taking your medication(s) for #epilepsy on time is crucial to prevent a seizure and SUDEP! have you ever missed your meds or forgot? 💜 - ThreadSky

kaileyh175.bsky.social • 109 days ago

taking your medication(s) for #epilepsy on time is crucial to prevent a seizure and SUDEP!
have you ever missed your meds or forgot? 💜

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epilepsytalk.bsky.social•109 days ago

yep, an unfortunate human moment 😓

kaileyh175.bsky.social•109 days ago

it happens to almost all of us sadly. if it makes you feel any better, i once accidentally took my night meds (sleepy meds) in the morning. missed the entire day sleeping 💜

epilepsyawareness.bsky.social•109 days ago

Too many times when I lived on my own and I paid the price for it the next day and longer,she’s moved in now so I’m lucky I’ve got someone who makes sure I take them. She’s a Wonderful woman. 💜

defiantandbeyond.bsky.social•109 days ago

Lately, yes. I never did in the past so I am trying to be more mindful.

A new glitch: I went to pick up my prescription & they did not dispense the full amount. The pharmacy informed me that the manufacturer (Novartis) will not do odd amounts. I was shorted 60 much needed pills. It’s Epilepsy meds!

kaileyh175.bsky.social•109 days ago

wow 60 is a lot!!!! definitely not your fault. i lose track of time some days so 2 alarms + reminders + Epsy notification = medtime for me. 💜

epilepsytalk.bsky.social•109 days ago

LOVE Epsy! Especially being able to track auras.

kaileyh175.bsky.social•109 days ago

same here!! not much for me to log nowadays except medication reminders though 💜

epilepsytalk.bsky.social•109 days ago

Happy to say... same!

defiantandbeyond.bsky.social•109 days ago

Another battle to fight. I pay a fortune for this Med as it is the only one that works.

Getting in touch with the neuro in a timely manner is difficult. I will call my primary tomorrow. There has to be a solution. Insurance will not let me order for another 3 months. 60! It’s only life or death.

kaileyh175.bsky.social•109 days ago

my gosh 3 months!! hoping for the best outcome for you! definitely need more!! 💜🫶🏻

defiantandbeyond.bsky.social•109 days ago

It is also a difficult medication to find. I often have to wait 10 days for it or scurry to find them in other pharmacy’s.

Inhale. Exhale. I will persist! Take care, Friend.

paula890590.bsky.social•108 days ago

Never.

trapdinawrpool.bsky.social•108 days ago

Yes which is why I have alarms set to remind me

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