accommodation requests—they aren’t trained in it.

Did you know that getting groceries delivered might actually be better for the planet than going to pick them up yourself? A study cited in this article discusses how getting items delivered might decrease your carbon footprint relative to driving to the store yourself: npr.org/2024/09/10/nx-…

The stories I hear about other healthcare providers failing and even directly harming patients every week… yikes. Providers need to better. Our lives literally depend on it.

Patients should NOT need advocates to get medical care. Their medical providers should be their advocates, but the system is so broken that patients need to prepare extensively and bring along witnesses just to ensure they don’t get abused or neglected.

Disability tax: Because existing while disabled is a privilege you have to pay for.

Medical gaslighting is the norm, not the exception, especially if you are a woman or BIPOC or if you have a complex or rare disease.

My former boss, who discriminated against me, harassed me, and illegally fired me for being disabled, was the chair of the DEI committee of the largest organization in the field while all of that was occurring.

In this time of overwhelm and intentional chaos, remember what Mr. Rogers taught us—look for the helpers. Look for the ones fighting, the ones pushing forward even when everything feels like it’s falling apart.

Folks… it happened. It FINALLY happened. I went to the doctor and they told me to lose weight, be less stressed, and exercise more and guess what? I walked out of there thin, fit, and with zero problems! The magic of modern medicine ✨

If your version of collective action, organization, or mobilization excludes disabled people then you’re not as progressive as you think.

Dear medical providers: If a patient sees you once and then never returns it is NOT because they have improved. It is more likely because you sucked and they didn’t want to waste any more time, energy, or money on meeting with you. Take it as a lesson and try to do better.

People who aren’t afraid of COVID (specifically long COVID) have no idea how broken the medical system is. They still think a physician will save them if they develop LC and it’s going to take a lot work not to say “I told you so” when reality smacks them in the face

Why isn’t there a moderation service or label for ableist posts/accounts on here?

Next time you have a headache don’t reach for the painkillers… Just meditate your way out of it! Not fun, is it? Now imagine having that pain daily w/no way of controlling it &, when you go to “experts” for help, they tell you to “think” your way out of it. That’s chronic pain.

Reminder as we blaze toward the new year that it’s OK if 2024 was just a blur of pain and chaos instead of a productive era to reflect on. Being alive is particularly rough right now. You’re doing your best and that’s enough.

What if all the money and resources they are putting into searching for the CEO shooter were put into relieving medical debt for families in the US?

The executive functioning drain of being covid cautious is EXTREME and particularly hard if you have ADHD. I’m tired and wish people around me cared more so that I could save even just a tiny bit of that brain energy for other things

Hi friends! I haven’t had many #DisabledInSTEM merch sales this whole year and would appreciate any support! I have A LOT of medical bills coming up. Your support helps me to pay my bills and focus on my advocacy, such as running the Mentorship Program! www.bonfire.com/store/disabl...

Friendly reminder on this holiday that if your family is treating you like shit it is OK to leave or kick them out of your home. Really. Even if they throw a fit. Especially if they throw a fit. Boundaries are important and so is your wellbeing.

Where’s disability Twitter on here please? I see some of you but so many are missing

How do people afford mold remediation? Seriously. We’re just supposed to be able to afford to move to a new house, get rid of all of our furniture and linens and clothes and books, and be able to rebuild? Who can afford that?