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jijer.bsky.social
Health care worker, rare disease patient, mother of bunnies.
114 posts 268 followers 940 following
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submitted 117 days ago • 5 comments

"Due to the recent layoffs at NOAA, all members of the External Affairs team were relieved of their duties." www.noaa.gov/external-aff...

submitted 117 days ago • 1 comment

Marco Rubio was my senator. He and his staff politely listened to me, and their support was vital in getting hammerhead sharks protected in Florida waters. I was cautiously optimistic that he might maybe be a voice of reason. Yesterday shattered that.

submitted 119 days ago • 565 comments

Regarding #NIH websites, including #RePORTER, #PubMed, #NCBI, being down: - This appears to be due to an issue with domain-name lookup. The websites are up, the lookup is (partially) broken - It could be caused by a denial-of-service attack or a misonfiguration 🧵 with explanation and workaround:

submitted 118 days ago • 7 comments

Elon Musk has shut down a team of tech-savvy civil servants responsible for developing the IRS’s free tax-filing service and improving government websites. As a result, 90 employees were immediately locked out of their devices and informed that their jobs were deemed non-essential.

submitted 118 days ago • 325 comments

submitted 119 days ago • 35 comments

Slava Ukraini! 🇺🇦 ✊

submitted 119 days ago • 452 comments

Last night, the chapel facade of Magdalen College was lit up ahead of #RareDiseaseDay. A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone. 📷 | @oxfordpaediatrics.bsky.social

submitted 120 days ago • 4 comments

Slava Ukraini 🇺🇦

submitted 120 days ago • 726 comments

Today is #RareDiseaseDay! Despite the turmoil affecting rare disease research and advocacy this year, rare disease patients won’t let it stop them from raising awareness! @RedShirtsRemastered is streaming now, interviewing patients with autoinflammatory diseases: www.youtube.com/live/E8a5Vz9...

submitted 120 days ago • 2 comments

🤣 Doing what we do! #altgov! www.theguardian.com/us-news/2025...

submitted 120 days ago • 1 comment

There was a reason rare disease day occurred at the end of a month featuring an occasional leap day. This is a huge deal and understanding what NIH does (did?) in rare disease research is critical.

submitted 126 days ago • 0 comments

February 28 is Rare Disease Day. It has officially been on the last day of February since 2008. The NIH and FDA have "postponed" their annual event. Because this administration doesn't give a fig about #disability #ChronicIllness #RareDiseases #humanity www.reuters.com/business/hea...

submitted 121 days ago • 0 comments

"Rare diseases" affect more than 30 million Americans. But RFK, Jr. has "postponed" (without scheduling a future date) the annual two day meeting on this subject co-hosted by the NIH & FDA. "More than 800 rare disease advocates will already be in D.C. for Rare... 1/4 www.axios.com/2025/02/25/r...

submitted 121 days ago • 1 comment

NEW: Per a source, the firings of probationary employees hit NOAA's office of Oceanic and Atmospheric Research (OAR) today. It includes not just newer young scientists but people at the top of their field who have been there for years but were technically probationary for admin/not-relevant reasons.

submitted 120 days ago • 67 comments

BREAKING: The NIH summer internship program (SIP) has been officially cancelled, across all institutes. It’s a sad loss for the brightest science students in America, for American science, and for future cures for diseases like cancer and Alzheimer’s. 🧪 1/

submitted 121 days ago • 19 comments