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hmepstein.bsky.social
Writer. Advocate. Speaker. Patient Empowerment. Patient Safety. In 2025, Iโ€™m sharing two chapters a month of my current book: ๐—” ๐—š๐˜‚๐—ถ๐—ฑ๐—ฒ ๐˜๐—ผ ๐—ฆ๐˜‚๐—ฟ๐˜ƒ๐—ถ๐˜ƒ๐—ถ๐—ป๐—ด ๐—”๐—บ๐—ฒ๐—ฟ๐—ถ๐—ฐ๐—ฎ๐—ป ๐—›๐—ฒ๐—ฎ๐—น๐˜๐—ต๐—ฐ๐—ฎ๐—ฟ๐—ฒ. Subscribe FREE at HeleneMEpstein.substack.com
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To my fellow #journalists, be warned. If you learned nothing from the #Nazis, or the #Soviets, learn from the most recent example, the #Hungarians. We're next. www.linkedin.com/posts/garysc...?

Diagnostic equity and age-ism also affects the *young*. Being deemed "too young' to have a certain cancer ( or any kind of condition/disease) should never translate to a delayed diagnosis. Not the place for "We've always done it this way" #diagnosis #cancer #medsky www.abc.net.au/news/2025-02...

This nonstop nightmare is also due to a rudderless DEM party. Itโ€™s not like the DEMs were caught unaware of #Project2025. They knew long before the election, had months after the election to develop a plan of resistance + millions of Americans willing to help. Where was the Day 1 action plan?

I wish all doctors understood the importance of listening to us before they themselves had to experience being on the other side of the stethoscope. It's a wonderful opinion piece but I've heard this "revelation" over 20 times now in the past ten years. Communication is key to healing.

Congress needs to reclaim their checks-and-balances powers ASAP #WakeUpCongress #Democracy

NPC! Absolutely worth your time to listen to @ezrakleinbot.bsky.social article today. The transcript is edited for length but the video makes more excellent points about what a do-nothing Congress meant for the DEMs, what it now means for the GOP, what Trumpโ€™s voters want from him & what they got.

When I heard Musk say this on Tuesday, my assumption was that it was a programming issue. Because I can code and have written to databases and because I am familiar with other examples of default values being misinterpreted. Yet somehow Musk isn't.

๐Ÿ’œ My Valentine's gift to patients everywhere. Chapter 2 of ๐—ง๐—›๐—˜ ๐—š๐—จ๐—œ๐——๐—˜ ๐—ง๐—ข ๐—ฆ๐—จ๐—ฅ๐—ฉ๐—œ๐—ฉ๐—œ๐—ก๐—š ๐—”๐— ๐—˜๐—ฅ๐—œ๐—–๐—”๐—ก ๐—›๐—˜๐—”๐—Ÿ๐—ง๐—›๐—–๐—”๐—ฅ๐—˜ is live & free! The #1 cause of misdiagnosis is inaccurate & missing data. And you already own the easiest weapon against being misdiagnosed. Here's how to use it. tinyurl.com/y5c2frr4

This is heartbreaking. All of my colleagues in medical research are impacted. Decades of progress in #patientsafety and #diagnosticquality have just been slashed and burned. Patient safety should be a bipartisan concern. In fact all #medicalresearch and #qualityimprovement work helps everyone.

open.substack.com/pub/heleneme... From dear friend and patient advocate Helene Epstein. This article is as important as it is disturbing, and this might be the most infuriating quote (at least to me).

Where can patients go to get factual information on topics suddenly made federally verboten like #transgenderhealth, #reproductivehealth, #womenshealth and #LGBTQhealth? Luckily, there is an abundance of choices all listed below. Add your recommendations in the comments please. 1/5 #PatientAdvocacy

I'm incredibly proud of my CT Senator Chris Murphy @chrismurphyct.bsky.social who has been at the forefront of the fight against the anti-constitutional acts by Elon Musk and his #DOGE goons. Murphy has received so many death threats & threats against his family, his office voicemail is disabled.

I guess 2025 is now 1984. BANNED WORDS in ALL MEDICAL JOURNALS authored by CDC employees. Gender Transgender Pregnant person Pregnant people LGBT Transsexual Non-binary Nonbinary Assigned male at birth Assigned female at birth Biologically male Biologically female 1/ tinyurl.com/4rffx7n8

Falling through the large cracks of our medical system is far worse than being late because of traffic. So hereโ€™s your road map. Ch 1 of ๐€ ๐†๐ฎ๐ข๐๐ž ๐ญ๐จ ๐’๐ฎ๐ซ๐ฏ๐ข๐ฏ๐ข๐ง๐  ๐€๐ฆ๐ž๐ซ๐ข๐œ๐š๐ง ๐‡๐ž๐š๐ฅ๐ญ๐ก๐œ๐š๐ซ๐ž identifies the barriers between you and safe healthcare. And it's free! #PatientSafety open.substack.com/pub/heleneme...

Iโ€™m curious how many #Authors feel membership in American Society of Journalists and Authors (ASJA) is valuable to their #Writing and worth the cost? Iโ€™m due for renewal and trying to decide if I should. #WritingCommunity

February 12 is #MSWL Day here on Bluesky. Iโ€™m excited to participate and support other writers. Iโ€™m pitching #Memoir and #Nonfiction. What is your genre?

1st post on bluesky. Hello fellow #Writers & #PatientAdvocates. Long time X refugee. Writer, Author, Pen Parentis board member, national advocate for patients & families, healthcare journalist. Iโ€™ll swim in this lil pond for a while until Iโ€™ve figured this place out. Open to advice on best practices