epilepsytalk.bsky.social
Welcome to Epilepsy Talk! A place to connect with those who are impacted by epilepsy.
126 posts
279 followers
29 following
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Congratulations! You are doing exactly what the epilepsy community needs 💜
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MYTH: People with epilepsy cannot drive.
FACT: Those with controlled epilepsy are perfectly okay to drive! Driving restrictions are usually temporary, only requiring the operator has gone a certain amount of time without seizure activity.
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That is a great thought! Though most are able to put emergency info on their phone's lock screen, the watch would be a quick one-stop shop for responders and allow them to go back to their duties sooner 😀
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Love it! I have a "sport" and "everyday" style. Though I made sure the "everyday" was also waterproof and durable, because I get highly infuriated at taking bracelets on and off! So the only difference really is the sport band doesn't slip 😀
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I made sure I checked out how to do it before the next post 😊 I really appreciate you bringing that up!
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Thank you for pointing that out! This is the first time having such a public profile, feedback is encouraged. Alt text will always be provided now 💜
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Blue Sky is a good place to be right now 😀 Hopefully the steam runs out soon with everything else.
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I actually posted this in my Insta story yesterday!
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Absolutely stay informed. I was told I'm overreacting at Trump throwing the word "epilepsy"out there. His power has always come from fear & hatred. He's silenced trans people, everyone brown is an ICE target, reversed EEO which was heavily influenced by race discrimination. now who is there to hate?
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in a sense, do you even WANT to know? 😂
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While we want to be positive, we have to consider this misinformation is going to hurt the way people perceive epilepsy, especially in the workplace, and it's okay to have strong emotions about the unknown.
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Goodness no! I'm going to make a broad claim that most epileptics, while we may not like it, understand that we can work for any company, but not every position.
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There are very special exceptions that have been made for an ATC with epilepsy! Not common by any means. so ATC, no. but FAA in general? there's many different positions such as engineers and safety inspectiors, or even clerical, all of which a person with controlled epilepsy are capable of doing 😊
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Thank you for spreading awareness! And reminding us of 999 😉
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Heck yeah! Definitely something to celebrate 🥳
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We are in this together 💜
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What great news! If there's no cure, controlled is the best alternative 💜
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Insurance is the worst 🙄
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This past spring there was a tornado near me. I had my bag of bottles and was ready to go!
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It's very important to have a strong support team to help us through! Happy to hear that you do 💜
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It's defeating when we're treated differently. There's no reason to! I thought it was illegal to ask about disabilities (at least in America) 🤔 off to do some research!
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That must have been very aggravating, but you're right. We can all work through our challenges 😊
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I've gotten that one, too. It was a month into a new job & 1st grand mal after about 7 months. The company decided to part ways with me shortly after, but it was within the 90 day probation, so they didn't have to give a reason (so I couldn't claim discrimination). but I think I know why...
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Oh no! It's great to hear that you & your daughter are safe 💜 I seized while driving; it's about as fun as it sounds 😬
I hope you're with an employer who cares now, we need people in our lives to understand WE DO NOT CONTROL THIS!!