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itsmepz.bsky.social
Music 🎶 Film 🎞️ Long form journalism 🧐 Hot Chips 🍟 Happiest by the sea 🌊 Here to hang with chronically ill & socially isolated peeps and advocate for better care for #pwME. Living small with ME on unceded Whadjuk Noongar country ("Australia")
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@nosuchthingshow.bsky.social Good pod on "Why are slurs making a comeback?" I feel it was a missed opportunity to not speak to the people currently on the receiving end of these slurs - like disabled people. Would definitely have brought a different perspective to the idea that...

submitted 5 days ago • 4 comments

⚠️Attention #pwME Scoping survey for Australian Clinical Practice Guidelines for ME/CFS consultations.nhmrc.gov.au/clinical-pra... Open to everyone so I encourage #pwME & carers outside 🇦🇺 to provide input if they are able! #MyalgicEncephalomyelitis #MECFS **Please repost**

submitted 8 days ago • 2 comments

⚠️Attention #pwME Scoping survey for Australian Clinical Practice Guidelines for ME/CFS consultations.nhmrc.gov.au/clinical-pra... Open to everyone so I encourage #pwME & carers outside 🇦🇺 to provide input if they are able! #MyalgicEncephalomyelitis #MECFS **Please repost**

submitted 8 days ago • 2 comments

ME/CFS patients have been neglected for decades. Our rights have been and continue to be violated. We are constantly gaslit by medical professionals and other institutions that should be helping us. 1/11 #Photography #pwME #MECFS

submitted 15 days ago • 4 comments

1 in 22 infections. And while many people have now heard of Long Covid, most people don't know about #MyalgicEncephalomyelitis or how life deciminating it can be. #GreatestMEdicalScandal #pwME

submitted 16 days ago • 0 comments

Today is not a date to celebrate. I live on unceded Aboriginal land that belongs to the Whadjuk people of the Noongar Nation. Always was, always will be. Artwork by Rhyia Dank.

submitted 36 days ago • 1 comment

#pwME if you are in need of some comfort today✨️🥹 ⬇️

submitted 37 days ago • 0 comments

Another pw #SevereME at risk of sectioning which *will* cause decline, and maybe death. If there is a doctor based in Denmark that can intervene here, please do! #MEcfs is not a psychiatric illness and I can't believe it still needs to be said. #pwME www.thecanary.co/global/world...

submitted 39 days ago • 1 comment

My sister & my nephew are in town & it's so hard being at home while they go to the museum, the beach, & do other things. It's lovely to see them, but even after short visits I'm left feeling so ill. Sometimes it's easier to exist in my bubble of isolation. #pwME

submitted 44 days ago • 4 comments