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longhaulerspodcast.bsky.social
We’re a community of Covid longhaulers who have been brought together by this illness. We share the stories of folks who have been through it, who are going through it, and how they’re surviving it. #LongCovid #CovidIsntOver #CovidIsAirborne #CovidSky
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Wir sind zu krank für den Küchentisch youtu.be/EnCGbgj75Eg?... #LongCovid #MECFS

submitted 97 days ago • 0 comments

For US based folks: the Washington Post is reporting covidtests.gov may be shut down as soon as tonight. Order your free rapid tests now even if you thought you’d reached your limit last Fall. They are likely to end up being destroyed by the current administration. #covidisntover

submitted 5 days ago • 0 comments

Episode 6 - New Daily Persistent Hell (NDPH) just dropped! podcasts.apple.com/us/podcast/c... open.spotify.com/episode/2wpH... If listening isn't your thing, we have a writeup of the episode on our substack: open.substack.com/pub/covidlon... #LongCovid #NDPH #CDH #covidisntover

submitted 6 days ago • 0 comments

We're wrapping up our survey in the next day or so, so please fill this out if you are a longhauler and have the spoons! #Longcovid #Covidisntover

submitted 8 days ago • 0 comments

Everyone who stopped taking COVID seriously fell for propaganda that wanted them to abandon science, justice, & anyone deemed undesirable. If that’s you, commit to doing better now. Put on an n95 & follow the lead of organizers who were savvy enough to never take theirs off. Give/get mutual aid:

submitted 30 days ago • 6 comments

"Wash your hands" does *nothing* for an airborne pathogen this piece even identifies as such. Media misinformation and public health incompetence is literally killing us. Rampant COVID is a contributing element to TB reactivation and susceptibility. Come onnn www.vice.com/en/article/t...

submitted 15 days ago • 7 comments

Are you a covid longhauler? Would you take a few moments to fill out this survey for us? Long Covid Awareness day is coming up next month and we are preparing a special podcast episode- we want to hear your stories! docs.google.com/forms/d/e/1F... #LongCovid #CovidIsntOver #CovidisAirborne

submitted 17 days ago • 0 comments

Psychology Today: "I'm the Mom. But No One Listened to Me" 'My kid got sick. I was dismissed. My voice mattered most' '..a neuroscientist diagnosed my son with Long COVID...I felt relieved to know the cause of Marty’s crushing fatigue and brain fog..' www.psychologytoday.com/intl/blog/ri...

submitted 17 days ago • 0 comments

Irish friends, check this out!

submitted 17 days ago • 0 comments

The “#pandemic of #abandonment" : Navigating friendships five years into #COVID19 thesicktimes.org/2025/01/30/t... #longCovid TY @michaeltikus.bsky.social

submitted 23 days ago • 1 comment

We want to share your experience about living with debilitating symptoms, navigating healthcare, and facing ableism in society. If you're able, please take a few moments to fill out this survey: docs.google.com/forms/d/e/1F... #LongCovid #ChronicIllness #MECFS #POTS #maskup

submitted 35 days ago • 1 comment

If you don’t understand why disabled people are saying that “you do you” Covid policies and leftist’s abandoning masking helped pave the way for a Trump win… my post election article might help. We decided that people were expendable. Threw them away for “back to normal”. We let hate win:

submitted 31 days ago • 2 comments

This is very worrisome. A systematic review of 31 long covid study found that executive dysfunction is common even after mild infections.

submitted 33 days ago • 0 comments

Join us to protect yourself and others.

submitted 34 days ago • 6 comments

Tough day to be a real clown I guess.🤷🏻‍♀️

submitted 34 days ago • 1 comment

We want to share your experience about living with debilitating symptoms, navigating healthcare, and facing ableism in society. If you're able, please take a few moments to fill out this survey: docs.google.com/forms/d/e/1F... #LongCovid #ChronicIllness #MECFS #POTS #maskup

submitted 35 days ago • 1 comment

Should they respond to your comments on the virus by rolling their eyes and deploying the old idiom “go tell it to the marines,” politely and firmly tell them that a recent study has found that 1 in 4 US marines infected with Covid had Long Covid a year later.

submitted 59 days ago • 0 comments

N95 Masks Nearly Perfect at Blocking COVID, UMD Study Shows 😷 Researchers Found Even Lower-Performing Masks Were Protective today.umd.edu/n95-masks-ne...

submitted 61 days ago • 0 comments

Covid caution can feel like an impossibly uphill battle at times. Demand others mask and you’re called militant and unreasonable Espouse the benefits of masking as community care? You’re accused of virtue signaling Masking in public? You get coughed on Politicizing masks has done so much damage

submitted 66 days ago • 9 comments

#MEcfs

submitted 68 days ago • 0 comments

People: Don't be lonely! Go build community! Community: You're still wearing a mask? Why? The pandemic is <COUGH> over. Excuse me, I caught <COUGH> some kind of <COUGH> mystery bug, it's been <COUGH><COUGH> going around, I don't <COUGH> know what it <COUGH> could possibly be <LOUD, WET HACKING>

submitted 68 days ago • 6 comments

It still astonishes me that more people in politics and our media pretend to be concerned about kids having missed school than kids having been killed or sickened by Covid.

submitted 69 days ago • 421 comments

Do you find it hard to ask for people around you to take infection control precautions? Asking someone to wear a mask, or explaining why you’re skipping an event can feel awkward or confrontational. A 🧵 with example "scripts" you can use! 1/15 #longcovid #covidisntover #covidisairborne #maskup

submitted 68 days ago • 1 comment

Stay vigilant and mask up friends! 😷 #longcovid #maskup #disability #pwLC #pwME

submitted 69 days ago • 1 comment

Wear 👏🏻 the 👏🏻 mask 👏🏻

submitted 69 days ago • 0 comments

Did you know mast cell dysfunction causes vasodilation? If your #POTS symptoms come and go based on something you’ve ingested, you may have hyperadrenergic POTS. #MCAS #longcovid #maskup #dysautonomia

submitted 69 days ago • 1 comment

Do you know your #POTS subtype? It’s helpful to know which you have so you can pick the right therapies! www.standinguptopots.org/POTSsubtypes #longcovid #maskup #dysautonomia #covidisntover #covidisairborne

submitted 69 days ago • 1 comment