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longcovidsupport.bsky.social
UK Charity Keeping people with #LongCovid at the centre • Support • Research • Advocacy • Education • #ResearchLongCovid #TreatLongCovid #CureLongCovid www.longcovid.org https://linktr.ee/longcovidsupport 📧[email protected]
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🔥 On now!! ⬇️

submitted 2 hours ago • 0 comments

🚨 New video from The Covid Cover-Up: “They know: 🔴Covid spreads in the air like smoke 🔴it's still infecting, disabling & killing us 🔴they can easily prevent it… Your government has power & responsibility to protect you from Covid. What's stopping them?” #LongCovid www.youtube.com/watch?v=QM4Q...

submitted 11 hours ago • 1 comment

🚨 Amanda Pritchard - Chief Executive of NHS England - has resigned. Her letter includes: “over the last two years, we have begun the process of steady recovery from the inevitable impacts of the pandemic” #CovidIsNotOver #LongCovid

submitted 1 day ago • 1 comment

#MyLongCovidRock - this time in #Norway Raising awareness of paediatric Long Covid one small rock at a time. Find out more and how to get involved: www.longcovidkids.org/post/mylongc... #LCKRocks #LongCovidAwaress #LongCovid #LongCovidAwaarenessDay #MECFS #PoTS #PANS @buonsenso.bsky.social

submitted 2 days ago • 1 comment

🚨MPs are back from recess today, so send yours an email urging them to attend the #LongCovid APPG meeting on Wednesday this week (26th Feb.)! #CovidIsNotOver

submitted 2 days ago • 1 comment

🔥1/3 Fireside Chat from The #LongCovid Clinic - What You CAN Do! Weds 26 Feb 2025, 6pm GMT ‘Non-Restorative sleep & Autonomic Rehab’ @binitakane.bsky.social & @helenoakleigh.bsky.social talk with Dr. Raouf (Ron) Gharbo, Director of Autonomic Rehabilitation at Virginia Commonwealth University. ⬇️⬇️

submitted 3 days ago • 1 comment

🗞️1/2 “Campaigners in Cheshire have been backed by national charity Long Covid Support which said services around the country were under threat.” See link below to give feedback to NHS Cheshire & Merseyside on service plans for #LongCovid patients. ⬇️ #CovidIsNotOver www.bbc.co.uk/news/article...

submitted 3 days ago • 1 comment

📣 So many people are ill, repeatedly, yet few will mention the C-word… because it’s #AnythingButCovid! Let’s hear your ABCs! We’ve started off with three. ⬇️ #CovidIsNotOver #LongCovid

submitted 3 days ago • 3 comments

📣 Is your MP a Member of the #LongCovid APPG? If not (& they are eligible to join), urge them to become a Member of this vital cross-party platform & attend the meeting for MPs (& Peers) only on 26 Feb.! We have drafted suggested email content - link below. ⬇️ #CovidIsNotOver

submitted 4 days ago • 1 comment

Wow!! Such an incredibly impactful contribution from Sarah to our Long Covid Support Banner that will be the centrepiece of our #LongCovidAwareness Day event on 15th March. Amazing work! Thank you so much. 🙏 #LongCovid

submitted 5 days ago • 1 comment

📣 We’re coming together on #LongCovidAwareness Day to reflect on progress and shape what’s next. We’d love you to join us - in person or online! When: 15th March 2025, 2pm GMT Where: Lyric Theatre, Hammersmith, W6 0QL Sign up now! Link below ⬇️ #LongCovid

submitted 5 days ago • 2 comments

📣 Don’t forget 5-year #LongCovidAwareness pin is now available! A collaboration between Long Covid Support and @longcovidkids.bsky.social, the pin spotlights the 5 years of fighting for recognition, appropriate healthcare and research, and supporting each other. Link below! ⬇️

submitted 5 days ago • 2 comments

🚨 In the U.S.: “Within 14 days of the date of this order… the Secretary of Health and Human Services shall terminate the Secretary’s Advisory Committee on Long COVID” #LongCovid #CovidIsNotOver Link ⬇️ www.whitehouse.gov/presidential...

submitted 6 days ago • 5 comments

🗞️1/4. Piece on BBC North West on closure of Cheshire & Merseyside #LongCovid Clinics, including comments from our Trustee @margaretohara.bsky.social: “Just because it’s not convenient for the ICB or it’s too expensive, it doesn’t mean we have ceased to exist” (Video in 4 parts ⬇️) #CovidIsNotOver

submitted 6 days ago • 4 comments

🗞️This week members of the #LongCovid community including our Trustee Yanto Evans, were at @senedd.wales to hand over a petition submitted by @charleswaltz.bsky.social to tackle the social & economic crisis caused by Long Covid. Diolch! 🙏 Watch here: www.youtube.com/watch?v=fAm-... #CovidIsNotOver

submitted 7 days ago • 2 comments

Reply to Chris Coghlan MP from @ashleydaltonmp.bsky.social: “Should new evidence emerge that warrants updates, guidance will be reviewed & revised…to ensure highest standards of infection prevention & control…across healthcare” Are 100+ deaths/wk involving #COVID19, 2m+ with #LongCovid not enough?

submitted 8 days ago • 1 comment

Impactful video by our Founding Member @nikki-s.bsky.social on her 5th Covid-versary. Thank you, Nikki. 🙏 #LongCovid #StillNotRecovered

submitted 9 days ago • 2 comments

📣 New #LongCovidAwareness Pins - Available Now!! 5 years fighting for recognition, support & care. 5 years of resilience, advocacy & standing together. In collaboration with @longcovidkids.bsky.social we have a: 5️⃣ Limited Edition 5-Year Commemorative Pin 🎗️#LongCovid Awareness Ribbon Pin Link ⬇️

submitted 9 days ago • 2 comments

💖 This #ValentinesDay we send our love out to the #LongCovid community. 🧁 What would it say on your cupcake? ⬇️

submitted 12 days ago • 3 comments

📣 1/3. The #LongCovid community has been crucial in defining the condition & advocating for better outcomes. On #LongCovidAwareness Day, we invite you to join us for our Community Strategy Launch! 🌟15 March 2025, 2pm GMT - Lyric Theatre, Hammersmith, London W6 0QL, & online🌟 Registration link ⬇️

submitted 13 days ago • 1 comment

Funding for #LongCovid services in Dorset is being cut. Thanks to @sammiemc.bsky.social for speaking out: “As #Covid infections continue and research confirms that Long Covid can last for years, the removal of local services will create a devastating gap in care.”

submitted 14 days ago • 1 comment

Ashley Dalton MP (@ashleydaltonmp.bsky.social) named as new Health Minister. We look forward to positive action on prevention of spread of airborne viruses including #Covid_19, effective support for those with #LongCovid & other chronic illnesses, & meaningful communication.

submitted 16 days ago • 0 comments

‘Every Story Matters’ - share your experiences of the pandemic with the UK Covid Inquiry this week at: 🔴 Bristol (The Galleries) - Tues 11th/Weds 12th Feb., 10:30am-5:30pm 🔴 Swansea (LC2) - Fri 14th/Sat 15th Feb., 11am-7pm #LongCovid covid19.public-inquiry.uk/every-story-...

submitted 16 days ago • 1 comment

News about the UK Health Minister @gwynnemp.bsky.social ⬇️

submitted 18 days ago • 0 comments