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kaileyh175.bsky.social
Epilepsy and RNS advocate! 💜
74 posts 90 followers 51 following
Regular Contributor
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Posts 12 Comments 38

here’s a sneak peek of my purple Christmas tree!! 💜 i noticed that since last year, one house in my neighborhood did red for AIDS 🫶🏻

submitted 74 days ago • 0 comments

can we all collectively agree not to compare #epilepsy to other medical conditions when advocating or spreading awareness? each experience with a medical condition is different 💜

submitted 85 days ago • 1 comment

i once got accused of being on drugs (by another person with #epilepsy) because my pupils were dilated 🤦🏻‍♀️ i had just started another medication and got maybe 5-6 hours of sleep

submitted 89 days ago • 3 comments

if you shop on Poshmark and watch the lives, please be careful!! they are coming out with unnecessary graphics that strobe and move fast. shop carefully 💜

submitted 99 days ago • 1 comment

if you’re an iPhone user and have auras before a #seizure, ask Siri to time it if you are alone! 💜💜

submitted 102 days ago • 0 comments

if you have photosensitive #epilepsy, it may not be best to watch the movie Wicked as there were some flashing lights in the musical/movie 💜

submitted 103 days ago • 2 comments

this can be understandable in some cases but having #epilepsy itself can be traumatizing for anyone, especially parents and entire families. keep in mind, not everyone with epilepsy has siblings 💜

submitted 106 days ago • 0 comments

if you haven’t yet, please join the #epilepsy feed! my boyfriend and i created it for #epilepsyawareness month for the community on here 💜🫶🏻

submitted 107 days ago • 0 comments

yay!! for those wondering where @brainablaze.bsky.social has been in the #Epilepsy feed, we just added them!!! all of their posts will automatically show up 💜

submitted 107 days ago • 1 comment

the #epilepsy feed is officially up!!! yay!! my wonderful boyfriend @dkhmora.bsky.social helped create it! have fun raising #epilepsyawareness with me!! 💜

submitted 108 days ago • 3 comments

taking your medication(s) for #epilepsy on time is crucial to prevent a seizure and SUDEP! have you ever missed your meds or forgot? 💜

submitted 109 days ago • 5 comments

Disabled people are worth protecting. Period.

submitted 110 days ago • 9 comments