justtreatment.bsky.social
We campaign to put patients and the #NHS before profit. ✊
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5/ This resolution will shape CF patients' health for years to come. Stand with us as we fight for every patient's right to affordable treatment.
Sign the open letter today: bit.ly/4kgnqyv
#RareDiseaseDay2025
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4/ Plus, the organisation pushing for this resolution - Rare Diseases International - receives significant funding from pharma companies like Vertex, who are keen to retain their monopolies. Vertex currently charges $326,000 per patient per year for life-saving CF treatment.
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3/ We are alarmed that leaked drafts show the resolution FAILS to include important language about medicine affordability and legal tools that could overcome high monopoly prices so that patients in every country can get affordable access to generic versions.
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2/ Ahead of the next World Health Assembly in May, Egypt and Spain are leading the development of a resolution - an agreement that will guide the World Health Organisation’s work and the wider global health effort - on rare diseases, like #CysticFibrosis. #RareDiseaseDay2025
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The UK still lags far behind many other European countries on health spending. In the govt's forthcoming Spring Budget, it's vital that they commit to a significant increase in the NHS budget to plug staffing shortages and repair & boost hospital capacity.
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Increased outsourcing & a new iteration of #PFI contracts will lock our NHS into paying profit-making companies hundreds of millions of taxpayer's pounds - money that should be being invested into building up capacity in our public health service.
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But how do we tackle them? Well, look no further than @medact.bsky.social's 'No Palantir in the NHS! Campaign Toolkit'.
Delivered alongside @corporatewatch.bsky.social, @justtreatment.bsky.social and more, it is a one-stop shop for organising against Palantir. 👇
www.medact.org/2024/resourc...
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We stand with #CysticFibrosis families in Uzbekistan and worldwide.
No drug should cost a life.
Support the #RighttoBreathe campaign for access to lifesaving CF treatments everywhere. 🌍
actionnetwork.org/forms/cf-dru...
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Tragically, 7 year old Mirakbar passed away three weeks ago without access to treatment.
No family should endure this preventable loss.
There are over 300 CF patients registered in the country, with only a few surviving to adulthood.
#cysticfibrosis
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We will continue to honour Grace by campaigning for timely and quality mental health care for every young person.
We will forever be grateful for Grace’s incredible contribution to this work.
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She was such a kind and warm presence, and will be missed dearly by all her friends within Just Treatment.
Grace’s family have set up a JustGiving page in her memory to raise money for Mind, which you can donate to here.
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Grace bravely channelled her own mental health struggles into supporting others, and advocating for the changes needed to ensure that every young person has access to the mental health care they deserve.
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If you agree that young people should be able to thrive not just survive, then sign up to our #MadYouthOrganise campaign ⬇️
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We are Mad Youth Organise, and we demand:
🚫An end to fossil fuel extraction
💰Shell and Big Oil pay for the damage they’ve caused—including funding youth mental health care
🌱A just transition to community-owned green energy
🏛️A government that protects people, not polluters
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Here’s why…
Shell made £24.1 BILLION last year while:
🔴 Destroying our future with fossil fuel expansion
🔴 Locking us into a worsening climate crisis
🔴 Driving unprecedented mental health impacts - 75% of young people now experience climate anxiety
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If you agree that young people should be able to thrive not just survive, then sign up to our #MadYouthCampaign ⬇️
actionnetwork.org/forms/madyou...
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We demand the government force property developers to pay compensation for the harm they've caused - money that should fund the mental health care young people desperately need.
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▪️ They lobby to block affordable housing
▪️ Their members bankroll politicians with millions
▪️ They fought against fixing dangerous cladding post-Grenfell
▪️ They're under investigation for price inflation schemes
▪️ Their greed leaves young people in cold, damp, unaffordable homes
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If you agree that young people should be able to thrive not just survive, then sign up to our #MadYouthOrganise campaign ⬇️
actionnetwork.org/forms/madyou...
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We demand Meta pays financial compensation for the harm they've caused - money that should fund the mental health care young people desperately need.
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While mental health services are stripped to the bone, Meta keeps building systems designed to keep us hooked - no matter the cost to our wellbeing.
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The truth about Meta:
🔴 They use addictive algorithms to hook young people
🔴 Meta is currently being sued by 41 US states for deliberately harming children & teens
🔴 Their new moderation guidelines will allow more online hatred targeting vulnerable youth
🔴 They profit from our pain
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We are #MadYouthOrganise - young people with lived experience fighting back.
We demand:
⚫️End mental health privatisation
⚫️Make corporations pay for the crisis they created
⚫️Treatment for ALL
Find out more, visit our website:
justtreatment.org/mad-youth-or...
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While 250,000+ young people wait for #MentalHealth support, private companies like the @PrioryGroup profit from our pain.
Join us in fighting for a future where young people can thrive, not just survive ⬇️.
actionnetwork.org/forms/madyou...
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The numbers are shocking:
🔴The @PrioryGroup makes a turnover of £770m yearly - 90% from OUR tax money
🔴 60% of children's psychiatric beds now privatised
They get rich, we get sick.
#EndPrivatisation