jamiedaw.bsky.social
Health policy prof working at the intersection of Medicaid and maternal-child health @columbiahpm.bsky.social. Co-lead of the Postpartum Assessment of Health Survey (PAHS). Views are my own.
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Where is the public mandate to halt innovation and discovery in cancer research, prevention, early detection, therapy and survivorship to reduce the burden of cancer for our patients, our community and the world?
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Where is the public mandate to halt advancement in early detection, prevention, and intervention for Alzheimer's?
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This list breaks my heart. All the blood, sweat and tears scientists have put into these projects already. All the patients who will be deprived of improvements in prevention, diagnosis and treatment. All of the future scientists who won't get the training to realize their dreams and potential.
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Oh hey check it out @schumer.senate.gov It IS Alzheimers research. It IS cancer research. To name a few:
- Alzheimer's Disease Research Center
- Alzheimer's Disease Genetic Risk & Microglial Innate Immune Memory
- Cancer Center Support Grant
- Automated Digital Imaging for Cervical Cancer Screening
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The center drives innovative maternal health research and training and includes a clinical trial (in which patients are already enrolled) to test strategies to improve mental and cardiovascular health for postpartum women. PI Uma Reddy speaks about the cut's impact: www.statnews.com/2025/03/11/c...
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Yes, we are in the middle of Year 2
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It is not officially announced. As noted in other replies to my thread, I am only aware of the stoppage of 2024 data collection because of my relationships with several PRAMS states. Other researchers have noted they can’t access the prior years of data through ARF.
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CDC has not posted anything official on this. I could no longer have this information and be silent. I have also heard that researchers can no longer access prior years of PRAMS via the ARF portal (though if you have the physical files you are fine for now).
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It is unclear what will happen to the 2024 data already collected (which is most of the 2024 sampling frame). Little communication seems to be coming from CDC and 2025 PRAMS is up in the air. State PRAMS grants from CDC renew annually around April so we will know more then.
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I work with several state PRAMS programs. The PIDS (PRAMS data collection system) shutdown happened a few weeks ago. There was hope it would come back online but they have now received official CDC notice that no 2024 data collection will continue. @hdhill.bsky.social
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Call your reps, talk to your maternal-child health colleagues and community about strategies to advocate for PRAMS, we need to do everything we can to ensure that this critical system continues.
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The data is widely used by state and local health departments and researchers across the country. According to PubMed, over 250 scientific publications mentioned PRAMS in the past 5 years.
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This is an incredible loss to critical public health infrastructure that has informed efforts to improve maternal-child health for decades. PRAMS is how we track basic outcomes like maternal smoking, breastfeeding, safe sleep practices, and postpartum depression.
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Is the PRAMS ARF portal still down?
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So it bears repeating that Medicaid's most important function is protecting people from large medical cost burdens. Medicaid is very good at this.
One example - the high cost of having a baby. New study underscores that Medicaid does a much better job than commercial coverage.