epilepsytalk.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

People who don't know anything about #epilepsy may appear ignorant at first. Let's make it a point to teach before judging 💜 #chronicillness #disability #invisibledisability

submitted 11 days ago • 0 comments

AI can be a revolutionary tool in medicine. Here's an example related to #epilepsy treatment! scitechdaily.com/hidden-brain... #disability #medsky #neuroskyence #chronicillness #AI

submitted 12 days ago • 1 comment

Happy Tuesday! A bit of a social media break was needed, but we're back! Do any of you take social media breaks when things get a little too stressful? #epilepsy #chronicillness #disability

submitted 14 days ago • 0 comments

Great question! Let's hear it 😁

submitted 21 days ago • 2 comments

Happy Valentine's Day to all! Today isn't the only day to express love and gratitude. It's our hope that each day is filled with love and gratitude toward our family, friends, care team, and anyone else who understands WHY we fight to hold it constantly when it's so easy to give up 💜

submitted 25 days ago • 0 comments

Medical alert jewelry used to be very standard with few choices. Now, there are a huge variety of styles and colors! Who here wears medical alert jewelry? 🙋‍♀️ Some favorite shops: laurenshope.com www.stickyj.com www.medicalert.org

submitted 28 days ago • 2 comments

Happy International Epilepsy Day! It's great to celebrate with all of you 💜 #epilepsyawareness #epilepsy #disability #chronicillness

submitted 28 days ago • 0 comments

Have you ever heard of "emotional blunting"? Us either! It's not a direct relationship with #epilepsy, we just found it to be interesting in our journey to understand each other better! 😁💜 www.healthline.com/health/menta...

submitted 33 days ago • 0 comments

For many people with epilepsy, a "clock reset" is slang term for a seizure, because the seizure resets the duration of time one has accumulated since the last seizure. -- When was your clock last reset? #EpilepsyAwareness

submitted 34 days ago • 4 comments

A statement posted on Twitter yesterday by the Epilepsy Foundation of America. Sharing, as they do not have a Bluesky account! #epilepsy #epilepsyawareness

submitted 35 days ago • 1 comment

The DEI isn’t just about race tho. It’s about gender, pregnancy, and disability as well. Your job not being able to fire you because you got pregnant, because you’re a wheelchair user, or because you’re a woman—that’s Diversity, Equity, and inclusion.

submitted 38 days ago • 61 comments

February is Black History Month! DYK: African people are more likely to be diagnosed with epilepsy than those who originate from elsewhere. www.epilepsy.com/stories/blac... #Epilepsy #BlackHistoryMonth #disability #medsky #neuroskyence

submitted 38 days ago • 0 comments

It's hard to admit, but disability benefits/rights have potential to be interfered with in the near future. Let's try our best to keep vigilant on the nuances & plan as best as we can to maintain quality of life 💜 plan for the worst, be delighted when it's not! #epilepsy #disability #chronicillness

submitted 38 days ago • 0 comments

Turning tragedy into disability blaming is NOT how we want to promote #epilepsyawareness, but it's more important now than ever to speak up and tackle misinformation while it's a hot topic! #epilepsy #disability #DEI

submitted 39 days ago • 1 comment

New Year's is all about change. Happy Lunar New Year! May this year's changes bring good health and fortune to all, especially those in the #epilepsy community. #EpilepsyAwareness

submitted 41 days ago • 1 comment

For us Americans, the ADA regulates accessibility features such as curb ramps or automatic doors. If you are somewhere and notice they are not compliant with ADA, you are able to report a violation right on ada.gov. Don't comply to a business who can't comply with our rights.

submitted 42 days ago • 0 comments

DYK: There's nothing wrong with needing to take an allergy pill (antihistamine), but taking a version with decongestant (Claritin D, Zyrtec D) has potential to impact one's seizure threshold. Always consult your doctors! #epilepsy #seizure #neuroskyence #medsky #disability #chronicillness

submitted 42 days ago • 0 comments

If you're doing the best you can, we applaud your effort no matter the outcome. #EpilepsyAwareness

submitted 46 days ago • 0 comments

We're not alone: Read about Vinay Jani's experience with having epilepsy in India! www.newswise.com/articles/hel... #epilepsy #disability #chronicillness #medsky #neuroskyence #epilepsyawareness #invisibledisability

submitted 48 days ago • 1 comment

Just noticed we passed 200 followers! Thank you all for your interest in epilepsy and our page 💜

submitted 50 days ago • 0 comments

Typically we associate MLK Jr's legacy with race equality, but Civil Rights include disability rights. "If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward." - Martin Luther King Jr. #disability #mlk #epilepsy

submitted 50 days ago • 2 comments

🌟🎙️ Exciting News: it’s our first podcast 🎙️📹 episode where our usual host takes the guest seat 😯😁! Paediatric neurologist & scientist Julia Jacobs 🤩, one of our former star guests, steps in to turn the tables and explore Torie’s thoughts on being involved in #epilepsyresearch! Links in post below 👇!

submitted 52 days ago • 1 comment

This is my daughter, Alice Hale. This picture was taken while Alice belonged to Odyssey, an #LGBTQ+ support group for teenagers in Spokane, WA, while they were compiling members' photos & COMING OUT stories. Unfortunately, the project wasn't completed. A professional photographer donated his time.

submitted 68 days ago • 26 comments

Ever wondered how much you know about Epilepsy? Do you know what a seizure is? Check out our fun and easy way to explain all this and more with our super-neuron duo Zippy & Zappy. #epilepsy #education #neuroscience #brainfacts

submitted 55 days ago • 0 comments

Here's a reminder to always have an extra dose of medicine on you in case of emergency, such as evacuations. Sometimes the last thing to think about in a case of an emergency is the most important! #Epilepsy #ChronicIllness #medsky #disability #invisibledisability

submitted 56 days ago • 2 comments

We are keeping track of the fires in California, and to our friends there, we are thinking about you. While many of us can't directly relate, we do know how a struggle feels. Please take care of each other.

submitted 56 days ago • 0 comments