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fionacloud.bsky.social
Policy Director Kidney Care UK www.kidneycareuk.org Living with one donated kidney
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Our friends at #KidneyWales are holding a Home Dialysis Webinar next week! This is perfect if you’re considering home dialysis for yourself or a loved one. Secure your spot now 👉 buff.ly/3Ew4n2Y #HomeDialysis #KidneyHealth #DialysisAtHome

A great story of how you can give a kidney and your loved one can receive one through the sharing scheme #Living #Kidney #Donation www.telegraph.co.uk/news/2025/02...

UHS are hosting a World Kidney day event on Thursday 13th March free to attend. www.eventbrite.co.uk/e/detect-ear...

Our hospital is holding an event to mark World Kidney Day on Thursday 13 March in the East Atrium from 10am to 2pm. The event will feature stalls from kidney charities and our Chronic Kidney Disease Specialist Nurses, Renal Dietitians and Diabetes Specialist Nurses.

❗ The countdown is on! Just 3 weeks until #WorldKidneyDay! Will you join us in spreading awareness? Stay tuned to find out how you can make a difference💛 Brought to you by: UKKA @kidneyresearchuk.org @ukkidney.org @nkf-uk.bsky.social Popham Kidney Support Kidney Wales PKD Charity #KidneysMatter

Calling Zelensky a “Dictator” must be where the line is drawn. It is my sincere hope that the whole political spectrum in the United Kingdom will speak with one voice in opposition to Trump’s lies.

Good on @kidney.org NKF on putting out a clear statement on this issue www.kidney.org/press-room/n... #NephSky

Evidence is what powerful people say it is. Brace for a very rough ride over the next few years.

Surgeons in Boston successfully transplanted the kidney of a genetically modified pig into a 66-year-old man with kidney failure last month, Massachusetts General Hospital announced. It's the fourth transplant of its kind in the U.S., and is part of a new clinical trial sanctioned by the FDA.

Why Europe needs to prioritise #KidneyDisease www.politico.eu/sponsored-co...

❗DEADLINE Tues 11 Feb. Thank you so much to everyone who has completed our survey so far. However, it's not too late to take part! If you’re over 18, a UK resident and have been diagnosed with chronic kidney disease, we need your input. Link here: surveymonkey.com/r/HCHZYQM

The Food and Drug Administration has given two biotechnology companies approval for clinical trials that will transplant organs from genetically modified pigs into patients with kidney failure, an experimental but potentially groundbreaking innovation.

💛 #LivingKidneyDonation takes place when a living person donates to another person, with around 30 out of 100 #Kidney transplants coming from living donors. To find out more about living kidney donation and what happens during the process, click here: kidneycareuk.org/kidney-disea...

As part of the UK government’s work to shape its 10-year plan for the NHS in England we have submitted a response summarised in this animation. There is still time for you to share your own individual response, you can do this here: change.nhs.uk/en-GB/

Shocking to see the ever-increasing numbers on the #transplant #waiting list; as well as the measures the Minister mentions we need a much more pro-active national conversation about #OrganDonation so that family members know their loved ones wishes questions-statements.parliament.uk/written-ques...

‘I have this shadow over me’: lupus patients share their experiences living with the disease

This #kidney survey closes on 11th Feb, please do take part and tell us about your experiences of receiving social care or mental health support

V interesting..

Sparking conversations about #BloodyAmazingKidneys in light of recent TV drama. Get informed about your kidneys here: kidneycareuk.org/news-from-ki... and take a FREE Kidney Health Check: kidneycareuk.org/kidney-healt... Note: there is no benefit to completing the Checker if you already have CKD

Did you know many are unaware of their kidney disease risk? Over 112,000 assessments reveal concerning truths. Are you at risk? #KidneyHealth https://www.shropshirestar.com/uk-news/2024/12/27/thousands-unaware-of-kidney-disease-risk-charity/

Dolcie-Mae from #Newport has been diagnosed with HLH - a life-threatening blood disorder. A stem cell transplant is her only hope for survival but she currently has no matching donor. 💔 🔄 SHARE and register as a stem cell donor at dkms.org.uk/dolciemae_tw to help find her hero🙏

Woman becomes world's longest-living recipient of pig organ transplant: 'I feel like superwoman'

DailyExpress Never forget #TomorrowsPapersToday

Great to see @sophierandall.bsky.social's blog on signposting credible #HealthInformation published today. Sophie highlights PIF's research, as well as supporting data from organisations including @selfcareforum.bsky.social, @kidneycareuk.bsky.social and the @healthfoundation.bsky.social. #HIW2025

A year ago today I donated a kidney as part of a paired donation. You can see the incisions below. My life has been completely normal post recovery. Posting to bring awareness to paired donation programs, especially for black folk with kidney disease in our families 1/

Today we've released a devastating report on the crisis of patients being treated in inappropriate settings in our NHS. With over 5000 testimonies from nursing staff, the report reveals how widespread this crisis has become, and how it's putting lives at risk. Read more: https://bit.ly/3WiS8wB

Please have your say on the psychosocial support you are getting, or would like to get to live with #kidney disease.

It's our 50th anniversary this year! For 50yrs now, we've stood alongside & supported kidney patients & their families. What started as one mother’s mission to fight for her son – has become the UK’s leading kidney patient support charity! Find out more: kidneycareuk.org/about-us/who...

Very thoughtful article on how and what we are learning about #xenotransplantation, with courageous recipients like Mr Faucette

Streeting defends NHS use of private sector but says it must ‘pull its weight’

Number of people seeking help with energy bills up by 20% last year

Off for reconstructive surgery today. #NilByMouth #WishMeLuck Cost of all of this to me? Nil Thank you NHS for swift intervention

It was only a little mark on my nose but fortunately #dermatology picked it up & today the cancer has been removed using Moh’s surgery technique. Feeling sore but deeply grateful to the #NHS for swift treatment. Always worth getting checked, esp if #immunosuppressed and it doesn’t look right.

NHS cancer patient thanks staff who treated him with a full-page advert in @thetimes, writes @eleanorhayward www.thetimes.com/article/7a34...

As we welcome 2025 and say goodbye to 2024- another amazing year in nephrology- you the #NephJC community voted for them... Here are the top NEPHROLOGY stories of 2024! Join us 9pm EST on 1/7/25 as we chat about what were practice and life changing events of the past year. #NephSky #MedSky

Seeing as most UK renal units can no longer afford to employ a dedicated social worker or enough nurses, are we losing our younger patients time they could be active on the #transplant waiting list? @kidneycareuk.bsky.social @ukkidney.org @rajaravi.bsky.social jamanetwork.com/journals/jam...

Radio 2 DJ Johnnie Walker has died at the age of 79, only weeks after his last broadcast. www.bbc.com/news/article...

So interesting. "Thus began her brain-imaging studies of extraordinary altruists. Marsh's early research found the size of their right amygdala — a region in the brain that processes emotions — to be larger than average, suggesting a greater capacity for empathy."

I hope that one day this isn't unusual at all.

The National Institute for Health and Care Excellence has recommended a new treatment called Vadadustat as an option for treating anaemia caused by chronic kidney disease in adults on dialysis. You can find out more about this here: kidneycareuk.org/news-from-ki...