flissaki.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

#FundThePlan

submitted 3 days ago • 0 comments

Its time for the many decades long violation of ME/CFS patient human rights to end. For that to happen government must #FundThePlan and build an NHS that is #ThereForME.

submitted 7 days ago • 0 comments

I found out yesterday that there will be no funding for the long awaited delivery plan. This is devastating. Without funding nothing will improve for patients with #MECFS #LongCovid Thank goodness for #ThereForME. Hoping I can muster the energy to join this campaign! #FundThePlan #pwME #pwLC

submitted 4 days ago • 0 comments

The effects of #ME are vast. Families are split apart, friends turn their backs, employers can’t put up with unreliable employees. Worst of all Drs here been taught that it’s an imaginary illness because standard tests show that there’s no problem. There is! #FundThePlan 🙏

submitted 6 days ago • 1 comment

Dear @rthonwesstreeting.bsky.social & @ashleydaltonmp.bsky.social My name is Nick and I have ME I used to work, play football and take countryside walks. Now I cannot do any of those The Delivery Plan for ME is an opportunity to invest in our future Please #FundThePlan @thereforme.bsky.social

submitted 7 days ago • 4 comments

A few days ago we heard the UK’s government delivery plan for ME will contain NO additional funding. How will this make a meaningful difference to #pwME? So @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social , please listen our lived experiences, and #FundThePlan @thereforme.bsky.social

submitted 7 days ago • 0 comments

Yesterday’s news was disappointing but not unexpected. With over a month until the plan is finalised there’s still time for ministers to change course. And every bit of pressure helps. More from us tomorrow on how you can fight back 💪 #FundThePlan

submitted 8 days ago • 0 comments

Dear @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social I’m a carer to my husband James who has very severe ME. He used to be a civil servant. Now he can’t get out of bed or have a conversation. The Delivery Plan for ME is an opportunity to invest in our future. #FundThePlan

submitted 7 days ago • 2 comments

30 yrs have been wasted on a psychological approach to #MECFS that led to stigma, abuse, and serious harm. It was abandoned by NICE due to bad science. Wes Streeting & @ashleydaltonmp.bsky.social The Delivery Plan is an opportunity to undo the damage and research treatments #FundThePlan

submitted 7 days ago • 0 comments

I couldn't sketch today, I couldn't stay downstairs, I could only take medication, rest & nap in bed. I hate my health problems, I feel useless. I need treatments but there are none, I need support but there is none. People with M.E need treatment. #FundThePlan #ThereForME #Pwme

submitted 5 days ago • 1 comment

🎥 Today we’re launching our #FundThePlan campaign! With over a month until the delivery plan is finalised, ministers can still reconsider the resources behind it. We want to show them why it is important to #FundThePlan. Share a video on social media using our template ⬇️

submitted 7 days ago • 2 comments

I've had #ME for 38 years, nothing has changed in that time, no care, treatments or funding for biomedical research It's an appalling record for everyone who's had a responsibly to implement change for #pwME over decades #FundThePlan @ashleydaltonmp.bsky.social & @rthonwesstreeting.bsky.social

submitted 3 days ago • 2 comments

The govt delivery plan for #ME/CFS DESPERATELY needs funding behind it, yet has none. @thereforme.bsky.social have launched a new campaign to persuade the govt to #FundThePlan See below for multiple ways to show @wesstreeting-mp.bsky.social @ashleydaltonmp.bsky.social how much this matters #PASC

submitted 3 days ago • 0 comments

#pwME #pwLC and the disabled ♿️, outdoor mobility is a fantastic charity making the beautiful outdoors more accessible. Their network of trampers can be hired for just £3 @nationaltrust.bsky.social, Countryside Mobility and Peak District trampers also offer similar facilities - check the websites

submitted 5 days ago • 0 comments

(Australia) Donate a blood sample to the AusME Biobank ausmeregistry.org #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

submitted 6 days ago • 0 comments

A RECOVER study finds that #longCOVID produces more people with #ME/CFS than previously thought. Plus, HealthRising took a deep, deep dive into RECOVER and came to the surprising conclusion that the huge Long Covid initiative may end up being quite helpful. www.healthrising.org/blog/2025/01...

submitted 10 days ago • 2 comments

Another wild and crazy mechanism of genetic exchange among bacteria! #MicroSky 🦠🧫🧪🔬🧬

submitted 16 days ago • 1 comment

A history of the ME/CFS scandal, the harm this has done to patients, and why in 2021, 80% of dr’s surveyed still believed it to be psychological. If you know one of them, show them this excellent video Thank you @abrokenbattery.bsky.social #ME/CFS #pwME #LongCovid youtu.be/RiwX9Y0NbiQ?...

submitted 16 days ago • 0 comments

So true

submitted 16 days ago • 0 comments

submitted 18 days ago • 824 comments

A vote for The Green Party is never wasted. 1) Every Green vote at a General Election gives us a tiny amount of money towards paying for a Parliamentary office with staff to help us 2) Every Green vote is an indicator to the other parties that the environment is important. 3) And we win seats!

submitted 17 days ago • 16 comments

A 10-year-old has a better plan for stopping plastic pollution than most politicians. Amaya Edwards discovered an Australian scheme that’s keeping rivers and oceans clean. So why hasn’t the UK adopted it? she wants to know. @eastangliabylines.co.uk

submitted 18 days ago • 5 comments

This is a great guide from @longcovidadvoc.bsky.social for people with chronic illness to share with friends and family #LongCovid #pwME www.longcovidadvoc.com/post/how-to-...

submitted 20 days ago • 3 comments

A new approach to academic publishing: just pour right-wing money into your own vanity journal. “Peer reviewers” paid $500 per review but are not allowed to advise against publishing the article. Wonder who’s on the editorial board… www.importantcontext.news/p/a-new-acad...

submitted 20 days ago • 15 comments

‘Airborne’ seems to be the hardest word Why do UK Infection Prevention and Control (IPC) guidelines still not acknowledge airborne transmission of Covid-19? northwestbylines.co.uk/news/health/...

submitted 22 days ago • 0 comments

BREAKING NEWS: CDC orders mass retraction and revision of submitted research across all science and medicine journals. Banned terms must be scrubbed. Goes beyond MMWR +other CDC pubs. Applies to research already submitted to top medical journals. Take a look. open.substack.com/pub/insideme...

submitted 27 days ago • 603 comments

Very important blog. It is virtually impossible to access adequate healthcare if you suffer from severe ME. This is not safe or fair - experiences of people suffering can be horrific. The team are interested in collecting your stories, please read ⬇️

submitted 29 days ago • 2 comments

We found that many bacterial species use exogenous peptidoglycan fragments - released by lysis of neighboring cells - as a general danger signal, triggering a danger response that protects bacteria against many dangers: biofilm formation. Details here 👇 www.nature.com/articles/s41...

submitted 53 days ago • 0 comments

In today’s #ThereForME substack we share some of the feedback we received from the community about your priorities for the new Delivery Plan for ME/CFS. 6 things you’d like to see in the delivery plan 👇 www.thereforme.uk/p/six-things...

submitted 31 days ago • 0 comments

This is an excellent blog post from @hildabast.bsky.social explaining how Cochrane has abandoned its core principles in cancelling the update of its extremely flawed review on exercise in ME/CFS….. 1/2

submitted 30 days ago • 1 comment

Really important people comply with this - if you keep birds like chickens you must read this- we need to ensure we control avian flu and stop it from spreading - thanks @duncanrobertson.bsky.social for highlighting 🧪 www.gov.uk/government/n...

submitted 34 days ago • 4 comments

Distribution of the four type VI secretion systems in Pseudomonas aeruginosa and classification of their core and accessory effectors @naturecomms.bsky.social from Daniel Unterweger www.nature.com/articles/s41...

submitted 37 days ago • 0 comments

You missed our series about unnoticed, but influential female scientists in microbiology that were honoured by naming a bacterium after them? Here is the basic information about the 26 women and their groundbreaking work 👉 www.dsmz.de/collection/honouring-women-in-science #herstory #WomenInScience

submitted 39 days ago • 2 comments

For all lovers of #microbial #genomics & #mosquito #microbiomes, PhD with me & @widdowquinn.bsky.social! 'Generating a genome-based interaction network of functional modules in mosquito microbiomes to create a synthetic microbiome.' #MicroSky #MicrobiomeSky 💻🧬 See www.strath.ac.uk/studywithus/...

submitted 38 days ago • 0 comments

If you're into #bacteriophages and combining 🧪 & 💻 and looking for a PhD, @suzieh.bsky.social has a project, with yours truly as supporting cast! 'Secret weapons or molecular junk? Determining the influence of bacteriophages in enterococcal infections' 💻🧬 #MicroSky www.strath.ac.uk/studywithus/...

submitted 38 days ago • 0 comments

Comprehensive new study on GLP-1 receptor agonists’ effects on health, AND a promise of more research in the pipeline wrt #LongCovid 🤞🏻

submitted 38 days ago • 1 comment